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Hello From Kansas


gluten-enemy

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gluten-enemy Newbie

Hello everyone, I am 23 year old woman, who more than likely has gluten sensitivity, and possible Celiac Disease. Over the past few months I've had horrendous stomach cramps, bad excema, and exhaustion. For my excema, my doctor gave me some steriod cream which has only helped minimally. I've switched laundry detergents, with no results.

He sent me over the asthma and allergy clinic, and they said I'm now allergic to grasses and molds, which I knew, but they also did say, that gluten could be a great contributor to these symptoms. They want me to start a 4 week gluten free diet and see if I should have improvement. If so, keep with the diet. If not, come back?

I also have possible PCOS too so I'm not sure how that is going to play in to all of this.

Anyways,I hope to get some good info from here!


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kareng Grand Master

Hey! Welcome! I'm in Kansas, too ( KC area).

Why wouldn't they give you a blood test for Celiac? If you go gluten-free & then take the test, it won't be valid. Maybe you could get a dermatologist to biopsy next to the active lesions to test for DH ( the skin version of Celiac).

Have they tested you for things like thyroid, iron, B 12, vitamin D? Lack of these can lead to tiredness. Celiac can cause you not to be able to digest and absorb your vitamins in your food or vitamin pills.

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    • suek54
      Hi Trents, its a very English thing....there's red sauce (ketchup) and brown sauce, more spicy. People tend to be one or the other. Both usually have malt vinegar in them, so both a no-no for us,  unless you hunt for a specified gluten-free make.  Hi Belle, Any meat which has been processed is likely to have cereal in it. If someone is having a BBQ, maybe take a small steak, lamb chop or piece of salmon for yourself. something which has had no processing at all.  No-one will mind, just leave it on a piece of foil so that it doesn't share space with gluten-containing foods.  Avoid all dressings, except olive oil, though again you could always take your own gluten-free version. It sure is a steep learning curve but I'm getting my head round it now.  Sue  
    • trents
      Brown sauce? What's that about? What does the color have to do with anything?
    • BelleDeJour
      Hi @suek54 Good point. I hesitated over what to choose to eat - there were burgers and sausages and I knew that each came with potential wheat possibility. It was my friend who was cooking the BBQ at a local event. It's so tricky, isn't it? I ended up going for the burger and stupidly didn't think about the brown sauce but knew something gluten-containing had been consumed as my legs were itching all over for hours when I went to bed on Sunday. Arrgh!  Actually, my initial thought was corn on the cob as I had that too... and it grows near wheat. Could it also have been that? Are you able to eat that?  I agree with you about the heat, I am finding it tricky too especially at night. I have had 3 itchy nights in a row and am at this point thinking I was silly not to ask about Dapsone at my derm appointment but maybe things will calm down now I am back on being more in control of my food. I also have some more topical steroid coming and that does keep it under control. I plan to visit my son in Scotland for a few days in July so am going to see how things go for a few weeks and if the itch does not calm again, I will do an e-consult with my GP and request Dapsone to try (or something that might just help a bit over that holiday, or longer term). I really don't relish the thought of being in Itch Hell on holiday, just want to enjoy seeing my son and his girlfriend.  So pleased to read that you are feeling more comfortable on the higher dose. I am really pleased for you and long may it continue for you.  
    • suek54
      Hi Belle Oops!  Can you eat burgers OK? So many of them have added cereal to pad them out.  Hope the after-effects are not too bad? I'm OK. Here in SE UK we are having a mini heatwave. 35° today. Keeping cool as much as possible to prevent itching from the heat. Otherwise not too bad thanks. Dapsone 100mg proving much better than 50mg. Still a few itchy patches but no spots as such. Making life easier.  How are you generally (when not eating brown sauce)? Sue        
    • BelleDeJour
      How is everyone?  I made a silly mistake and chose HP (brown) sauce on my burger at a BBQ at the weekend. Hope everyone is okay.
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