Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Testing Question For My Dad


suziq0805

Recommended Posts

suziq0805 Enthusiast

Just looking for some ideas to possibly help my dad. He's had a number of medical issues lately and I just wonder which of my parents I inherited gluten issues from. Money is a concern due to a layoff. Due to his medical history he will be difficult (if not impossible) to insure if he can't find a job with benefits before his COBRA ends, so pursuing actual celiac testing may not be smart. Background info: no official celiac in the family. I've been diagnosed gluten sensitive, but will be getting a 2nd opinion on that. My toddler is DQ8/DQ8. So I have at least a DQ8, so 1 parent must carry DQ8. I always thought it came from my mom's side, but now I wonder. Both of my grandmothers have IBS and lactose intolerance. Here's my dad's medical history that I know of:

- put on an elimination diet as a child (due to hives I believe?) but the only thing they determined he was allergic to is the fabric silk and seasonal allergies and hayfever. Doctor thought he was having trouble adjusting to a child that the family took in for awhile.

-he was a pretty skinny kid

-about 25 or so years ago he developed hepatitis (a non-infections form)

-a few years ago he began getting this AWFUL chronic cough and they thought it was due to allergies/asthma. He was put on a new, experimental allergy shot and inhalers and it seemed to improve.

-2 years ago was diagnosed with a rare form of cancer, had surgery and tumor was removed. Then a few months later discovered it had spread to his lungs. Mayo clinic wasn't even that experienced at treating this form of cancer. But he went through chemo and the last few scans have looked good.

-during the cancer battle a scan showed something in his stomach or intestinal area. One doctor thought diverticulitis and another disagreed because he wasn't in pain. He was put on the diverticulitis diet and continued chemo and on a later scan I believe that spot or whatever it was had disappeared (so I always wonder if it was a tumor or what)

-now he has another cough, but my nephew (who is frequently at their house) has a cough they can't figure out also. Dad's being treated with antibiotics b/c his lungs sound bad so hopefully this cough is just a short illness.

-I asked him if it's been tested for acid reflux and he said he was treated with acid reflux meds for a year, but not anymore.

-a few months ago he developed peripheral neuropathy- doctors aren't sure if it's chemo related or not

Could gluten be at the root of some of this?? I doubt it could cause the lung cancer, what about the other issues? Is there testing he could get to maybe hint towards it without getting a celiac panel? I was thinking of suggesting a vitamin panel. My family has seen that eating gluten-free is a big change so I don't know if they'd be that interested in trying the diet without a definate need to.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Re the cough- new studies show that acetaminophen (Tylenol) makes asthma worse. :blink: Just in case he is taking it.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...