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Extremely Personal........females Only!

Mahee34

By Mahee34
in Related Issues & Disorders

Recommended Posts

Heather22 Rookie
Heather22
Posted

Wrong board.

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skbird Contributor
skbird
Posted

For me, the cramps I feel in my legs aren't like charlie horses, more like a dull ache that starts in my low back and pelvic region, travels down the front of my thighs and continues down to my ankles. I have been telling my husband about this for ages, he gives me really good ankle rubs when I'm having this problem. I was reading about endometriosis the other day and one of the symptoms was aches/cramps in your legs and I thought OMG! that's me!

So when you took the med for 6 months and went into menopause, did you stay in menopause after you stopped the drug? While it would be a tough 6 months, I WOULD LOVE THAT!!!!!

Honestly, I used to dream of getting a hysterectomy but my mom's friend got one last year and when I heard the details, I got chicken about the whole thing. Anyway, I'll see the gyne in three weeks so maybe I'll find some good solutions.

Stephanie

hthorvald Rookie
hthorvald
Posted

I've had similar pain during intercourse, too, but my doc just figures it's associated with menopause -- early onset due to hysterectomy. Prior to diagnosis, I was told I had adenemyosis a cousin to endo. He's just given me vaginal hormone suppositories I use twice a week. What a hassle! If anyone can give me any info to give to him, let me know. My docs are learning about celiac disease right along with me.

Helen.

cgilsing Enthusiast
cgilsing
Posted

skbird and Jen

The Lupron is for the treatment of endometriosis and after your last dose it takes about 2 months to get over it and it's back to normal periods and no more hot flashes. For me it was a godsent, I was only 20 and not even dating anyone much less ready for a family. They were conserned that my fertility was at stake. It's not a cure all, the endometriosis can return. THey told me it would be seven years. It's been 5 and just now my periods are getting heavier again and my cramps are getting worse, but NOTHING like it was before! I would do it again (although unpleasent) if I had to. It's a rough 6 months, but in comparison to the monthly hell I say it's worth it!! ;)

skbird Contributor
skbird
Posted

Wow, thanks for the info. That sounds really intense, but I can understand. I'll do some research on that. Though the rough 6 months is pretty daunting.

Good to know what options exist out there.

Thanks!

Stephanie

Mahee34 Enthusiast
Mahee34
Posted
  • Author

How do they do a test to notice that you have endometrioso?

sdore Enthusiast
sdore
Posted

Is the pain on the outside or inside?

I have cysts and they can hurt. (inside)

I went my doctor and he said that I have vestublites (that may be spelt wrong) and this hurts on the outside. It's simply another allergic reaction. I have to wear cotton, white underwear and only use detergents without any dyes or parfume. I cannot use saop with any scent. My Dr. recommended neutrogena. Also do not d%$#@#$!!! I didn't know you are not suppose to and this brought on a PID infection which is one of the worse things that I have ever experienced!! Also, use unscented and white tp, and unscented tampons.

I have been doing this for a few weeks now and I am feeling much better.

I hope this may help!!!!!

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      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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