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ukdan

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ukdan Rookie
ukdan
Posted

So after what feels like two long months my endo/colonoscopy is tomorrow and to be honest I can't wait!

This challenge alone has been enough to convince me that gluten obviously doesn't agree with me and I fully intend to remove every trace of it whatever the results.

I'm not really seeking advice, more just sharing my experience for anyone in the same boat and wondering whether to test or not. For me it has been rough but also for my peace of mind I also wanted to make sure there is nothing more sinister going on.

Is it wrong to be hoping it to be coeliac?! I know its not fun sometimes but I'm quite prepared for going gluten free again with the advice I've picked up on here and looking forward to getting my life and health back on track!

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youwillrise Rookie
youwillrise
Posted

I kinda feel the same way. I'm hoping it's celiac because I can make lifestyle changes and be in control...and eventhough ill always have celiac (IF I do have it, I mean), it makes a difference knowing that I can do something to reduce the crazy symptoms and actually feel good. of course, i'd rather not have any disease, but if I'm gonna have one...I wish it to be one that I can fix and if I can't "fix" it...id like to be in control of it.

Best wishes with your endoscopy...hope all goes well! I'm still in the blood testing phase. I've been thinking of the possibility of an endoscopy...it scares me. Haha. I'm such a wuss. I'm not sure ill have the GUTS to do it...

Yeah, I know...cheeeesy.

Ninja Contributor
Ninja
Posted

I'm right there with you

ukdan Rookie
ukdan
Posted
  • Author

I definitely understand what you mean youwillrise about control which is probably why I'm hoping for celiac/gluten sensitivity rather than anything else!

I had my blood test earlier in the week, my doc has been very understanding and arranged all the tests around the same time to limit the inconvenience so in theory I'll get all my answers in one go. Will let you know what happens!

tennisman Contributor
tennisman
Posted

I think it's wrong to hope you have Coeliac disease because it really is a horrible disease but I can understand why you want it so you can find out what's wrong and get better :) Good luck !

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I understand wanting the Dx. It lets you put a name to your health issues..and gives you a treatment plan. Much better to know and control it, rather than go through years of ill health, lots of useless tests, and the opinions that you are a hypochondriac.

The scope isn't a bad test to have. You don't feel a thing.

Good luck!

ravenwoodglass Mentor
ravenwoodglass
Posted

Good luck with the scope. I hope you get some answers but do keep in mind that false negatives are fairly common so do try the diet strictly after your scope is done. You don't need to wait for the results.

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ukdan Rookie
ukdan
Posted
  • Author

The scopes went fine and the gluten free diet (take 2) has started! The doc said it all looked clear but took biopsies to look at 'just in case' *rolls eyes*.

Will see if they say the same when they actually look at the biopsies properly, although apparently that may not be for another month- the wonders of the NHS!

youwillrise Rookie
youwillrise
Posted

Glad to hear! Here's to you and your health. ; )

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