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Ninja

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Ninja last won the day on April 19 2014

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  • IrishHeart
  • Celiac Mindwarp

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  • Gender
    Female
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    USA

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About Me

I've struggled with "difficult-to-pin-down" type symptoms for awhile: most notably GI "issues", mild vitamin/mineral deficiencies, anxiety/depression, and generally feeling unwell.

I first suspected gluten was the (or a) culprit for my symptoms last summer (2011). I was finally tested (serum) for celiac in October and the results were negative. 

I went off gluten and milk approx. 2/1/12 and for the most part, have felt much better. UPDATED: Oat Sensitive (9/12). Successfully re-introduced milk (2/13). 

Symptom Resolution: (2/13)
- I began growing 6 or so months after going gluten-free at age 18. I began at 5'4 1/2" and now am 5'6" UPDATED (2/14)
- I have been able to stop all allergy medications and steroids.
- GI symptoms: diarrhea, bloating, gas, pain, etc. improved. (Aside from occasional glutenings.)

- The presumed DH/"hive-like" rash (began 3/12) is relatively under control. UPDATED: the rash is well controlled by gluten-free diet. (2/14)
- No weird flu-like "illnesses". 

- Double HLA-DQB1 *0602

 

UPDATED: (5/14)

- Lupus DX (5/14). Starting Plaquenil 300mg. On a hybrid anti-inflammatory diet + gluten-free.  

- Equivocal wheat allergy blood test result (2/12). Planning to retest.

- GI symptoms and GERD still mostly gone, though still trying to work out some kinks.

- No random rash flares.

- "Environmental" allergy symptoms drastically improved.

- Everything else still mostly the same as above.

 

  1. Ninja, I sent you an email through here. I hope you got it. 

    Thanks.

  2. Hi all, I'm adding more pictures now that my rash has developed some consistency. I get it on my upper back/shoulders, buttocks (not amused ), stomach, jaw line and hairline. Some more recent-ish photos - the rash hasn't changed much - varies in severity (these pics are medium severity). Still not dx'd but Celiac is suspected (I think?). - I always...
  3. My cycle changed a few months after I went gluten-free; it got worse before it got better. Now, at almost a year, my period is so much easier to handle. It could be that your body is adjusting because you are beginning to absorb more nutrients?
  4. I like your new pic!

  5. I used to get those all the time...but mostly on my arms. The ones on my abdomen used to be right around my belly button
  6. Hi, I saw that you visited my profile. I read your post today where you were frustrated and confused. I hope that things get better for you.

  7. I've had issues with the Pamela's flours, too! I've only eaten the bread flour and pancake mix both of which bothered me. (the pancake mix does not have sorghum but it does have buttermilk and milk is definitely an issue for me).
  8. I think our doctors have gone too far with the gut–head connection...
  9. And that's BEFORE they walk in and ask, "So how are you?"
  10. My brother was very colicky as a baby, so much so that my mother decided to take him to the doctor. The doctor's advice? Don't bring him on your good carpets.
  11. Thank you for posting this
  12. I am happy I could help in any way. You're doing a great job learning the ropes and being proactive about your health. You should be very proud of yourself!! IH

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