Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official . . .

MistyRG

Recommended Posts

MistyRG Apprentice
MistyRG
Posted

I got the results back from my endoscopy, and I do have celiac. I am relieved that I wasn't crazy!! I am VERY thankful to have a great team of doctors that listened to me and ran the tests I requested without question!! I am extremely lucky that my diagnosis took only 2 months from rash to positive diagnosis (though rash is negative for DH! Go figure!!).

So I am officially here . . . and it really hasn't been as difficult as I thought it would be!!! :)

Oh . . . and I wake up feeling RESTED for the first time in years!!! I used to blame it on my kids . . . guess it was just the gluten!!! :)

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

Welcome to the healthier part of the rest of your life ! B)

2 months....... may be the land speed record, or for Guinness Book of World Records.

Link to comment
Share on other sites
mamaupupup Contributor
mamaupupup
Posted

Yes! That's a record! And congrats! I love your attitude! We've gone from "blame it on the kids" to "blame it on the gluten" here as well! Thinking of you!

Link to comment
Share on other sites
beachbirdie Contributor
beachbirdie
Posted

I got the results back from my endoscopy, and I do have celiac. I am relieved that I wasn't crazy!! I am VERY thankful to have a great team of doctors that listened to me and ran the tests I requested without question!! I am extremely lucky that my diagnosis took only 2 months from rash to positive diagnosis (though rash is negative for DH! Go figure!!).

So I am officially here . . . and it really hasn't been as difficult as I thought it would be!!! :)

Oh . . . and I wake up feeling RESTED for the first time in years!!! I used to blame it on my kids . . . guess it was just the gluten!!! :)

I'm so glad for you, that you had doctors who were so responsive! As for the rash, maybe they didn't do the biopsy correctly...I hear they often biopsy the inflamed tissue rather than the tissue near it, and that invalidates the testing.

Anyway, glad to hear you are having such a quick response to the diet! Woo-hoo!

Link to comment
Share on other sites
alwaysafter8 Newbie
alwaysafter8
Posted

Funny how a diagnosis of such a 'bad' condition can be so relieving, if even just to know we're not 'crazy'! You're lucky to be diagnosed so quickly & good on your detective skills for demanding the tests! Sometimes it really feels like we know more than the doctors do, doesn't it! :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,195
    • Most Online (within 30 mins)
      7,748
    JoeBubba42
    Newest Member
    JoeBubba42
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      24 year old son newly diagnosed with Celiac

      By trents · Posted

      One small study I read recently found that half of the celiacs in the study experienced small bowel villous inflammation from CMP (Cow's Milk Protein). 
    • trents
      24 year old son newly diagnosed with Celiac

      By trents · Posted

      What is BROW?
    • Chloe Senora
      Can celiac suddenly 'occur'?

      By Chloe Senora · Posted

      It’s interesting that you say this. I’ve been constipated all my life, fatigued since I got my first period, severely anemic for 2 and a half years, low vitamin D. But it wasn’t until after I got food poisoning a couple weeks ago, that I have not had a normal bowel movement since. And my drs told me to eat a lot of gluten because they want to test me for celiac, primarily because of the anemia and chronically low ferritin. Ferritin is supposed to be 14 but ideally 50-146. 2 and a half years ago it was 3.7, then 7.3, then 10.3, but now it’s 5. And a year ago I got on birth control so I don’t even get a period anymore. Almost all of my current health issues (much more than just celiac) either started or became a lot worse after I got Covid 2 years ago. If anyone has any tips for me it’d be greatly appreciated. Waiting on my blood test results, should get them in a day or 2. 
    • SusanB123
      24 year old son newly diagnosed with Celiac

      By SusanB123 · Posted

      Thank you! He is avoiding all of the BROW recommended gluten culprits. He does still eat dairy and he knows about FodMap foods that have proteins hard to digest! Thanks for all the great advice! I appreciate all the comments. 
    • Raquel2021
      Gluten free spices in Canada

      By Raquel2021 · Posted

      Any suggestions from other celiacs for spices in Canada? I am super sensitive. Thank you 
×
×
  • Create New...