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Not Sure If This Is A Symptom Of Celiac Disease Or Diabetes

The Fluffy Assassin

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The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted

nor quite how to describe it. Before I quit gluten, I often and increasingly had the sensation that my entire circulatory system was a big bruise. Everything hurt, but very slightly. It was ultra-odd. Does this make sense? Unfortunately, that sensation is now back. What I suspect is that I was on the verge of full-blown diabetes, and that the weight-loss and increased exercise after quitting gluten caused it to recede, but that now my genes have caught up to me. (My dad and one of my brothers are both sufferers.) Alternately, it might be a celiac-related symptom and I may have gotten some contaminated millet. (I ate millet couscous for each of the last five days and felt odder every day.) Has anyone experienced or even heard of such a symptom? Any suggestions on how better to word it? Thanks in advance.

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mimommy Contributor
mimommy
Posted
What I suspect is that I was on the verge of full-blown diabetes, and that the weight-loss and increased exercise after quitting gluten caused it to recede, but that now my genes have caught up to me. (My dad and one of my brothers are both sufferers.)

What type of diabetes do your father and brother have? Diabetes and celiac can be connected, so you should be checked for both. Type I diabetics should be tested for Celiac. If you are Celiac your other family members may be, too. You are definitely taking a proactive approach, and I wish I could offer more insight into your symptom.

P.S. Your cat looks just like my husband's cat when he was growing up. Persian?

sarahk47 Newbie
sarahk47
Posted
Before I quit gluten, I often and increasingly had the sensation that my entire circulatory system was a big bruise. Everything hurt, but very slightly.

I had the same symptom before I went gluten-free the first time, and the symptom went away completely when I went gluten-free. I did a gluten challenge after that (not recommended!), and when I went gluten-free the 2nd (and final) time, that symptom lingered. It turned out that during my gluten challenge I had also become lactose intolerant, and as soon as I quit dairy the soreness went away again.

I hope you're able to figure it out!

The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
  • Author
What type of diabetes do your father and brother have? ...

P.S. Your cat looks just like my husband's cat when he was growing up. Persian?

Both are adult onset, which apparently is Type 2. I believe that my late mom was celiac, and her brother died of intestinal cancer, so I'd call it a good chance that he was, too. I've told the diabetic brother that he's probably celiac and should be tested or at least try giving up gluten, but he's shown little interest so far. I'm going to offer to cook for him; I have a feeling he'll be surprised how good gluten free cooking can be; everybody else has been.

Amelia the monkey cat is officially a domestic longhair, though I like to claim that she's a Norwegian Forest Cat. The likeliest is that she's largely NFC or Maine Coon, with maybe a little Persian in there, too. Where she picked up the Nothing But Trouble gene, I don't know.

The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
  • Author
I had the same symptom before I went gluten-free the first time, and the symptom went away completely when I went gluten-free. I did a gluten challenge after that (not recommended!), and when I went gluten-free the 2nd (and final) time, that symptom lingered. It turned out that during my gluten challenge I had also become lactose intolerant, and as soon as I quit dairy the soreness went away again.

I hope you're able to figure it out!

Yeah, I'd rather be unsure my whole life than go back on gluten again for a gluten challenge. Thanks for the information; it looks like the millet I got from the bulk bin must have been gluten-contaminated. Don't think I'll be getting anything from bulk bins again. As to lactose intolerance, as you can see in my signature, I got here from the opposite direction, realizing I was celiac after confronting lactose intolerance. After a year and a half gluten free, I'm not lactose intolerant anymore. Do you think it might be casein? Lactaid takes care of all the symptoms of lactose intolerance that I know of.

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

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