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Ivana

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Everything posted by Ivana

  1. Ivana
    Hi, I feel silly replying because I am sure your doctor thought of everything by now, but still: I suppose you checked your ferritin levels, not just Fe and hemoglobin? Also, maybe it is time to change your AD? Maybe they stopped working, or started having new/different side effects. I hope you find the cause and feel better soon!
  2. Ivana
    I agree with you, Kate. I think it might be underestimated what a blow it is for our psyche to be diagnosed with celiac. I am not saying anxiety is a definitive cause, maybe it is a mix of things. But I too started experiencing neurological symptoms, like 3 days after the diagnosis, when I believe I had celiac for at least a decade (in retrospect). This was...
  3. Ivana
    Yes, in my country too it is worse than ever at the moment. It comforts me to know that it is maybe "normal" to feel like this right now, and that my state might improve when things are more normal again. (We even have limited movement between cities). Oh, I had the biopsy first (poking inside to see if there was a bacteria or something depleting my...
  4. Ivana
    Thank you. I don't want to hijack this thread. I posted here when I was first diagnosed 5 months ago and I found the forum really helpful. However, I have been suffering from extreme anxiety since (I think a combination of diagnosis, covid and other things) so I actually try to stay away from forums that remind me I am sick. I drop by occassionally though...
  5. Ivana
    No need for "good lord". People are scared as it is. What should I say then, I had over 900 (positive is above 10 according to the lab standards.) I will re take the test next month to see how I am doing. But here where I live, I met people who had like 2000 and dropped to 50 within 6 months. So I am hopeful....
  6. Ivana
    Hello, I experienced somethng similar prior to my diagnosis, a stitch kind of feeling, sometimes left sometimes right below the ribcage. However, whenever I was distracted it went away, so I think now it was stress related. I was experiencing a lot of stress then. I also developed a mild gastritis-burning in my stomach, occassionally and also not really...
  7. Ivana
    It was nice to see this amidst all the disease-y content. Thank you!
  8. Ivana
    I have been diagnosed 2 months ago and have already had 2 such dreams. In one, I was at a friend's house where I accidentally ate a plain cookie, and in another I was at my high-school class reunion where even though I refused to eat any food, somehow I still found myself eating something. For me it is also the lifelong aspect of it, and the anxiety of always...
  9. Ivana
    Hello, I need some encouragement. Did anyone here recover after Marsh 3C damage? Damage was visible already during endoscopy and prior to biopsy which confirmed celiac disease. ("Bulbus looks fine but segments D2 and D3 look scallopped" is what the gastro wrote, and I don't know if the other parts are fine or he didn't see them at all. Are D1,2,3,4 all...
  10. Ivana
    Thank you everyone, I appreciate all your suggestions and encouragement!
  11. Ivana
    Dear trents, ravenwoodglass and cyclinglady, thank you so much for taking your time to write me a response. Just getting some encouragement and advice made me feel a bit better and I even slept somewhat decent already. Upon research, I am actually starting to think that my anxiety symptoms have to do with thyroid, so I will check it. (Another shock...
  12. Ivana
    Hello, I have been diagosed a month ago and have been reading this forum ever since. I am impressed with the members' knowledge about the disease and their willingess to share it and their experience. I am hoping I could also get some valuable imput myself. My story: I was diagnosed at almost 40. I have always considered myself very healthy, except...
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