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cahill

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Everything posted by cahill

  1. cahill
    update; I have seen my PC and I have decided to start taking the once a week fosamax.
  2. cahill
    Hi , welcome to the forums.
  3. cahill
    Gluten can affect the brain ,,, gluten ataxia I also have neurological symptoms when ingesting soy DH ( Dermatitis Herpetiformis) is a skin rash that only celiacs get. Welcome to the forums
  4. cahill
    My ( very limited ) understanding of this makes me wonder if the damage at T11 and T 12 is from the osteoporosis and the damage from L2 through S1 is from the osteoarthritis,, This is a conversation I will have with my PC .Something tells me it will be a long conversation , The Pain Management Clinic I am going to does acupuncture and I am hoping it is...
  5. cahill
    I have not seen my PC yet ,, I see him the middle of March. My ortho read the report said the disc herniation is mild and not currently needing surgery . and asked if I would go to see a back surgeon about the herniated dics ( for a second opinion) , I said no it would be a waste of time since I will not currently consider surgery . I was sent to the...
  6. cahill
    I am in the US Any doctor can order the test ,,, but chances are a GP is not going to ,nor will they know the correct test to order. TG AB & TPO AB are the testing for thyroid autoantibodies that my endocrinologist did when she diagnosed my hashmotos . Mine were so high it made my ANA come back with a moderate positive .
  7. cahill
    I got a copy of the MRI report in the mail today While the DEXA scan results are not that bad , my MRI report is BAD. I need to decide which of the osteoporosis meds I am willing to take.
  8. cahill
    Most medications use corn/corn starch . To totally eliminate corn is nearly imposable but doable if you are extremely strict .When I eliminated corn I did not eliminate my medications and was lucky enough that I did not have to . Bartfull is correct that soy is one of the big 8 allergens so listed on packaging EXCEPT soy oil . There is a loophole in...
  9. cahill
    I finally got my DEXA scan results AP spine L1-L4 -2.1 dual femur neck left -2.6 dual femur neck right -2.0 dual femur total left -2.0 dual femur total right -1.4 dual femur total mean -1.7 not to bad at all not bad enough to explain the compression fractures,,( I would not think any way ). I see my doc in March I am still waiting...
  10. cahill
    to answer your original question ,, yes you can go from hypo to hyper . I have hashmotos and I bounce around . My endo thinks I may be going into graves ,, always something I would question the xamthum gum
  11. cahill
    My ( limited ) understanding of lichen sclerosus is autoimmune with a possible connection to thyroid disease where as Dermatitis Herpetiformis ( DH) is an autoimmune disease associated with celiac disease . It would be possible to have both lichen sclerosus and dermatitis herpetifomis at the same time And yes it is very possible to have DH ( celics...
  12. cahill
    antibodies can stay active under the skin for up to 2 years after going gluten free , this is why the slightest bit of cross contamination can cause a flair in DH. The trickiest part of getting a diagnosis by skin biopsy is finding a dermatologist that has even a clue about DH. A diagnosis of DH is a diagnosis of Celiacs I would suggest thoroughly...
  13. cahill
    good article , 2 years ago my FRAX was ok( I was not at risk for a fracture ) it will be interesting to see what my FRAX score is now .
  14. cahill
    gilligan, I have been told basically the same thing ,, I honestly dont know what I am going to do . I am considering the daily dose instead of the 6 month shot. If I react to something I would rather it was out of my body in a day or so not 6 months
  15. cahill
    I have Hashimotos .I have been on thryoid meds for about the last 20 + years. I have been on name brand Synthroid since 2002 with no problems .I cannot take the generic ( I bounce around like a rubber ball ) it has to be name brand
  16. cahill
    This is a major concern especially since I need to have the other knee done .My understanding is it is medically necessary to give me the steroids during /after the procedure ( something about an autoimmune sh*t storm as my doc put it ,lol ) I am putting it off as long as I can but it will have to be done at some point in the near future. It is an issue...
  17. cahill
    Cyclinglady you may have been on to something ; After doing some reading and research I have to wonder if the IV steroids that I had during /after my full knee replacement last August may have been enough to throw off the delicate balance I have been maintaining.
  18. cahill
    I am in Northwestern Pa . We have about 18 in on the ground . It is currently snowing, a real heavy wet snow.The temp is suppose to drop into the teens tonight . Not going to be a pleasant morning commute
  19. cahill
    Thank you Gemini I have a lot of reading and research to do before I see my doc. My DEXA scan is next week and I will be very interested in how the score compares to last time . edit to add; I should mention that I have broken many bones in my adult life,,, any fall or bump could produce a broken bone . This leads me to question the " quality...
  20. cahill
    You did not sound flippant ,, you sound like you are trying to help and I appreciate that I am not sure if my diabetes ( controlled ) or my hashimoto's ( receiving treatment ) would play a part or not
  21. cahill
    Thank you Gemini
  22. cahill
    No I have not had a recent endoscopy. I am super sensitive so it still may be an issue but as I said my vitamins and minerals levels are pretty good . I do blame the combination of being undiagnosed (celiacs) for very long time ( probably my entire adult life )and being 33 years post menopausal . I am currently 58 and I was 25 when I had a surgery that...
  23. cahill
    I am not sure of the rules about posting this information so mod's let me know if I need to delete it The following information is from a publication from the National Institute of Arthritis and Musculature and Skin Diseases ( link available on request ) The Link Between Celiac Disease and Osteoporosis Osteoporosis is a complication of untreated...
  24. cahill
    Dog ( a 100 # lab )and cats are all gluten free ,, soy or grain free is harder ( more expensive ) so I am still hoping to move the babies ( 2 kittens ) to grain free once my older cat ( 15) and Dog (13) are gone .
  25. cahill
    Thanks Cyclinglady I do appreciate your input and I agree it is best to stay off the meds as long as possible ,,I have truly fought to stay off the meds but it may be time I am hoping to get some input about meds that work and are tolerated by celiacs
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