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Kit Kellison

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Everything posted by Kit Kellison

  1. Kit Kellison
    More information about "The Most Dangerous Diagnosis"
    Celiac.com 05/30/2020 - Recently, I posted a query to ICORS Listserv’s celiac email group listing the following symptoms of hypochondria as found on the Mayo Clinic website: Excessive fear or anxiety about having a particular d...
  2. Kit Kellison
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  3. Kit Kellison
    More information about "The Psychological Impact of Celiac Disease"
    Celiac.com 05/03/2019 (Originally published 10/08/2010) - Through some intriguing recent studies, we are learning that celiac patients share some worrisome emotional experiences that will impact their quality of life. When I queried...
  4. Kit Kellison
    Ugh! We fight to be respected and taken seriously by servers and food service providers. I can't imagine anyone I have met from any celiac community, IRL or online, who would not have been dressed down by the rest of the group for behaving this way. This sort of thing puts us back decades in our quest to enjoy a safe environment. The last thing celiac...
  5. Kit Kellison
    More information about "Thyroid Disease, Celiac Disease, and You"
    Celiac.com 01/26/2017 - Many people with celiac disease also have thyroid issues. In fact, it's the most common medical issue that celiacs have. However, just as we were often badly under-served by the medical community, as celiac disease...
  6. Kit Kellison
    More information about "Is There a Better Way to Cut Out Gluten?"
    Celiac.com 09/08/2016 - I'm going to discuss a topic that I'm sure will be fraught with controversy. However, as someone who has watched the difficulty that so many new patients have in navigating their diets on gluten-free and celiac...
  7. Kit Kellison
    TTG accuracy isn't good enough, that's why a biopsy may shed more light. I would insist on an EMA blood test. It's important to know that in people with DH, the impact on the bowel may be less than for celiac without DH. Damage may be less easy to find via biopsy. Ask that the # of biopsies taken be at least 6 to increase your odds Also, you could...
  8. Kit Kellison
    Call a dermatologist and ask if they are familiar with dh biopsies. You don't need an endoscopy if you have a dhdiagnosis. Also, why not ask go to a different place for your endoscopy? As long as the doctor has written an order, you can take it a
  9. Kit Kellison
    Perhaps a thyroid check is in order...happens all the time with celiac patients; a large number of people have both. Low thyroid can cause dryness, fatigue, poor digestion. You might want to take a look at your diet and see if you might be eating too much sugar and starch. Check out the paleo diet, maybe, to get rid of residual problems. Worked for me...
  10. Kit Kellison
    I agree with the previous post that a vitamin work up is in order, but I would bet my next hard-won meal that you have a thyroid disorder. It's so common with people who have celiac disease, I wouldn't be surprised that it's implicated in the gluten-intolerant as well. Symptoms of hypothyroidism include fatigue (sometimes to the extreme), weight gain,...
  11. Kit Kellison
  12. Kit Kellison
    Licking a butter knife would be plenty to make me sick for weeks. There's a huge variability among us as to the length of time the inflammation caused by a gluten ingestion will be evident, from days to months. In addition, it can trigger other autoimmune responses that will produce more inflammation that can make you feel generally ill. There are a lot...
  13. Kit Kellison
    If you can't vent here...then where? Yes, yes, count our blessings, so lucky to live in a time we can be diagnosed, have so many good substitute products, etc. etc. But damn! Asking one of us to contribute to a pot-luck where we aren't going to be able to take part does rankle! It's the rare observer who understands that we either attend a food-based gathering...
  14. Kit Kellison
    I have DH (dermatitis herpetiformis) but only get it after ingesting trace amounts of gluten from CC or airborne flour in the grocery store. I never get a rash from someone who has gluten on their fingers or from touching handrails, etc. It's generally considered impossible to have a skin reaction due to celiac disease without ingesting it. I do, however...
  15. Kit Kellison
    I Googled Eye Radiology and could find nothing on it, but I am very interested in the science behind it, if any. I do respect Chinese medicine but I also understand that they have different ideas on, for instance, their responsibility in regard to informed consent. All in all, I think it's wise to be skeptical about anybody trying to sell you services, traditional...
  16. Kit Kellison
    Wow! I'd really like to hear how many kids were harmed or killed as a direct result of traditional medical therapy and pharmacological intervention. My guess is that the number is exponential to the harm done in alternative therapy. Celiac patients, by necessity, have become a very self-informed group. I hope each of us can learn by our numerous bad...
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