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moosemalibu

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Everything posted by moosemalibu

  1. moosemalibu
    So, I am going to address the relationship question. 1) Does your boyfriend treat you poorly since diagnosis? 2) Has he implied or stated that he feels you are a burden since your diagnosis? I went to therapy after I had my diagnosis and I felt terrible about my boyfriend having to adjust to my new lifestyle. I had a lot of guilt over it. My therapist...
  2. moosemalibu
    I also have orthostatic hypotension and I was sedated for my endoscopies (have had 2) and colonoscopy. Certain sedatives/anesthetic drugs decrease blood pressure more than others and some have very transient changes. Discuss the anesthetic protocol concerns with your doctor. They may find a cocktail that is right for you. You're probably not too unique with...
  3. moosemalibu
    Sorry to hear of your woes! Ask your doctor regarding tests for your gall bladder and perhaps discuss possibility of colitis? If they ran the correct Celiac panel and your biopsies look good it may not be Celiac. But 2 biopsies is not a lot but for some reason most doctors don't do a large portion.
  4. moosemalibu
    I just got a zojirushi bread maker as a wedding gift. I made my first loaf today. The flours I used were sorghum, rice bran, brown rice flour, along with corn starch, xanthan gum, yeast, molasses, honey, salt, eggs and water, vegetable oil. I used a recipe from a gluten free bread machine recipe book. I had to play around with the custom settings on the bread...
  5. moosemalibu
    OMG - I don't know why I don't get notifications on comments. To answer your question - I am extremely dietery compliant and my celiac panel ran in April was totally great, all low low low. I make all my own food and I don't eat out in restaurants. Too risky for me. I have been having chronic isues that I have considered an ongoing microscopic colitits flare...
  6. moosemalibu
    I am thinking that the inflammation in the gut alone could probably cause pain that could be interpreted as back pain. I have had back pain for a lot of my life - the only thing that helps is working out my back specifically with weights. My weight lifting and celiac diagnosis kinda coincided around the same time so its possible there was some overlap. Hopefully...
  7. moosemalibu
    Well... yesterday I had my second endoscopy performed. My GI doctor wanted to check up on my small intestine to see how its healing, as well as check my esophagus to rule out eosinophilic esophagitis. He took multiple biopsies and said my SI looked atrophied but otherwise I looked good. The combination of versed and demerol is powerful and I did not remember...
  8. moosemalibu
    Thanks!! I love the idea of chili. We have carnivores and herbivores in our family so I like the idea of having two types. That sounds pretty easy. I will definitely save that idea! Yeah... hard to justify a wedding with costs but we both are family oriented and want our families with us to celebrate. But again, nothing set in stone just yet.
  9. moosemalibu
    So I had a wonderful gift for Christmas: an engagement ring! My beau and I have been going together for a little over 2 years. He has been with me through my diagnoses and has been the absolute wonderful partner and champion through it all. He absolutely insists that we have a gluten free wedding menu so I can eat anything I want. We have been going...
  10. moosemalibu
    I understand how that can go! So sorry to read you got hit. Hope you feel better soon!!
  11. moosemalibu
    The results are not able to be interpreted without a reference range from the lab. Hopefully you can get that information.
  12. moosemalibu
    I always heat them up either in the microwave or on a skillet. The best tortilla that has come close to roll well is La Tortilla Factory. But even then I had tearing once it cooled down while eating.
  13. moosemalibu
    I am a week into my Entocort steroid therapy for microscopic colitis. I can say that I have no discernible side effects from this drug. It has slowed down my bowel significantly. I am no longer running to the bathroom 8-10x/day. I probably go about half that amount now. The quality of the bowel movements has improved but it varies throughout the day. I have...
  14. moosemalibu
    Christmas time is when my grandma makes Mexican food.. homemade flour tortillas... I miss those. Nothing compares to fresh flour tortillas made with gluten. I have found no good substitute that works like a tortilla should. Thankfully I am a tear and scoop tortilla eater so I don't wrap burritos very often.. but the ones I have tried all tear when you try...
  15. moosemalibu
    Do you have lactose intolerance or an allergy type reaction (anaphylaxis, etc)? Either way I would recommend avoiding it if you body doesn't tolerate it well.
  16. moosemalibu
    I second the colitis thought.. I just got diagnosed and my poops were like that frequently (and worse)
  17. moosemalibu
    OMG that snowman was desparate!
  18. moosemalibu
    I started budesonide treatment today. I wrote another blog post if you are curious! ;) Thanks for asking!
  19. moosemalibu
    I believe Stephanie O'Dea has a crock pot gluten free cook book!
  20. moosemalibu
    Thanks!! I am excited for a positive change in health status! :)
  21. moosemalibu
    I saw my GI yesterday. He and I agreed to start me on Entocort EC/Budesonide medication. It is a slow release 3mg capsule that is not dissolved by the stomach pH and instead gets broken down and absorbed in the intestines. It is supposed to have a local effect versus systemic and is considered safer than prednisone. I will be on 9 mg dose once a day for ...
  22. moosemalibu
    Having to eat gluten free.. I reconciled myself with that. It's not that bothersome. The 'I don't know what triggers my colitis' fear.. that is real for me right now. Worrying that the food I eat will cause a colitis flare up even though its Celiac safe. Fear of food is more my issue right now. I cut out gluten, dairy, eggs and I'm thinking tomatoes/nightshades...
  23. moosemalibu

    ARCHIVED Washcloth

    moosemalibu replied to Patt's topic in Super Sensitive People

    Definitely use separate wash clothes for gluten and gluten-free dishes! Cross contamination is common via sponge/towel in shared households if you're not using separate stuff.
  24. moosemalibu
    OMG I was so stressed out and on the edge of my seat, biting my nails reading your story. THen BAM: SUCCESS!! All things are right in this world!! So happy to read your good news!
  25. moosemalibu
    Sounds like a blast was had by all! I am scared of snow.. and ice. I slipped on ice in 2009 and shattered my kneecap. Now I'm paranoid about slipping again.
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