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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Agreed, and I can't remember exactly and haven't got time to check, but I think my blood didn't normalise for eight years! For years I read this forum thinking why can't I get my numbers down - everyone else manages to. But my gastroenterologist didn't seem to worry about it, which makes me think he either thought I wasn't complying to the diet, or he'd...
  2. cristiana
    Hello there @maylynn I'm a slow healer from the UK. I sympathise. Despite three endoscopies which showed nothing wrong, I frequently suffered from a very sore stomach, bloating, feeling queasy. For some time I was taking the wrong iron supplement (Floradix instead of Floravital - the former has gluten in it, but the latter none). But...
  3. cristiana
    Very interesting, @Idnam. When I was experiencing this problem at its worse, I found high carb meals like lots of rice or too many cookies were a trigger.
  4. cristiana
    Really interesting, Kitty, thank you.
  5. cristiana
    Hi @Redlima My anxiety hit before diagnosis, and in fact it was anxiety which led me to see a doctor who put me on the road of various blood tests which revealed iron deficiency, raised globulin levels and borderline B12. At first my GP suspected a type of cancer, and didn't really know what else to make of it until about six months down the road when...
  6. cristiana
    @OlafAndvarafors I just wanted to reassure you that I had these same issues for a while before and after diagnosis but they did settle. I think the deficiencies and anxiety that are very common in undiagnosed/newly diagnosed coeliacs are a perfect mix for twitching! I cannot say exactly how long you will experience this but my feeling that once you are...
  7. cristiana
    @TempCloud How are you doing? I hope you aren't reacting too badly? I would most likely react like Trents. That said, I have read accounts of some coeliacs not showing any symptoms after glutening, after a long break from eating gluten. But should that happen to you, unfortunately it should not be interpreted as the 'green light' to go back...
  8. cristiana
    @Scott Adams has done an amazing job at explaining the situation. Shop at Asda, Morrisons, Tesco's, Sainsbury's, Marks & Spencers and Waitrose which have great gluten free sections and you won't go hungry. Even small Co-op corner shops tend to have a dedicated gluten free area. I haven't had much luck with the German store, LIdl. Can't speak for Aldi...
  9. cristiana
    I agree with Trents. And if you already have other health issues, it is just one other thing to have to think about. But on the matter of other health issues, depending on what they are, you may find that coming off gluten might help, which could be an unexpected bonus.
  10. cristiana
    @LeeRoy83 Hello again. Picking up on something else you said re: the shock that you may be a coeliac. It may has come as a shock to learn that coeliac disease is a possibility, but if that is the case, although it can be at times a bit of a nuisance not to be able to eat gluten anymore, it has been my experience that most of my friends...
  11. cristiana
    Okay, that's useful. Yes, it sounds like you are out of range, which is suggestive of coeliac disease. Your next step must be to see your GP and see what they suggest but for the time being, keep on eating gluten as s/he may want to order an endoscopy which is the next stage in the diagnosis journey. If you have any questions meanwhile, do come back to...
  12. cristiana
    Hi @LeeRoy83 and welcome to the Forum I'm a coeliac based in the UK, it is always nice to meet another on the forum, although I'm sorry for your recent troubles. It sounds as if they have not provided the normal lab ranges with your results. Is there any chance you can double check with your GP's surgery, or alternatively, if the tests were done...
  13. cristiana
    I think it takes different people different amounts of time, but in my own case I had pain, bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went. I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks...
  14. cristiana
    A pleasure. It could just be the oats (even pure ones can cause problems for some coeliacs, as I mentioned) but don't be discouraged if that is the issue, as for most of us that passes. Very odd, really, as before going on a gluten free diet, they had no effect on me at all!
  15. cristiana
    Hi @Farralley and welcome to the form I have had soreness, ulcers and also find my tongue and inside my mouth is very sensitive and blisters easily (blood blisters) if I bite something sharp. Ulcers were a big issue twice before I was diagnosed, the doctors didn't put two and two together and think of coeliac disease, but I had two episodes where I...
  16. cristiana
    Hi @CarolTN I haven't been diagnosed with seborrheic dermatitis but as @Scott Adams says, like a lot of coeliacs I do suffer from itchy skin, and now adult onset eczema. The latter started during one of the lockdowns. I find my skin is often itchy if the temperature changes from hot to cold or cold to hot, that seems to set it off. This time of...
  17. cristiana
    Interesting idea @cam6!
  18. cristiana
    I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
  19. cristiana
    This is a very good comment. I found all sorts of things difficult to stomach for about 2 years after my diagnosis , that I was able to eat again after a while. Eventually there was one thing that I still couldn't eat and that was pure oats (i.e. those certified uncontaminated with gluten, the only oats we coeliacs should be eating). I think it took...
  20. cristiana
    Funny you should mention this. Three times in the past I've had a similar reaction to glutening when I eat broccoli. People have suggested I try it again to make sure it is the problem but I have three distinct memories of meals containing broccoli which caused chills, feeling sick and diarrhea within an hour or two of eating (and this was before I was diagnosed...
  21. cristiana
    Hi @Michael McDonald and welcome to the forum. Everyone's experience varies, and I think what you are experiencing is normal, having read a lot of different accounts over the years. Of course, there is always just a slight chance that gluten might still be getting in somewhere, or that your symptoms might also be down to a gastric virus or food poisoning...
  22. cristiana
    Hi Violet That's great that he is consuming gluten. When I was tested a few years ago we were told to to include "gluten in more than one meal a day for at least six weeks before testing." @Scott Adams or another Mod might update this, as I believe the thinking is changing on this. Re: Coeliac screening. Yes, the fact that your boyfriend was...
  23. cristiana
    Hello Violet The fact that you are posting from Italy is good - we coeliacs on this forum hear a lot of good stories about Italy being ahead of the game, testing all children at 6 years of age, I seem to recall? Also, Italian doctors should be aware of the work of Dr Alessio Fasano, and his work on gluten and coeliac disease, including neurological...
  24. cristiana
    Hello @VioletM and welcome to the forum. I am sorry to hear of your boyfriend's problems, but I am so glad he has someone helping him look into things. When I was diagnosed and I had a few albeit mild neurological issues (migraines, hallucinations, tingling and buzzing in my extremities and mild facial twitching) and some started long before I had...
  25. cristiana
    Hi Sammy I was going out for a meeting when I wrote my last post, and wanted to add something to your second comment, but didn't want to rush the post in case it came out wrong. The push for a diagnosis tends to be because it is worth finding out for sure if one has coeliac disease or not if one has been experiencing gastric symptoms. Coeliacs...
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