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cristiana

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Everything posted by cristiana

  1. cristiana
    @Scott Adams Strange question but can you actually feel your hernia? I have so many abdominal lumps and bumps of longstanding (my GP said it's fat!) that I sometimes wonder if an inguinal hernia could be missed. I am quite sure some of my pain is from my umbilical hernia but that first came about courtesy of my second pregnancy.
  2. cristiana
    Hi @tiffanygosci Well done for reaching out, fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier. I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be,...
  3. cristiana
    You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy. Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter...
  4. cristiana
    Forgot to add... Quite a lot of 'tapas' are gluten free. Ones to look for: Tortilla de patata (a thick omelette made with potatoes and onions) should be 'sin gluten', and chorizo cooked in red wine makes a nice dish. Look out for sobrasada, which is very Mallorcan, a softer type of sausage/pate which you can spread on gluten free crispbread which...
  5. cristiana
    Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about. I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type. There seems...
  6. cristiana
    Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety. I had awful anxiety at diagnosis, and that feeling of doom that you describe. My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me. I then got a phobia...
  7. cristiana
    @trents - THANK YOU, that is a really helpful and interesting post. I have had fairly extreme symptoms. Being a veteran hypochondriac I've been imagining all sorts and what you say makes me think I've probably been up to my usual catastrophizing! That said, I foresee another colonoscopy appointment if things don't settle down soon., and if I have...
  8. cristiana
    Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc. After a week or so I felt awful bubbling and bloating in the area which I would say is the...
  9. cristiana
    Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
  10. cristiana
    Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
  11. cristiana
    Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
  12. cristiana
    It could well be a new intolerance developing. Does your diet incorporate pure oats i.e. those safe for coeliac consumption? I find I can only tolerate a certain amount, same goes for dairy in fact, then I start to get gastric symptoms. Or have you started consuming a new type of gluten-free bread, or more gluten-free bread than normal, that might contain...
  13. cristiana
    I agree with @trents, could be worth having another scope. Oddly enough I'm in the same boat except my current odd sensation is near my appendix, I think I'll request a colonoscopy for peace of mind.
  14. cristiana
    Have you mentioned it to your gastroenterologist?
  15. cristiana
    Hello @pilber309 and welcome to the forum. (Nice to meet an almost-twin, I have nearly reached 14 years post diagnosis, too!) I suffer from burning pain in an area which you might be describing: if you were looking at me, south of my ribs, between the sternum and belly button. Is that the area you are talking about? I get this pain when I am...
  16. cristiana
    I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
  17. cristiana
    More great tips, and a good excuse to shop at M&S and also buy more iced buns! I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops. Thanks so much, @Russ H.
  18. cristiana
    Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area. I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who had real pain when she turned her torso in a certain...
  19. cristiana
    It's strange because I'm pretty sure not too long ago I picked up a loaf of bread with B vitamins, but I can't find a single one now. Probably cutbacks, everyone's trying to save money now!
  20. cristiana
    Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
  21. cristiana
    Not much use to Canadians but if any British Lindt lovers are looking at this, give Marks & Spencer's Swiss Truffles a try - no barley but same taste. I'm pretty sure that in a blind tasting a coeliac would not know the difference - but then again, if you want to put this to the test, get a non-Coeliac to try this! I don't want anyone here to get glutened...
  22. cristiana
    I'm based in the UK and haven't tried that bread but in the past have got on quite well with Genius. Mostly I tend to eat bread with added seeds just because I find it more interesting. It is good to speak to another UK coeliac though as I am absolutely sure that up until recently a lot of the bread I was eating had added vitamins - but when I...
  23. cristiana
    Hi @Scatterbrain Thank you for your reply. Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct. Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two...
  24. cristiana
    Hello @Scatterbrain and welcome to the forum I am sorry to hear you have had a return of your symptoms. My first thoughts were that stress can cause IBS-like symptoms - a friend of mine has been suffering a huge amount of stress and when that happens she gets diarrhea. But you say that you haven't got any bad abdominal issues, so perhaps you...
  25. cristiana
    When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this. I am not a medical person but it seemed like the extra pressure...
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