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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cristiana
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Hi @MTAC Welcome to the forum. I am so sorry to read about your situation. I'm a UK coeliac so I thought I'd add this to Trent's and Scott's excellent posts. Here the UK my TTG test results frequently lag behind my other annual lab results. I think the longest it took was a couple of weeks, but from memory on this forum I've read at least one...
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Neurologic symptoms - Muscle Twitching and Hand Tremors
cristiana replied to Sunshine4's topic in Related Issues & Disorders
I'd like to second supplementation. Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness. We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and... -
Hello @Cathijean90 Firstly, welcome to the forum, you have come to the right place! I know this is much easier to say than to do, but try not to worry. Whilst it is awful on so many levels that you have only just found out that Coeliac Disease is the issue behind all your problems, when you could have known 15 years ago, as Trents has said, it...
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Hello @Heather Hill You are most welcome. As a longstanding member and now mod of the forum, I am ashamed to say I find numbers and figures very confusing, so I rarely stray into the realms of explaining markers. (I've self-diagnosed myself with dyscalculia!) So I will leave that to @Scott Adams or another person. However as a British person myself...
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Hi @Heather Hill Welcome to the forum. What I do find is that legumes seem to exacerbate both stomach ache, bloating and backache symptoms such as lentils, beans etc, whilst the gluten containing grains do not obviously seem to. I definitely found lentils and other legumes caused me similar symptoms to you in the early days adopting a gluten...
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Celiac or not?
cristiana replied to Dc91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for the update. So interesting to know how things are changing, when I was diagnosed I had very similar blood results but still had to have the endoscopy. Glad you know where you stand. As your father has celiac disease you probably already know a lot about it, but do contact us if we can help further. -
Celiac or not?
cristiana replied to Dc91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Dc91 Excellent advice there from Trents. He is right, not eating gluten now could generate a negative result if you do end up having an endoscopy especially as NHS waiting lists can be quite long. I'd definitely double check with the doc. Cristiana -
Celiac or not?
cristiana replied to Dc91's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Dc91 and welcome to the forum! Could you first just add the lab ranges for us for your TTG IgA Antibodies as they vary? Cristiana -
Why Bananas No Longer Cure Celiac Disease
cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
I missed this article when it was first put up. It is interesting to read, as my old neighbour who sadly passed away a few years ago was a trainee midwife during WWII. Bananas disappeared from the shops in Britain during the war, but she told me that those that did get to the UK were kept back for infants with coeliac disease. I didn't realise that... -
Celiac pain relief
cristiana replied to Karmmacalling's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell. Can you tell us exactly what sort of pain you are experiencing and where the pain is? Is it your lower abdomen, upper abdomen etc? Do you have any other symptoms? Cristiana -
I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free. Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention...
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Top Brands of Gluten-Free Pasta
cristiana commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
I find all gluten-free pasta breaks much more easily than the normal stuff.- 8 comments
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You are most welcome, Marie. Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many. And as I say, in the long run, I am sure your daughter will be sorry for what she said. I remember having a go at my dear Mum when I was in my twenties about something...
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Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this. I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them. Sometimes people just need a safe place to vent, and unfortunately...
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Getting rid of the belly bloat
cristiana replied to Karen Chakerian's topic in Related Issues & Disorders
Karen, welcome to the forum. Another thing to add: Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition. In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and... -
Reaction to gluten or gastro bug?
cristiana replied to Beck1430's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi @Beck1430 You are very welcome. I am looking at your spelling of coeliac disease and see you spell it the English way. If you are British, like me, perhaps you could update us if you are successful in getting genetic testing. It seems more commonplace in the US. I have been a diagnosed coeliac since 2013 I have not yet met anyone with coeliac... -
Reaction to gluten or gastro bug?
cristiana replied to Beck1430's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello @Beck1430 and welcome to the Forum. I am sorry your little boy is going through this. Your question is an interesting one. I would say the majority of posts I have read since joining this forum speak of a fairly quick reaction, and that has been my own experience. The only major gluten hit I've had in more recent times resulted in chills... -
So true, @trents, I was a skeptic myself!
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@sillyyak52 Welcome to the forum! I'm just about to go away for a couple of days but read this and just had to reply. I am so sorry for what you are going through... it is really tough. Perhaps finding a short video online which explains the seriousness of celiac disease might help. Just sit your family down and say, "Please just watch this...
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Being a burden to family/friends
cristiana replied to DayaInTheSun's topic in Coping with Celiac Disease
Looked this up. Yes, forgiveness and bearing with people is people is vital. -
Being a burden to family/friends
cristiana replied to DayaInTheSun's topic in Coping with Celiac Disease
I must admit I've been on both sides. Before my diagnosis, and in my ignorance, I thought all the special diets we see around us today were unnecessary and people were making a big fuss over nothing. There is a shop in the small town where I live that sells organic and gluten free food and I used to see people walking in and buying things and thought they... -
Dealing with gas an stomach pain.
cristiana replied to Carol1066's topic in Related Issues & Disorders
HI @Kwinkle I am not sure where you are posting from, but here in the UK it is most definitely gluten free. I think you ought to try contacting the manufacturers or distributors locally to see what they say. Cristiana https://www.boots.com/gaviscon-peppermint-liquid-relief-oral-suspension-300ml-10023763#:~:text=or during pregnancy.-,This... -
I also have experienced this from time to time. It seems to tie in with episodes of IBS, eating too much fibre but also because I have issues with my pudendal nerve - perhaps some sort of inflammation. Not fun at all when it strikes.
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The first symptoms I had of coeliac disease were migraines. I think your doctor needs to test you for coeliac disease. The fact you are having migraines at night is interesting, but I never used to drink enough and my headaches were worse when I woke up in the morning. Dehydration was also a big cause for me.
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Being a burden to family/friends
cristiana replied to DayaInTheSun's topic in Coping with Celiac Disease
Hi @DayaInTheSun Welcome to the forum! I've been a Mod on this forum for some years now and your feelings are shared by many of us. I am not sure how long you have been diagnosed, but in my own case I do find that time has helped. It was pretty exhausting at first trying to explain to friends but they now have a pretty good grasp of coeliac...