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cristiana

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Everything posted by cristiana

  1. cristiana
    @matts Sorry - I didn't register the type of test. In the UK they routinely also do the tTG test too, so I wouldn't be surprised if it hasn't come back yet. For some reason, the tTg test can take quite a long time to come back from the lab ... maybe more than a week. I recall my total IgA wasn't convincing, but my tTG levels were through the roof...
  2. cristiana
    Hi @matts Yes.... it's a mystery to me why we are holding onto that 'o'. I expect it won't be there in 100 years! I think you are very wise to go back to your GP to chat through your options. If you would like to know one way or another, he or she may be happy for you to see a gastroenterologist through the NHS. If not, and you would...
  3. cristiana
    Hi @matts Welcome to the forum. I'm a coeliac living in the UK. I have a hunch you may be posting from the UK because of the way you spell 'coeliac.' Our American friends, quite sensibly in my opinion, drop the 'o'! Anyway, if so the UK, 'satisfactory' blood tests mean as follow: 'Satisfactory. Take no action - This means that the doctor...
  4. cristiana
    @trents @Vickey Matteson Trents makes a very interesting point. I did not have gastric symptoms initially but about six months before my diagnosis I had very odd liver function test results, iron deficiency and anxiety. I developed gastric symptoms just prior to my diagnosis - I honestly think that if I hadn't, my doctors would still be wondering what...
  5. cristiana
    Good point, they should never have cut this from the syllabus.
  6. cristiana
    Hi @Sarah Grace I'm a British coeliac too, and have had quite a number of different types of migraine. ***Are you under a gastroenterologist and receiving annual coeliac blood tests to test for compliance, and perhaps also for deficiencies? If not, I think that is worth considering. If gluten is still sneaking into your diet that could be the...
  7. cristiana
    @CeeBee1807 This is the webpage you need to look at, I imagine the reading material is building up! However, I think NHS have some useful info on diagnosis in eh UK on their site. https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/ I just wanted to add that I too had odd liver function tests. Raised globulins...
  8. cristiana
    @CeeBee1807 Forgive the brevity of this post CeeBee as I cannot write a lengthier reply just now, but I have just read your post and wanted to say I think you are onto something. Do mention to your GP that you already have a relative with coeliac disease. Do also take a look at the Coeliac UK website before you see the doctor, they have a...
  9. cristiana
    @Pgomez300 In answer to your separate question, no images or any other tests were done.
  10. cristiana
    Hello @Pgomez300 and welcome to the forum! Firstly, I ought to say I am not medically qualified. However, I remember asking my GP about lumps in my abdomen. They were very noticeable when I lost a lot of weight when I was first ill with coeliac disease. She laughed and said, "It's fat!" Oddly enough a friend of mine has just found a very large...
  11. cristiana
    I recall some statistic I heard some years back, that in powdered chocolate milk there were something like 25 different stages in the production process taking into account all the ingredients. I can see that if this is true, the more stages there are the more chances there are for cross-contamination. Eating whole foods helps minimise or totally eliminate...
  12. cristiana
    Hi @Schellee94, it is good to know that you have found this a helpful thread. Do let us know how you get on! Cristiana
  13. cristiana
    @hilly Sorry as this is a blind post as I have a lot to do today and haven't read the entire thread. But I had bad bloating for a while, and at my gastroenterologist's suggestion after a three week trial of going entirely dairy free I found relief. I reintroduced dairy gradually and am pretty much OK with it now. I also found heavy iron...
  14. cristiana
    Thanks for drawing our attention to this, Scott. I have no idea about this in the UK, I think I need to do some more homework!
  15. cristiana
    Just to add something here... if any people in the UK are reading this, there can be definite advantages if you are formally diagnosed coeliac, in terms of getting extra support from the NHS. For free you get to see a nutritionist, additional vaccinations if deemed necessary, in some areas prescriptions for gluten free food; bone density scans, annual blood...
  16. cristiana
    The reflux according to the hospital can be the culprit. I think sometimes, too, the medication that they gave me to stop it caused bloating which again added to the pain in the back and chest. I hope you get some answers soon, let us know how the results go.
  17. cristiana
    I've had to be checked out twice by cardiology at what we call in the UK 'Accident and Emergency' with chest pains the conclusion was reflux and costochondritis. Both are very bad when I've been glutened. I've also had very bad bloating in my upper back when taking iron. I'm glad you are being looked after by a cardiologist, though, as best to be safe...
  18. cristiana
    Agreed, @Scott Adams.
  19. cristiana
    Hi @Ginger38 Well done on your challenge... nearly there. I noticed odd shaking in my voice - I recall my voice sounded shaky - it was really weird. Feeling off balance is something that people have posted about a lot to do with gluten exposure. Ditto forgetfulness and struggling to find words. Gluten assaults the system in many, many ways. ...
  20. cristiana
    I think it's a gluten trial?
  21. cristiana
    Hello again @kate g I wonder if you are posting from the UK? We get a lot of people from the UK posting on this forum because I don't think Coeliac UK have their own. (It is an excellent organisation, by the way, and well worth joining for its gluten-free shopping guide/app.) I ask as in my own case, the only NHS tests I was offered for deficiencies...
  22. cristiana
    Hello @kate g I am so sorry your daughter is going through all this. Although she should soon start to feel better, it can take a while for symptoms to improve. Personally, I would say the swallowing could well be anxiety related, I know several people who have had this when anxious. Might be worth looking up 'globus'. Also, could it be that...
  23. cristiana
    Hi @jayjays Reading your post something really struck me: you mention night terrors/hallucinations. I know how scary this can be. Before I go any further, I must tell you that I am not a doctor or qualified to give medical advice, but I would like to share my own experience in case it helps. I suffered with hallucinations for about ten years...
  24. cristiana
    Hi @bluegrass2024 I am so sorry you are having continuing symptoms. Whilst not in the USA, so I cannot comment on the products you list, I wanted you to see this content I posted the other day to someone else on the forum in case it helped. Forgive the re-post but I've not got to go to work shortly. Cristiana *** Eating out This...
  25. cristiana
    Thanks so much, @Eldene, and that sounds an interesting drink to try. Some people also say to try HRT but my family has quite a high incidence of breast cancer so I'd rather try to deal with this naturally.
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