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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Amanda I had a friend whose father was a coeliac and he was the sort of man who would be very thorough and ring manufacturers if he was in any doubt about a product containing gluten. He made a point of buying Tesco's yeast extract. I've used it myself more recently as I missed Marmite which I do know can contain traces of gluten, and I haven't...
  2. cristiana
    I would try the rolled towel pillow, to put under your neck. It has helped me enormously, including addressing facial pain. I use a hand towel and put it under my neck at night when I am having issues. This is how to make one. Worth reading up about how to use it.
  3. cristiana
    @Blue Roan Hi Blue, sorry as this is going to have to be a bit of a rushed not properly edited post as I'm going on a trip for a few days but will try to check back on replies, if there are any, when I can. I have felt like you do (and still sometimes do) with arms and legs not being mine. It wa particularly bad following a neck injury (picking up...
  4. cristiana
    I've not baked bread for many years, but I had a look at a few websites and found this on Quora, as someone posted their bread had this problem. I really don't know if it will help, but it might help. https://www.quora.com/If-my-whole-wheat-bread-smells-like-alcohol-does-it-mean-that-I-undercooked-the-bread#:~:text=What makes yeast bread taste...
  5. cristiana
    I never eat pasta or pizza out, in a busy restaurant it's too easy to be served the wrong portion, as I've found to my cost.
  6. cristiana
    I'm so sorry you had this experience @GardeningForHealth. I've had this happen to me. Responding so violently to gluten as that (I'm the same) puts you off eating out. When we go on holiday this year I've decided I just can't risk being that ill so will be on a permanent gluten-free picnic, buying things which are certified gluten-free in stores and...
  7. cristiana
    Just to say I am the same as trents, and another friend of mine, too, diagnosed roughly at the same time as me. In the old days we felt unwell, now our reactions are very much worse if we are glutened.
  8. cristiana
    Another suggestion, from my mother-in-law, who lives in Italy. A tablespoon of blackcurrant jam with each meal. Make sure you are drinking enough, and moving enough too.
  9. cristiana
    @seameruok Any bowel movement changes that last more than a few weeks ought to be run past your GP. Although it could well be coeliac disease behind the issue, best to be sure. In women, it is worth remembering that there are certain gynecological issues that can cause constipation, too.
  10. cristiana
    Hello @Jessica Hoffman and welcome to the forum It is possible you are suffering from vitamin and mineral deficiencies - were any levels checked? If so, I wonder what your Iron and B12 levels are like, as being deficient in either could make you very tired. Of course, two other reasons for fatigue are Thyroid issues and also diabetes. Have you had...
  11. cristiana
    @Chris butcher As you are feeling so unwell, it might be worth requesting a cancellation appointment from your hospital. Perhaps worth ringing the hospital concerned and to speak to the booking team, to ask them to please contact you if anything comes through? Do you know how much longer you have to wait? But that aside, I think because you...
  12. cristiana
    @Chris butcher Having seen a lot of posts on this forum over the years, it is a very common worry. When one is feeling so unwell, it is not surprising one is thinking , "Can this just be coeliac disease?" I certainly thought that. But you know what, it could just be that, and if you have had it some time, it might take you a while to heal. However...
  13. cristiana
    I wonder if it is the same product in the States because, according to my gastroenterologist here in the UK and the NHS website, Gaviscon does help stop acid going up the throat. https://www.nhs.uk/medicines/gaviscon/#:~:text=About Gaviscon,-Gaviscon can be&text=The medicine works by forming,and reduces pain and discomfort. "Common...
  14. cristiana
    Hi @Chris butcher @trents is right, you probably are having pain in your oesophagus. Although I am on a strict gluten free diet, yes, I do get bouts of it from time to time. Mine appears to be related to reflux and/or gastritis. When it gets bad I try to go back to a very simple diet, eating food like white fish or really well cooked chicken...
  15. cristiana
    Hi Chris I am so sorry to hear you are in pain. For clarity, are you saying that you can eat gluten containing food without it upsetting you, but gluten free food causes you pain? Cristiana
  16. cristiana
    @trents Quite right. That is definitely worth noting. I am not sure if my local lab is still operating the old >100 cut off system, but for anyone whose antibodies creep over that level knowing the real number would be very helpful. To do one's best to keep to a strict gluten-free diet and still to find that after a few years my numbers stood...
  17. cristiana
    When I was diagnosed in the UK back in 2013, the lab cut off for TTG levels was an upper limit of 100, with normal levels being <15. My lab report simply read >100. I believe my numbers must have been sky-high at diagnosis because they took about eight years to normalise. I expect under the new National Institute for Health and Care Excellence...
  18. cristiana
    Hello Bran and welcome to the forum. The strange thing about coeliac disease is that people react to glutening in so many different ways. Some people know they have been glutened because they get gastric issues. Others find their symptoms are neurological - twitching, tingling and numbness, for example. Some individuals get both. YetI have one friend...
  19. cristiana
    Hi Emily I'm a coeliac based in the UK, and was diagnosed eleven years ago. My mum was diagnosed with breast cancer on my son's fifth birthday, two years before. The strange thing is that I have never put two and two together, but perhaps it added to my health anxieties post-diagnosis, of which there were many. I had a lot of odd symptoms running...
  20. cristiana
    Hi, @Blanco Yes, I missed the Northern Lights too. Although my sister tells me there are some more due soon, I think this coming week. Maybe we'll see them next time, hope so, I felt quite cross that I was asleep in front of the TV when the last lot happened! I agree with Trents, now you have your official diagnosis you won't be expected to keep...
  21. cristiana
    That's a very good idea to speak to PALs, I'd do that. That's an incredible wait... four months. I
  22. cristiana
    Hi @ceslater I'm here in the UK. I am so sorry you are having these issues. With regard to your results, we've been in a similar sort of situation but for a different condition, a few years ago. My daughter had issues with a knee problem and we waited months and months for a follow-up appointment with an orthopedic surgeon. We assumed it was...
  23. cristiana
    Re: cheese. Here a food diary is helpful. Some people who are lactose intolerant, temporarily or otherwise, can often eat hard cheeses like cheddar in moderation, because these it is low in lactose. So is butter and cream, by the way. However, milk can cause issues. Worth remembering before you cut out everything. If you have a casein intolerance,...
  24. cristiana
    I think that is very true, Trents, and suspect that's why my bloating is a lot worse when I take Gaviscon and Omeprazole. I had a friend who was taking large doses but wasn't adjusting her diet, and was still drinking strong coffee, etc. It really pays to try a gastritis/reflux diet.
  25. cristiana
    Hi @DynamoCappo I nearly posted this in my first post to you and should have: I find that taking Gaviscon and Omeprazole actually made me really gassy in my stomach and added to the sensation of pressure in my chest and so I rarely take them together for long. Iron supplements also made make me very bloated in the same area. I remember once when...
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