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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello @EmilyKate and a big welcome to the forum! I didn't want to read and run but I do have to run soon - taking an elderly relative to a hearing test! But yes, it sounds like you are in the same boat. I'm so glad you've had the extensive testing to rule out gynae problems but I am not surprised that nothing was found. I've recently had...
  2. cristiana
    @Ruby89 Hello Ruby It is good to hear from you again. Thank you so much for the update. For many it takes a while to unpick what is a coeliac symptom, what might be another condition, or what might be a 'hangover' from damage (some of which will be reversible) caused by deficiencies. So what I'm saying here is that if you do have lupus (and...
  3. cristiana
    Well that sounds OK, I managed to take an iron supplement which did contain gluten so it does happen (a mix-up with the packaging of another similar but gluten free product). However, dining out is definitely something to stop for now.
  4. cristiana
    Hi gffoodie It took me a long time for my numbers to go down to normal levels, it is so frustrating. I wonder, are you taking any supplements or medication which could be a source? Cristiana
  5. cristiana
    This is an important consideration. Interesting how things vary in Europe, I think there are benefits to having a diagnosis in Italy as well as in Britain.
  6. cristiana
    Hello @badastronaut and welcome to the forum! Can I start by asking a couple of questions: when you were tested for celiac disease, did that include a biopsy? Sometimes it takes a biopsy to be 100 percent sure as a small percentage of coeliacs do not have positive blood tests. And for your previous blood tests, were you consuming gluten regularly...
  7. cristiana
    Hiya @LabLynnie My sympathies, this is such a thing for us coeliacs. Mine tend to be the aura variety these days but occasionally I still get the strangest migraine where I feel quite nauseous with generalised pain at the back of my neck, and light sensitivity. I've come to the conclusion that that type really responds well to lying down, if...
  8. cristiana
    I think getting your own pans may help. Good idea. It is great you are having an endoscopy as you should get some answers then. If it isn't gluten a problem like a hiatal hernia could be causing the issues, quite a common issue. Do keep us posted.
  9. cristiana
    @Sledwards I wouldn't worry unduly if the numbers are only slight, and don't keep rising - some people run at higher levels. Good to run past your doctor but as plumbago says, it could just be that you were dehydrated. @plumbago I think this topic was started by someone trying to find an association between polycythemia vera and celiac disease....
  10. cristiana
    Hello Becca and welcome to the forum It sounds like you have done the right thing to come off your PPI if it is causing tingling in your mouth. I have a dear friend who struggles with chronic gastritis and also the PPIs she's been prescribed over the years to combat it. Eventually she found relief with Ranitidine, a different class of drug, which...
  11. cristiana
    Hello there. I'm so sorry to hear you are suffering from these headaches, the throbbing type are horrible. Just one other thought - might be worth doing a food diary in case anything new that you have added to your diet as a substitute, such as gluten free bread for normal bread, contains an ingredient which is causing these headaches. Reading your...
  12. cristiana
    Hello @Dionysus and welcome to the Forum. I am so sorry to hear about all your issues. When you say you have seen a lot of specialists in the past, did that ever include a gastroenterologist or any other specialist who has run a coeliac panel, which would include these important blood tests: Total immunoglobulin A (IgA) IgA Tissue...
  13. cristiana
    @icelandgirl It will be interesting to see what the booster is like! Mine is in February so I'll beat you to it and will report back! @Scott Adams I agree, my experience of it is a burning pain along the lines of bad sunburn which interestingly sometimes comes back from time to time. I had it yesterday. Do you ever find it comes back, too?
  14. cristiana
    I ought to point out that many people find sensitivity does worsen, this isn't always the case. I have one acquaintance who never reacts and another whose brother was diagnosed with coeliac disease and for whatever reason now no longer reacts in an obvious way to gluten, so has gone back to eating it. However, this is not a good idea. Whether you can see...
  15. cristiana
    Vent away, @Roberta RabbitMum, and welcome to the forum! It is always good to hear the experiences of others. but I'm sorry you've had another bout of anxiety. The problem with coeliac disease is it seems to have so many manifestations, it is so easy for the medical community to misdiagnose. It is one of those diseases that has been called, "the...
  16. cristiana
    Good morning Risk Assessed and welcome to the forum. I am sorry to hear you are experiencing this but rest assured that you are not alone. Just one quick search of this forum has turned up this thread and others: Anxiety can arise following a glutening purely of itself, and/or perhaps, as in my case, another type can arise - a fear of what symptoms...
  17. cristiana
    Poor you, @trents, that sounds really tough. I am glad you have found something that helps you. Interesting, @RMJ Thanks for the tip, @knitty kitty. I never really thought about migraines being caused by deficiencies before.
  18. cristiana
    I didn't realise you had had shingles, Scott. Some years ago someone posted on this forum ( @Mimsy) that they had had repeated bouts of shingles as a child. I wonder if coeliacs are more prone to it? My first two suspected episodes did not have the accompanying rash (therefore it could have been zoster sine herpete) but during a third bout my doctor...
  19. cristiana
    Also re: migraines, oddly, although the painful ones left me I still get auras which affect my vision for about 15 mins, sometimes less, but I'll settle for those instead of the painful ones.
  20. cristiana
    Hello @OhDeer and Welcome to the Forum The diagnostic journey varies enormously, depending on where you live. In my own case, and I am posting from England, from memory I think I got the positive blood test results back in March and then had a biopsy in May. However, this was over ten years ago and pre-COVID, and waiting lists in gastroenterology may...
  21. cristiana
    Just to let UK Coeliacs know that today I was given part one of the two part Shingrix Vaccine and was told it was because I was a coeliac. I am in my mid-fifties, had I not had coeliac disease I would have had to wait until I was 65. I wondered if any other UK coeliacs reading this have been offered Shingrix? I cannot say whether this is now standard...
  22. cristiana
    You are more than welcome - happy reading! But without wanting to sound biased, as I am a Mod, I think this website was just as helpful, if not moreso, so stick around! 😉
  23. cristiana
    I bought a book called "Celiac Disease for Dummies" when I was first diagnosed. Found it very helpful. We're going back ten years now, so I expect it's been revised since then. I'm in the UK - but pretty sure the authors were Americans. Sometimes celiacs suffer from Anxiety and/or Depression at the time of diagnosis. I did and found The Depression...
  24. cristiana
    Sorry - we say this in the UK, put food into a blender, or put a hand held blender into food, to make a puree. Probably an new application of a word we used a lot in WWII, although I wasn't there at the time!😄 I am sorry as I am short of time so I can't read this thread properly, @Always-Hungry-Kate. But certain foods affected me around the time I ...
  25. cristiana
    I have had bouts of nausea when I have accidentally ingested gluten, and when I was first diagnosed. It was pretty miserable at first. I've since concluded that gastritis-like symptoms related to gluten is an issue for me. Worth looking into the symptoms and if you think it could be an issue for, look up some of the gastritis threads in this forum. ...
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