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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    "Our grocery store aisles are mixed and it can be overwhelming to find options." @Samo1 - this is really tough. I have come across this from time to time in this country. At one point I remember one local store decided to put products alongside normal products as an experiment and I could hardly find anything I wanted. Interestingly, that experiment...
  2. cristiana
    Hello Samo1 Welcome to the forum. I am sorry you have had this experience, and yes, I can relate, as many a time have I sat in a restaurant or cafe and been the only person there not eating. I have coeliac friends who eat out all the time, without issue, but I rarely eat out because for some reason I seem to be very sensitive to even the smallest...
  3. cristiana
    I suspect your first hospital appointment will be to review the blood test results with the consultant and to run through what the next step is, but again you can check this with the local hospital. And sorry - to clarify: If your GP has referred you for an endoscopy, your son needs to continue eating gluten (about the equivalent of 2 slices of...
  4. cristiana
    @trents Thanks, Trents, I'm thinking the same - I've always felt slightly wary of the two weeks recommendation, not based on science, it just seems a bit short to me! @MasieE I would double check with your doctor/gastroenterologist's office, but I was diagnosed privately and then my consultant said I could be put back into the NHS for my aftercare...
  5. cristiana
    Hi Maisie and welcome to the forum. Can I ask which country you are posting from? Reason being, you are talking about a 3 month weight and that sounds very much like the NHS waiting time. Anyway, in some countries in the world, including the UK where I live, a confirmed coeliac diagnosis should mean that your son will be entitled to a lot of important...
  6. cristiana
    @LCAnacortes Hello - a friend of mine on this forum had this and she was iron anemic. Your tinnitus may be unrelated to anemia, but if it is iron anemia it will need medical supervision to correct, because if you take too much iron that can cause other medical complications.
  7. cristiana
    Yes... I read about the two bricks but in the end bought a wedge pillow which quite often I discard halfway through the night, as sometimes I find it is a bit uncomfortable. Also, I meant to say one thing - I believe it is possible to have reflux without realising you have it, so you may be getting breathing issues without actually realising you...
  8. cristiana
    This is a totally unscientific way of putting it, but I remember after an endoscopy I mentioned my breathing issues to my consultant and he said to me (and I really can't remember the word he used) that the fumes/gases (see what I mean!) that emanate from the gut can be very irritating to the throat and lungs. Apologies for the poor explanation, but...
  9. cristiana
    Yes, brain fog is something that sometimes still affects me. It is common among coeliacs, but in my case now, ten years on from my diagnosis, it could also be a menopause issue, and of course that wouldn't affect you! I know people who have had COVID complain of the same. When it strikes I find a really brisk walk really helps 'clear the cobwebs...
  10. cristiana
    Hello su2099 and welcome to the forum I take it that you are hoping to gain weight? If so, if you are anything like me, I would say it is possibly early days yet. I noticed when I was first diagnosed it took several months to really start to gain weight again. I lost about 14 pounds in the months running up to my diagnosis, , and probably a few...
  11. cristiana
    I had some mild breathing issues when I was suffering with reflux a few years ago. I also had irritation in my throat and chest which I noticed worsened after meals. I found Gaviscon after meals helped, and my doctor gave me a Salbutamol inhaler which I was to use, two puffs a day, morning and evening. After a few months the problem subsided. If my reflux...
  12. cristiana
    I know, but your and my waistline will thank you for it!
  13. cristiana
    Hi Joel You are more than welcome. This forum has been an absolute lifesaver to me, I've said to @Scott Adams that if we lived in the UK I think he would have been to Buckingham Palace by now to receive an award! Apart from this site, I would recommend you take a look at the Coeliac UK website for UK specific advice. It would be money well spent...
  14. cristiana
    Hi Joel, Just saying 'hi' as I'm a UK Coeliac. When my first blood tests pointed to coeliac disease, my local NHS lab didn't disclose tTG readings if they were over 100, the paperwork would just return the results as '>100'. It is great that you have a lab which reports on the numbers as accurately as that, it will be very helpful as the months...
  15. cristiana
    That's so interesting... thanks for sharing - I never knew this.
  16. cristiana
    Hi Corali It is of course common to have gastritis without having coeliac disease - a friend of mine has the exact same gastritis-like symptoms as me, but has been tested through biopsy as well as blood tests and does not have coeliac disease. She can go through periods of no pain at all, only for it to flare up again. In reply to your question...
  17. cristiana
    Hello Corali I get gastritis-type burning when I am glutened. Often, the only evidence I have of a mild glutening is a burning stomach. I find that taking 20mg of omeprazole or a similar OTC PPI just for a few days allows my stomach to settle down. I would never advise people to take this medication long term without consulting a doctor as it can...
  18. cristiana
    Just back from a wonderful holiday in Cornwall, in the West of England. Found the most delicious gluten free Cornish pasties in Martins Bakery Mevagissey, in the freezer where they offer pasties as well as other gluten-free treats. It was absolutely delicious. https://martinsbakerycornwall.com/
  19. cristiana
    Impending doom - that was me, too, in 2012, came straight out of the blue, couldn't understand why. Six month later my gastric symptoms started which led to my diagnosis. I found B12 supplements super helpful. Two books - At Last a LIfe by Paul David and The Six Step Depression Cure by Dr Steve Llardi were really helpful reads. Also meeting...
  20. cristiana
    You are more than welcome. Do come back to us if you need any support down the line, I hope the gluten challenge goes well.
  21. cristiana
    Ah... I'm sorry to hear about your experience. Things are a bit hit and miss with the poor old NHS at the moment. That said, my experience of the gastroenterology department in my local hospital has been excellent, sometimes better than the private sector, even since COVID, so you may be pleasantly surprised on this occasion - hope so! Unfortunately...
  22. cristiana
    Hello Sunny It is interesting to hear you are feeling the benefits of dropping gluten from your diet. This could point to your having non-coeliac gluten sensitivity, or coeliac disease itself. I am not sure where you are posting from, but in some countries there are real benefits in obtaining a formal diagnosis. For example, in the UK,...
  23. cristiana
    "... Provence, on the other hand... Hit the grocery while you can. Pack your food, have snacks and meals prepared. I lost a LOT of weight in just a week each time we were there (had to buy a belt at the market 😂)" Interesting.... my experience of rural Italy is the same. I was expecting great things but in rural Italy we found a restaurant th...
  24. cristiana
    Great article. Would definitely agree that it is important to travel with some gluten free snacks. However, I did find back in 2019 when we last visited France that somehow gluten was sneaking into my diet. We were there for about ten days, and about a month after our return I still had a sore stomach and my TTG levels were raised. I didn't eat...
  25. cristiana
    No problem, it can be very difficult to work out what is gluten related at first, and what might be another issue. If you want to be absolutely sure it isn't gluten, though, you will need to be quite ruthless in eliminating gluten from your diet. You will find some good advice here. Also, with your family history of coeliac disease you may...
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