cristiana
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Everything posted by cristiana
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no diagnosis
cristiana replied to Chillycat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Chillycat. My symptoms were pretty similar to yours, except I also had terrible anxiety, and was very anaemic. -
Keep Messing Up and I am Paying for It
cristiana replied to Ginger38's topic in Coping with Celiac Disease
Hello Ginger38 I am sorry you have had such a rough ride of things. I have had similar experiences, such as, the time was taking an iron supplement that wasn't gluten free (I mistook Floradix for Floravital) a trip to France where I found the labelling very lax (it may have changed more recently) and I felt dreadful. Had a TTG test... -
Welcome @louai1920 I think it is brilliant that you have been able to achieve so much i.e. five years of medical school under so much pressure, well done. Like Scott, I think the hybrid solution makes the most sense of all. It must be difficult always having to cook food from scratch, with no gluten free pre-prepared food available. I have stayed...
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I think seeking medical advice is very important if things continue much longer. In the meantime, keep hydrated and rest as much as you can. I am turning in soon, it's 9.30 pm here in the UK so things will go quiet from me now. Take care, and hope things improve soon.
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I am sorry - I live in the UK so I don't know what services exist in Florida. If I was in your situation and was worried, here I'd be inclined, on a Sunday, to ring an out of hours medical line, it's called 111. Or if I was really worried take myself to Accident and Emergency at my local hospital. Is there any sort of out of hours service you can...
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A pleasure. You may not have the same issue, but there is one symptom that I find follows on from a glutening - I get a burning sensation in my stomach for a few days. If this happens to you, what I do is try to follow a gastritis/reflux diet for a while, avoiding spicy and fatty food, acid fruit, alcohol and caffeine. Small regular meals are helpful...
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I'm so sorry to hear this. I'd say drink lots of water, and get as much rest as you can. Someone on this forum once advised me to keep eating, they felt it helped move things along faster, and I would agree with that. If the diarrhea continues for a while, you may wish to get some gluten free rehydration salts to replace salts and sugars lost...
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gaining too much weight
cristiana replied to momashes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is so interesting, thanks for sharing. -
gaining too much weight
cristiana replied to momashes's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi @momashes Have you ever measured your BMI? If so, how does it compare now with what it was before you put on this weight? Cristiana -
Just a hunch, but perhaps because you are eating less/skipping meals, your stomach will still be making the acid it normally makes, and the accumulated excess acid, which isn't being used for digestion, might be causing these symptoms? Try to not skip meals and perhaps in the short term look into adopting a reflux or gastritis diet, avoiding spicy,...
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This is very true, and it happened to me. When first diagnosed dairy = diarrhea. I couldn't even tolerate lactose free milk. Now I drink normal milk and eat yoghurt and only if I have too much will it cause issues. Some coeliacs do have problems with all manner of dairy while they are healing, but I noticed hard cheese like Cheddar wasn't a problem...
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"Our grocery store aisles are mixed and it can be overwhelming to find options." @Samo1 - this is really tough. I have come across this from time to time in this country. At one point I remember one local store decided to put products alongside normal products as an experiment and I could hardly find anything I wanted. Interestingly, that experiment...
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Hello Samo1 Welcome to the forum. I am sorry you have had this experience, and yes, I can relate, as many a time have I sat in a restaurant or cafe and been the only person there not eating. I have coeliac friends who eat out all the time, without issue, but I rarely eat out because for some reason I seem to be very sensitive to even the smallest...
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I suspect your first hospital appointment will be to review the blood test results with the consultant and to run through what the next step is, but again you can check this with the local hospital. And sorry - to clarify: If your GP has referred you for an endoscopy, your son needs to continue eating gluten (about the equivalent of 2 slices of...
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@trents Thanks, Trents, I'm thinking the same - I've always felt slightly wary of the two weeks recommendation, not based on science, it just seems a bit short to me! @MasieE I would double check with your doctor/gastroenterologist's office, but I was diagnosed privately and then my consultant said I could be put back into the NHS for my aftercare...
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Hi Maisie and welcome to the forum. Can I ask which country you are posting from? Reason being, you are talking about a 3 month weight and that sounds very much like the NHS waiting time. Anyway, in some countries in the world, including the UK where I live, a confirmed coeliac diagnosis should mean that your son will be entitled to a lot of important...
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@LCAnacortes Hello - a friend of mine on this forum had this and she was iron anemic. Your tinnitus may be unrelated to anemia, but if it is iron anemia it will need medical supervision to correct, because if you take too much iron that can cause other medical complications.
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Yes... I read about the two bricks but in the end bought a wedge pillow which quite often I discard halfway through the night, as sometimes I find it is a bit uncomfortable. Also, I meant to say one thing - I believe it is possible to have reflux without realising you have it, so you may be getting breathing issues without actually realising you...
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This is a totally unscientific way of putting it, but I remember after an endoscopy I mentioned my breathing issues to my consultant and he said to me (and I really can't remember the word he used) that the fumes/gases (see what I mean!) that emanate from the gut can be very irritating to the throat and lungs. Apologies for the poor explanation, but...
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Yes, brain fog is something that sometimes still affects me. It is common among coeliacs, but in my case now, ten years on from my diagnosis, it could also be a menopause issue, and of course that wouldn't affect you! I know people who have had COVID complain of the same. When it strikes I find a really brisk walk really helps 'clear the cobwebs...
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Hello su2099 and welcome to the forum I take it that you are hoping to gain weight? If so, if you are anything like me, I would say it is possibly early days yet. I noticed when I was first diagnosed it took several months to really start to gain weight again. I lost about 14 pounds in the months running up to my diagnosis, , and probably a few...
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I had some mild breathing issues when I was suffering with reflux a few years ago. I also had irritation in my throat and chest which I noticed worsened after meals. I found Gaviscon after meals helped, and my doctor gave me a Salbutamol inhaler which I was to use, two puffs a day, morning and evening. After a few months the problem subsided. If my reflux...
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Gluten Free Cornish Pasties - Martins Bakery
cristiana replied to cristiana's topic in Traveling with Celiac Disease
I know, but your and my waistline will thank you for it! -
Hi Joel You are more than welcome. This forum has been an absolute lifesaver to me, I've said to @Scott Adams that if we lived in the UK I think he would have been to Buckingham Palace by now to receive an award! Apart from this site, I would recommend you take a look at the Coeliac UK website for UK specific advice. It would be money well spent...
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Hi Joel, Just saying 'hi' as I'm a UK Coeliac. When my first blood tests pointed to coeliac disease, my local NHS lab didn't disclose tTG readings if they were over 100, the paperwork would just return the results as '>100'. It is great that you have a lab which reports on the numbers as accurately as that, it will be very helpful as the months...
