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Latest Celiac Disease News & Research:
Everything posted by cristiana
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ARCHIVED Which post diagnosis blood tests/check up should I get?
cristiana replied to rarchy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Actually, you may find you can tolerate small amounts of hard cheese like cheddar, even now. Something happens to the lactose in cheese - can't remember what - which means it is much lower in lactose than say a pint of milk. Hopefully I'm not spouting a load of nonsense here - please, scientists reading this, can you explain this better? -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Well done, Jmg. My husband has just brought home a pizza made by a major Pizza manufacturer. It really does seem that every day, in every way, being gluten free is getting easier and easier! http://www.goodfellaspizzas.com/our-range/gluten-free-range/ -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Yes, French Fancies have to be next on the list. Yum. I wish you hadn't mentioned them, I want one NOW. It's great Mr Kipling are now in the ring. But I can't eat gluten-free oat flour so in actual fact I can't eat their bakewell cake.... -
ARCHIVED Safest UK coffee/sandwich and fast food outlets?
cristiana replied to rarchy's topic in Gluten-Free Restaurants
That is interesting about McDonalds fries, I had no idea... I don't really ever eat fast food anymore because I haven't found anywhere that is gluten free. It seems to me a lot of outlets such as Costa are very good at pre-packed sweet things, such as their Bakewell Tarts, but that isn't doing my waistline any good. Not really fast food but I have... -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Wow JMG, thanks for letting us know. Meanwhile, 'ere in rural middle of nowhere, our Tescos Express has practically empty shelves - like there has been a run on gluten free biscuits, cake and pasta. Very odd? Maybe the shelves looked full, until you posted your piccy 6 hours ago. Handbags at dawn. While I'm online, I feel I must recommend Tescos... -
ARCHIVED Which post diagnosis blood tests/check up should I get?
cristiana replied to rarchy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Open Original Shared Link I'm not sure where you live in London but it might help to have a look at this website to try to find someone locally. My private nutritionalist is a member of this organisation. (The professional body for registered nutritional therapists.) Seeing the nutritionalist cost, from memory, £65 for the first visit, and then ... -
ARCHIVED Which post diagnosis blood tests/check up should I get?
cristiana replied to rarchy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hiya Rachel I was diagnosed in 2013 and have tried my best to follow a gluten-free diet ever since. These are the tests that I have had. I've marked with an asterisk those I had privately because I didn't want to wait in the NHS queue (through an accredited nutrionalist), although you should find the NHS will offer you iron and B12, and a bone scan... -
ARCHIVED News: Celiac.com: Gluten-free diets may be linked to type 2 diabetes
cristiana replied to Scott Adams's topic in Publications & Publicity
Ditto. However, this is what I can never understand about gluten free food. (see the bold bits which I've taken from the article) "We wanted to determine if gluten consumption will affect health in people with no apparent medical reasons to avoid gluten. Gluten-free foods often have less dietary fiber and other micronutrients, making them less... -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Its great - it tastes just how I remember Marmite used to taste - but then again, after four years of eating gluten-free bread which is beginning to taste like I remember glutenous bread - think I'm just getting used to it! - I'm not sure if I'd trust my sense of taste these days. -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
I've not been a member of C UK for a couple of years now but I thought Snickers were OK in their last book? I think I need to join again. However, changing the subject, I have just discovered Tesco's own yeast extract spread, unlike Marmite, does not have gluten listed in its ingredients. Hooray! -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Come the Revolution all Lindt will be Gluten Free. -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
This is great! Good of you to share (and nice of Coeliac UK to make the list accessible to those who are not members). Isn't it great, too, that we can eat Dairy Milk again for a while without gluten! Sooner or later I hope the penny will drop at Cadbury's that they don't need to stick gluten in their chocolate bars. -
ARCHIVED Vitamin and nutritional issues
cristiana replied to Jherm21's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I wonder if you have had your ferritin levels checked? It's important to do if you haven't. Open Original Shared Link Also, I've just discovered I have low folate and I'm going to see if supplementing that might help - for some reason all my supplements contain very little and so it is the one vitamin I know I'm low on. I gather low levels... -
ARCHIVED Neuropathy
cristiana replied to pcooley4195's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wow Alwayssomething - so I'm not the only one! I have had this problem with elasticated and tight waists too. I had to stop wearing certain clothes too. Any pressure on my waist or hips was a disaster. I think it pressed against my SI joints, but also added the pressure of trapped wind to an already painful area. -
ARCHIVED Neuropathy
cristiana replied to pcooley4195's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had inflammation of the sacroiliac joints which felt like lower back pain, and sometimese referred to my groin, abdomen and thigh. It was a burning sensation which showed up a few months after going gluten free, hung around for a while, then left me. I still get it midly from time to time, especially when I've been carrying heavy weights. It is apparently... -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Ah ... so that's why I've got a sweet tooth! Now I understand! Oddly enough I don't drink, smoke, do drugs or eat fast food either (although I did have a Gourmet Kitchen Burger the other day - did you know they did gluten-free? It was amazing!) So before I leave the doughnut question behind I'd just like to say, if a food manufacturer is reading... -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
I can't help feeling this thread is flying in the opposite direction of whole food eating advice that seems to flood the rest of the forum. Us Brits are letting the side down! And yum, those apple filled iced doughnuts were soooo delicious. -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
They look good and if I manage to track them down I'll let you know ... but I haven't seen them either. BTW I'm sorry I reminded you of something you didn't realise you missed! What I really miss at the moment is one of those doughnuts with icing on them. I think I spot a hole in the market! Tee hee! -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Has anyone found or tried any gluten free doughnuts in the UK? Something I really miss all of a sudden. -
ARCHIVED My daughter is always cold now?
cristiana replied to Mermaid's Mom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Mermaid's Mom I used to always feel very hot and found it very difficult living in a hot country, which I did a few years ago. Since my diagnosis and adopting a gluten free diet I've felt cold in a way I never have before. I don't know if it is a coincidence, but it seems to me a bit too much of a coincidence! I think the first port of... -
bloating ARCHIVED Constant Bloating
cristiana replied to Ginger1012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Dairy is definitely the thing to put on hold for a while - you may eventually like to introduce some hard cheese like cheddar which I could tolerate for months before I went back to drinking milk again. Best to avoid tight waistbands if you can because even four years after diagnosis I find that I still get quite bloated at times and tight belts are... -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
We could be onto something here - maybe we should do some research and publish a paper! Thank you so much Icelandgirl, Cyclinglady and Gemini for your kind words. -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Thank you all - had the scan. Wonderful news - the nodule is fine, in fact, they know it isn't cancerous as it is now smaller than it was three years ago - so I seem to be going the same way as you, Cyclinglady! My glands are now normal, the lovely doctor thinks it was just residual swelling from the infections. I could have hugged her, she checked... -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Icelandgirl I think if things look amiss tomorrow I'll have good grounds to ask for the full panel. It is a source of frustration for many in the UK at how difficult it is to get beyond the TSH and T4 tests, helpful as they are. Maybe this will be the beginning of getting my other odd symptoms sorted! Thanks so much my friend. Cxx -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi - sorry - the range is 9.0 to 19.0. I'll try to edit the original! C x PS My ultrasound is tomorrow.