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Latest Celiac Disease News & Research:
Everything posted by cristiana
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New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
I can't help feeling this thread is flying in the opposite direction of whole food eating advice that seems to flood the rest of the forum. Us Brits are letting the side down! And yum, those apple filled iced doughnuts were soooo delicious. -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
They look good and if I manage to track them down I'll let you know ... but I haven't seen them either. BTW I'm sorry I reminded you of something you didn't realise you missed! What I really miss at the moment is one of those doughnuts with icing on them. I think I spot a hole in the market! Tee hee! -
New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Has anyone found or tried any gluten free doughnuts in the UK? Something I really miss all of a sudden. -
ARCHIVED My daughter is always cold now?
cristiana replied to Mermaid's Mom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Mermaid's Mom I used to always feel very hot and found it very difficult living in a hot country, which I did a few years ago. Since my diagnosis and adopting a gluten free diet I've felt cold in a way I never have before. I don't know if it is a coincidence, but it seems to me a bit too much of a coincidence! I think the first port of... -
bloating ARCHIVED Constant Bloating
cristiana replied to Ginger1012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Dairy is definitely the thing to put on hold for a while - you may eventually like to introduce some hard cheese like cheddar which I could tolerate for months before I went back to drinking milk again. Best to avoid tight waistbands if you can because even four years after diagnosis I find that I still get quite bloated at times and tight belts are... -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
We could be onto something here - maybe we should do some research and publish a paper! Thank you so much Icelandgirl, Cyclinglady and Gemini for your kind words. -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Thank you all - had the scan. Wonderful news - the nodule is fine, in fact, they know it isn't cancerous as it is now smaller than it was three years ago - so I seem to be going the same way as you, Cyclinglady! My glands are now normal, the lovely doctor thinks it was just residual swelling from the infections. I could have hugged her, she checked... -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Icelandgirl I think if things look amiss tomorrow I'll have good grounds to ask for the full panel. It is a source of frustration for many in the UK at how difficult it is to get beyond the TSH and T4 tests, helpful as they are. Maybe this will be the beginning of getting my other odd symptoms sorted! Thanks so much my friend. Cxx -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi - sorry - the range is 9.0 to 19.0. I'll try to edit the original! C x PS My ultrasound is tomorrow. -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi thyroid friends.... Just found my September thyroid results. Serum TSH level 1.0 miu/L [0.35 - 5.0] Serum free T4 level 14.3 pmol/L [9.0 -19.0] These are the standard NHS tests. I think I'd only be able to get the full panel done if I failed these - which I haven't. Not sure if that is a good or bad thing! Can anyone... -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Thank you friends, I don't know what I'd do without everyone on this forum. xxx -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Yes - I can't really feel any discreet hard lumps but I guess the more that one digs around (not a good idea) the more weird stuff one finds - no wonder my neck hurts. I did have a severe mouth infection just over a month ago and then colds so I suppose it is likely things just haven't settle down yet. Thank you for that suggestion about waiting - it's... -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi Icelandgirl Thanks so much! I hope it turns out well, too. Here in the cash strapped NHS system they do two particular thyroid tests - I haven't got my readings on me just now but I felt shortchanged when I got them back. That said I was told if something was amiss it would have been detected. I'm going to probably ask for a proper referral... -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi ironic - thank you so much for sharing, what it is not to feel alone! But that said I'm sorry you are in this fix as well. It is so interesting that you have had pain. I do feel sorry that you've had to wait around like this, wondering what on earth is going on. I always imagine something else is going on with my thyroid other than multi-nodular... -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi gluten-free Thanks so much for your post - your previous post way back in '14 helped reassure me greatly, and it was good to re-read it earlier. I also feel better that you didn't have another round of testing for four years and all is benign. Was your throat at all swollen? I guess I'm panicking a bit because a friend of mine told me before... -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi Cycling Lady Just one more question - sorry. When you said that you had enlargement, did your neck feel rock hard or just a bit puffy. My health anxiety is taking over now. That side of the neck does feel puffy and squidgy, if that makes sense. I just don't know what multi-nodular goitres are meant to feel like. xx -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Wow! Gone! That's amazing! Thank you so much. Hoping for similar here, then - maybe it is just my cold! -
ARCHIVED Thyroid Problems - Nodule
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi Thyroid Nodule Friends Opening up this old thread that I started in 2014 - feels like yesterday. I've just been told by my GP that she can feel a nodule - thinks it is the same one I spoke of previously - but I have to get another u/s to check all is well. Since I started this topic I've had two u/s, with two aspirations and nothing found.... -
ARCHIVED Testing and Low BP
cristiana replied to Nikkiann's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi! In the UK an endoscopy is usually done with a sedative but believe it or not, not always. My coeliac friend was not even offered a sedative when she had hers done on the NHS. She told me she gagged a little when they were putting the tube down but that was all. I had a sedative (I had no option - I went private and that's the way they... -
ARCHIVED Symptoms from low folate
cristiana replied to cristiana's topic in Related Issues & Disorders
Yes, that's interesting Gemini about B12. I heard it was at least 500 in Japan, I think, and it is interesting that 650 is considered good for general health in the States. I was surprised when a doctor a few months ago told me my levels of 250 were good - much better than the general population in the UK! I remember thinking that was a very odd remark... -
ARCHIVED Symptoms from low folate
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi pikakegirl That's really interesting that you had neuralgia as a result of low folate. I'm so sorry you were bed ridden - how awful. Did you also have trigeminal neuralgia? My face pain was preceded by odd facial twitching around the time of diagnosis. Some of those twitching hot spots on the right side of my face eventually progressed to... -
ARCHIVED Symptoms from low folate
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi Trents - I think cyclinglady has answered your question - I imagine in the States where I think you might live it is to do with insurance. Here in the UK I'd say it is hit and miss. On diagnosis I was told I had low iron and low normal B12. Only my iron has been tracked properly - any B12 tests have been requested by me, and the levels are usually around... -
Hi everyone After five years of my celiac diagnosis and being as compliant as I can with the diet I've just been tested - for the first time - for folate levels. The minimum level with my lab is 4 - whatever 4 means, and that is what I am. What interests me is that my B12 is good now - 400, after lots of supplementing, I always thought my tingling...
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New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Toblerone Almondy is another good gluten free cake. I'd also like to say 'full marks' to Marks and Sparks (!) as I noticed that when I was preparing some ready meals for my family the other days they stamp allergens on the removeable film on the top of the containers. Oh dear... just reading this entry makes me realise just how much I'm relying... -
ARCHIVED Fibromyalgia and IBS symptoms
cristiana replied to Pegleg84's topic in Related Issues & Disorders
Ginger might be worth a try. Open Original Shared Link I grate it into hot water and drink it and eat crystalised ginger too (but that's probably not good with all that sugar!)