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cristiana

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Everything posted by cristiana

  1. cristiana
    Hi Margaret This may be no help at all but at my surgery a wait for up to three weeks is not unusual. I live in the UK - not sure if this wait is because of a backload of cases or something to do with the actual test requiring more time than the average blood test. I just mention this in case you're in the UK, too. I wasn't bothered that my tests...
  2. cristiana
    I got all sorts of weird pains after going gluten free. One nasty pain was to do with my sacroiliac joints which apparently often affects celiacs but it seemed to refer to my groin, my lower back, my abdomen. It was there much of the time but played up particularly badly when I walked, which was a pain in itself as I love walking. Now I am grateful to say...
  3. cristiana
    I've just had my flu jab. I had two doctors (GPs) in attendance - one was inputting data on the computer, another was asking all the questions. I am living in Britain so it could be that things are a bit different here but aside the normal questions, "Have you had a flu jab before?" and "Why are you having this?" (I've just discovered that coeliacs in the...
  4. cristiana
    Hi cstark I have a buzzing sensation in my right ear/sensation of fullness, since 2013 I think. According to my ENT it is a kind of tinnitus but at times it really feels as if something is actually buzzing around at the back of my head, if that makes sense? I too have been MRI'd to check but there was nothing there - apart from a brain, I am glad...
  5. cristiana
    Ironictruth - sorry you have had this too but I find it reassuring to know that there are others on this board with the same issues. Even though neuro problems are a well-documented issue for some celiacs I have only ever met one celiac personally - i.e. not on this forum, in person - with distinct neuro issues since my DX. However I do know another girl...
  6. cristiana
    Hi cstark Running up to the time of my diagnosis - and for some time afterwards - I suffered a lot of twitching in my face: my eyelids twitched and the strangest things brought it on - sometimes even bending over to load the dishwasher! I had weird twitching sensations in my cheeks; I had twitching in my legs and arms occasionally; lots of buzzing and...
  7. cristiana
    This subject is often raised on this site, especially by women. I am prompted to raise it again today, having spoken to my doctor who has said that she has noticed that celiacs often have thin hair, especially in later years. Rather than just accept what she thinks is just the inevitable I would really like to hear from anyone who really has seen...
  8. cristiana
    This subject is often raised on this site, especially by women. I am prompted to raise it again today, having spoken to my doctor who has said that she has noticed that celiacs often have thin hair, especially in later years. Rather than just accept what she thinks is just the inevitable I would really like to hear from anyone who really has seen...
  9. cristiana
    Susan Nash - this is interesting. Do you know anyone who has had success with supplements? My doctor has just said to me that she has noticed a lot of celiac ladies have thinner hair in later life. Obviously, that is just her observation. But I am going to ask for some vitamin and mineral testing so I can supplement any shortfall in case that is a...
  10. cristiana
    I got terrible anxiety prior to my celiac diagnosis, like a bolt from the blue. Didn't even know what it was, it felt so alien. My doctor diagnosed citalopram. I then found my B12 and iron was low so supplemented these, and I am quite sure that especially the B12 made a difference sometimes within the hour of taking it. It is worth checking you are not...
  11. cristiana
    Hi Pegleg My gastroenterologist here in the UK said to me that he thought my lower left abdominal pain was IBS, possibly related to dairy. I had all sorts of tests - ultrasounds, gynaecolgical, and finally a sigmoidoscopy. All appeared to be fine. My specialist then told me to just buy lactofree products i.e. dairy products with the lactose removed...
  12. cristiana
    Hello Kitty Well I had chills in my first year post diagnosis, I remember two specific instances. On one occasion I was walking home along a path eating licorice allsorts - a type of English sweet - because I had read licorice had iron in it and it was good for anemia. Good excuse! I remember feeling chills and my shins itched. Got home and checked...
  13. cristiana
    Hi Erin My sympathies. Before I was diagnosed with celiac disease I had two terrible bouts of canker sores. I remember one morning eating toast and marmalade and it felt like there was glass in the marmalade! Ouch! Both times, not knowing I was a celiac, I decided to take it upon myself to dose myself up with multi vitamins that included B vitamins...
  14. cristiana
    AM63 - Morrisons is a brilliant company. (Sorry, I've only just seen your post.)
  15. cristiana
    Cricket bats maybe.
  16. cristiana
  17. cristiana
    Greetings to you all. Jmg - your comment about blaming things on gluten did amuse me. I am sitting here looking at a field of wheat beyond the garden and the sky above is steely grey. and it is raining. Is there a connection?!
  18. cristiana

    ARCHIVED Anxiety?

    cristiana replied to lacey's topic in Coping with Celiac Disease

    I wonder if the doctors considered costochondritis or tietze's syndrome. Open Original Shared Link Do you have any tenderness in your ribs/sternum? My doctor diagnosed me with tietze's a couple of years ago. I had my doubts as I felt sure that another doctor was nearer the truth when he told me I was suffering from shingles without the rash...
  19. cristiana
    Hi BamaGal I hope someone else can help you here with more specific insight but I thought I'd just put this in. I have not been diagnosed with AFIB but when I had my second child ten years ago my heart rate was rapid and all over the place when I was in labour. Then the run up to the time I was diagnosed with celiac disease, three years ago, I often...
  20. cristiana
    Hi. I have been reading your post and thinking about how my pain was around diagnosis. It was above the belly button, I think where you are describing. At the time I assumed I had a stomach ulcer. I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy...
  21. cristiana
    Hi Zozo My symptoms are usually a feeling of slight nausea and a burning feeling around my abdomen, sort of around waistband level, I also feel a bit bloated. I might start to feel like this within hours of eating, but for some reason the symptoms seem to really show up a day or so later and can last some time. I think up to three weeks of not feeling...
  22. cristiana
    Hi Zozo I think what you say about restaurants not wanting to be sued is quite true. I remember when I was diagnosed my nutritionalist told me about this case: Open Original Shared Link My celiac disease was only diagnosed in my mid-forties. I could not understand how two younger friends who coincidentally were diagnosed around the...
  23. cristiana
    Wilco!
  24. cristiana
    Hi frieze I have actually just had my latest result today. Latest installment is I am back to anemic, but this time the hemaglobin has finally tumbled too so whatever my current problem is it isn't too much hemaglobin - at least for a while. My awful perimenopausal symptoms are responsible, there can be no doubt in my mind. It seems to me that...
  25. cristiana
    (Trents, just an aside, I see you have been with this community since 2006. It is good to meet someone who has been with celiac.com since then!) What you say about B12, that is interesting. If you stop taking those supplements, do your hemaglobin levels go down, too? I took huge levels of B12 sublinguals at one point and I wondered if that was...
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