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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. Hi Erin My sympathies. Before I was diagnosed with celiac disease I had two terrible bouts of canker sores. I remember one morning eating toast and marmalade and it felt like there was glass in the marmalade! Ouch! Both times, not knowing I was a celiac, I decided to take it upon myself to dose myself up with multi vitamins that included B vitamins...
  2. AM63 - Morrisons is a brilliant company. (Sorry, I've only just seen your post.)
  3. Greetings to you all. Jmg - your comment about blaming things on gluten did amuse me. I am sitting here looking at a field of wheat beyond the garden and the sky above is steely grey. and it is raining. Is there a connection?!
  4. cristiana

    ARCHIVED Anxiety?

    I wonder if the doctors considered costochondritis or tietze's syndrome. Open Original Shared Link Do you have any tenderness in your ribs/sternum? My doctor diagnosed me with tietze's a couple of years ago. I had my doubts as I felt sure that another doctor was nearer the truth when he told me I was suffering from shingles without the rash...
  5. Hi BamaGal I hope someone else can help you here with more specific insight but I thought I'd just put this in. I have not been diagnosed with AFIB but when I had my second child ten years ago my heart rate was rapid and all over the place when I was in labour. Then the run up to the time I was diagnosed with celiac disease, three years ago, I often...
  6. Hi. I have been reading your post and thinking about how my pain was around diagnosis. It was above the belly button, I think where you are describing. At the time I assumed I had a stomach ulcer. I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy...
  7. Hi Zozo My symptoms are usually a feeling of slight nausea and a burning feeling around my abdomen, sort of around waistband level, I also feel a bit bloated. I might start to feel like this within hours of eating, but for some reason the symptoms seem to really show up a day or so later and can last some time. I think up to three weeks of not feeling...
  8. Hi Zozo I think what you say about restaurants not wanting to be sued is quite true. I remember when I was diagnosed my nutritionalist told me about this case: Open Original Shared Link My celiac disease was only diagnosed in my mid-forties. I could not understand how two younger friends who coincidentally were diagnosed around the...
  9. Hi frieze I have actually just had my latest result today. Latest installment is I am back to anemic, but this time the hemaglobin has finally tumbled too so whatever my current problem is it isn't too much hemaglobin - at least for a while. My awful perimenopausal symptoms are responsible, there can be no doubt in my mind. It seems to me that...
  10. (Trents, just an aside, I see you have been with this community since 2006. It is good to meet someone who has been with celiac.com since then!) What you say about B12, that is interesting. If you stop taking those supplements, do your hemaglobin levels go down, too? I took huge levels of B12 sublinguals at one point and I wondered if that was...
  11. That's interesting, trents. Do you supplement B12 too? I do wonder sometimes if I need to look at that again as I get tingling and find it responds quite quickly to a dosing of B12, but I'm now concerned to take that too as I imagine that can affect the hemaglobin, too?
  12. Not as far as I know. I gather that can be a factor - I had a chest X ray since I fell ill with possible pneumonia but nothing unusual detected.
  13. Hi All Just wanting to hear from anyone who has ever had/or who has high hemoglobin. I gather a lot of us celiacs have strange blood test results, particularly liver function (enzyme) tests, which often improve after going gluten-free. Thankfully mine have to date, all apart from one thing. I was anemic before DX and went onto iron supplements...
  14. Icelandgirl and I often remark, "There's always something [to be worried about]"! Whilst is obviously important to have all these tests and there is good reason to check them (one reads that very occasionally doctors miss something) it has done my health anxiety absolutely no favours having blood test after blood test!
  15. Hi Matt I'd love answers to this one too. My own levels have varied since I have been monitored, over the last three or so years. I asked my GP about this and I seem to recall she said to me that levels of hydration affect this number. i.e. when my figures were in the 90s it was because I was super-hydrated. When my numbers were in the ...
  16. Hi Elle. To be honest, to this day I am not sure if I actually had zoster sine herpete. It was one of several suggestions by bewildered doctors. What I can tell you is that I had to have MRIs because one doctor thought I might have trapped nerve in my spine and I thought it would reveal something dreadful being the sort of person who gets weird...
  17. Hi Elle I just wanted to add, I too have had that burning pain, in my case it was on the left hand side of my torso, which wrapped round from my back to the front of my ribs in a line. It went on for months. I was given various possible diagnoses although my brother in law thought it might be shingles without the rash (he is a GP). Zoster sine herpete...
  18. RMJ - thanks for coming back to us. Keep us posted if you do get any answers. I think magnesium is definitely worth a shot, no pun intended. As I said in an earlier post, mine tends to come and go - I really don't know why but if I get any answers I'll let you know, too. I suspect sometimes that it cross contamination, as well as perhaps damage that...
  19. Hello Elle Among this online community you are not alone in either your symptoms or how you feel about visiting the doctor. I for one understand the anxiety that you are going through, my own weird nerve stuff and other puzzling symptoms have had me really scared at times. So much you are going through could very well be gluten related, it really...
  20. RMJ, thanks so much for the update. Wonder if you can let us know what happens once you have the MRI, it would help us other tinglers to know what might being going on with us! Awol and Icelandgirl, your responses are also very helpful. Neuropathy appears on plenty of lists of symptoms; there are quite a lot of older posts on it on this website...
  21. Hi RMJ I started to experience mild tingling in both my feet and my left calf the summer before I was DX'd. It got worse when I exercised in certain restrictive footwear. I was finally DX'd in the spring of 2013, but months prior to that I also found myself waking up with numb fingers and arms on occasion, which would soon pass if I moved my arms...
  22. A brave, kind lady. She helped so many people.
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