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cristiana

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Everything posted by cristiana

  1. cristiana
    Just one thought ... if you manage to rule out GI sources of pain, and it isn't muscular skeletal pain referring to the lower abdomen/groin etc, it is worth finding out if you might have pelvic congestion. I was told by a radiographer that this might be my problem, as she saw a lot of veins on the left hand side when she did a scan, but the gynecologist...
  2. cristiana
    Hi again - don't panic about lactose intolerance as a lot of celiacs (if that is what you have) find it passes after a while gluten-free and the villi heal. I gave it up for a while and found it helped with the bloating but I missed dairy so much and started to bring it back in. I have had some relief in the past going lactose light for a while, drinking...
  3. cristiana
    Hello - strange you should post this as my pain symptoms are identical, except they are all on the left side. I have left hand sided lower abdomen, left groin, left pelvis and left hip pain, on and off for many months, and have had it again since the autumn. The pain is worse when I sit down all day or do exercise, particularly walking up slopes or uneven...
  4. cristiana
    I would second this - please get tested for B12. I found that supplementing this when I was borderline normal was tremendously helpful.
  5. cristiana
    Good to read on a brain fog day!
  6. cristiana
    I totally understand your concerns. I know with my own readings I might have another as yet undiscovered auto-immune problem, plus some other more undesirable things. It can be scary contemplating what-if scenarios but I am trying to become a bit more disciplined and not go down that route so much as one thing for sure, it won't add any hours to my life...
  7. cristiana
    Hi - I had very similar symptoms when I was your age, which came on when I was stressed and living abroad. I just assumed I had a nervous stomach as the symptoms waxed and waned over the years - worsening with stress. I had never heard of Celiac Disease then - had I heard of it I would have had the tests then. Instead it took almost thirty years to find...
  8. cristiana
    Hi Amina I guess if we live in gluten filled houses cc is always a possibility. There again, it is possible it has nothing to do with it - maybe it is just a rash caused by something else. Eczema? It is easy to attribute everything to gluten but sometimes gluten isn't the culprit . A different set of symptoms but a few months post DX I...
  9. cristiana
    Hi Donna I do understand your concern. I had never had much in the way of surgical intervention and had never had a sedative and was seriously freaking out about it. Would you believe it, in the UK it is quite routine to have an endoscopy without any sedation at all - my friend was dx'd this way - so I was thinking, I want that too! I have an inbuilt...
  10. cristiana
    Yup... and good old Costa Coffee sell gluten free wraps too, I always seem to be buying their last one though. I feel a bit guilty taking the last one! It seems to me they should be selling more of them.
  11. cristiana
    Gemini - I remember you saying this before about the bread in the UK. One really good brand is Marks and Spencers whole grain I think it is called - my fussy-eater family members can't tell the difference. The other tip someone told me when I was missing 'normal' bread was gluten-free bread somehow tastes much better toasted. I think they are right...
  12. cristiana
    I had terrible out of the blue anxiety before dx. My gastro symptoms followed but months later. I was very low on B12 and iron which I am sure didn't help. I have found that occasionally that anxiety comes back. It is as if I learned that behavior before I was dx'd and something triggers it again, not always gluten. When I feel it knocking at...
  13. cristiana
    Yes, quite so - let's hope some bored hacker out there doesn't reveal all our real identities! I wondered about the thyroid thing, I had read about that somewhere else. Thanks!
  14. cristiana
    Friends - thank you. I can't believe that I am even sharing something so personal and horrid on the internet! But it is great to know that it could be down to women's problems. Apologies to all male readers. I pity my gastro next appointment, but I will have to tell him!
  15. cristiana
    Hi Gals Thanks for your replies. I am not sure why my levels are dipping. I was supplementing in a very half-hearted way when I had my levels checked about 12-18 months ago. My levels were at 41. I then stopped because I assumed I was healed so no problems. Then two months ago I had the most terrifying blood loss in one period. I...
  16. cristiana
    Hello there - is anyone out there who has managed to increase their iron (ferritin) levels without supplementation. I feel I am running out of options now - I started with heavy duty tablets which caused diarrhea and bleeding. Then I went onto ferrous glucanate (sp) and eventually that started to hurt. So now I am Floradix - gluten-free - and nearing...
  17. cristiana
    Hi! That's a great attitude - good to look at it as an adventure! It is really good you are going to be tested for celiac, if I have understood you correctly. I don't know what they advise in the States but here in the UK I was told to have at least two slices of normal toast a day for six weeks (gluten challenge) before I could be tested. But actually...
  18. cristiana
    Sorry Akron, what I meant was even pure oats can cause problems in a few celiacs. Oats are naturally gluten free, but can be contaminated with gluten when they are being processed. You can buy oats that are not contaminated in this way called gluten free 'pure oats' but even these can cause problems in a small percentage of celiacs because some of us...
  19. cristiana
    Wow Akron, that's great to have a friend as a neurologist! Wish I had one of those! Frieze is right. One other 'substance' that might be bothersome: as I understand it, soy can, in certain individuals, cause problems. Have a look at this and search for the mentions of soy. Open Original Shared Link I did a lot of swapping of gluten and...
  20. cristiana
    Hi Akron I am sure that a lot of those reading will be able to identify with the fear that you are feeling at the moment - even if they don't type an answer! Before I was dx'd I had blood results that really concerned my doctor and unti I had gastro symptoms six months later there was no indication that it was celiac disease that was behind...
  21. cristiana
    Hi Akron I sympathise. I must admit of all my ongoing symptoms (I was DX'd in May 2013 and went gluten-free a month before that) my pins and needles and facial tingles and eye twitches are the things that get to me most. I have symptom envy sometimes when a friend says she has had a bad stomach after eating gluten, awful to admit, but I would rather...
  22. cristiana
    Thanks so much - v. informative. I guess it would have been easier to know if malabsorption of iron was the principal problem behind my lower levels if I hadn't had these 'womens issues'. I am taking some gluten-free Floradix every day now until my next blood test in about 25 days. It will be interesting to see if it is a bit better by then. My...
  23. cristiana
    I hope you all had a good Christmas. For the girls. A couple of months ago I had to have blood test to see if I was anemic. My blood iron which was just over 40 in April 2014 has now halved. About six months before my DX in 2013 I was put onto some pretty heavy-duty iron tablets for at that stage unexplained anemia. This supplementation...
  24. cristiana
    Hi Anyana Thanks for resurrecting this post - because of the title I would never have found it. I had no idea that this was such a common problem which makes me feel a whole lot better. I haven't had a flat stomach since I was aged about seven. By the evening I have such a feeling of bloating down my lower left abdomen - I feel like I have a balloon...
  25. cristiana
    I'm just wondering - aren't there other B vitamins deficiencies that can cause tingling? Or too much can also cause tingling - see this about B6? Open Original Shared Link I know a couple of people who have to have B12 injections several times a year as they have pernicious anemia.
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