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cristiana

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Everything posted by cristiana

  1. cristiana
    Good news for you JMG - this Christmas I found a big bag of Cadbury's Milk Chocolate chunks wrapped individually and gluten was not mentioned on the ingredients list. They were delicious! So lovely to eat Dairy Milk again. Let's hope the fruit and nut varieties follow suit. And now I need to go on a diet!
  2. cristiana
    I'm just interested to know if anyone has managed to find a solution to a problem that is really bugging me. About six months before my DX (in 2013, where my biopsy showed bad damage to my gut, and also my blood test readings were off the scale), I started to get neuro issues. Tingling extremities, arms and legs, numb hands and arms on waking, and twitching...
  3. cristiana
    I think I need to put this on the wall in my kitchen. This is great advice. I had hoped that I'd get better really fast - but it has happened very slowly, with a few setbacks. I will try to take the longer view from now on. Thanks!
  4. cristiana
    Now heard of two people who have been having symptoms but the tests ended at stomach level, they took no samples of the small intestine. I wonder how common that is - how many people could be slipping through the net?
  5. cristiana
    Wow - thanks for this tip off. I miss cheesecake... The iced mince pies are delicious! Sainsbury's gluten-free tortellini are a new find. Really good but only cook them for the 1 minute - they start to go too soft otherwise. What I do miss is Cadbury's Fruit and Nut. I wish they didn't have to put wheat in their chocolate - it's odd, because...
  6. cristiana
    Poorlypup Well done for perservering. Isn't extraordinary that you had the same experience as my friend? What a shame! I think interdepartmental communication might be the problem - very difficult. I feel sorry for the NHS as everyone tries their best but I think having had so many tests myself it is good to double check with the person issuing the...
  7. cristiana
    Hi Poorlypup I'm British so I'm bilingual on this website when it comes to the spelling of coeliac! So I'll spell it the British way here. So much of what you say reminds me of my own pre-diagnosis journey. I too was told by one doctor I was suffering from stress but was finally diagnosed with coeliac disease in 2013. Tingling fingers, chills...
  8. cristiana
    I have posted recently on this but something to add. A friend of mine told me she gets bad sores when she eats potato chips loaded with salt. I am now finding that I have the same problem if I overindulge. She has non-celiac gluten intollerance; I have celiac disease. I don't think there is any link with either but you might like to see if it is anything...
  9. cristiana
    Hi Pegleg My gastroenterologist told me (after all sorts of tests came back normal) that I might have IBS - I had the exact same Mystery Pain # 1 that you cite above. I could understand having pain before a BM but mine really majored after one - sorry, TMI - and it could continue for hours sometimes and the pain seemed also to affect my hip/sacroiliac...
  10. cristiana
    Hi Emma I just wanted to chime in to encourage you that although you may be having joint pain it may not persist. I gave up gluten in May 2013 after being diagnosed with celiac disease that April. Within months I started to get searing pain in my sacroliac joints and pain that referred to all sorts of other sites. Open Original Shared Link ...
  11. cristiana
    Hi James again. One other thought - I've just posted a similar reply on another thread. Are you eating oats? Even though the pure, uncontaminated by gluten variety are well tolerated by most celiacs a few of us (and I am one) cannot eat them and feel like I have had some gluten if I do. If you are eating them it might be one foodstuff you might...
  12. cristiana
    Hiya Kam Just one thought ... might not help with all your symptoms but might alleviate some - are you still eating oats, abeit pure oats (those that haven't been cross-contaminated by gluten?) Some celiacs have issues with a reaction to the protein avenin in oats. I was told by the NHS to give up oats 'for a few months' but when I went back to...
  13. cristiana
    Welcome James. Like ravenwoodglass I have had anxiety too and reading this forum have concluded it is a celiac thing for some. On the whole is better but for me it tends to come back when I am stressed about something like a project deadline and I think that gluten sneaking in may well have a part to play too. Forgive me as I may have missed something...
  14. cristiana

    ARCHIVED Canker sores

    cristiana replied to kkgirl's topic in Doctors

    Another thought. I had two similar episodes of terrible canker sores a few years apart. They came on really quickly and both times I discovered I had them because when I was eating it felt like there was glass in my marmalade! Both episodes occurred before my celiac diagnosis and I just have a feeling it was also to do with anemia. My B12 was...
  15. cristiana
    Great advice. Funny but I have just remembered years ago going through a stage when my feet really burned at night. I'd completely forgotten that. I put it down to chilblains although on reflection I'm pretty sure it was B12 deficiency. B12 is a wonder vitamin and so much goes wrong without it. Open Original Shared Link
  16. cristiana
    Raspberry - a friend (who isn't a celiac but has non celiac gluten sensitivity) and I (a celiac) have both have had all sorts of odd neurological symptoms and neither of us have given up dairy, although have gone gluten free. I have seen some improvement, she has seen huge improvement. I would say definitely try going gluten free but you may need to be...
  17. cristiana
  18. cristiana
    Good point. I ought to say that I am back to milk now, but not every day - so I think it was to do with blunted villi and recovery that was causing symptoms. I can get away with drinking so much - then I get bloating and mild pain, so I give it a miss for a while then go back to it. But I think gradually it is ceasing to be a problem. That said, I never...
  19. cristiana
    It's always nice to meet a fellow suffer - although I am sorry you have this problem! Also I used to get, when it was at its worse, wierd feelings in my fingers when I unscrewed a jam jar top, for example. Kind of pins and needles. That doesn't happen anymore. Now occasionally I find when I am washing my hands under hot water and wringing my fingers...
  20. cristiana
    Interesting plumbago - I wonder too. When I first tried giving up milk things really improved so I then thought I'd buy some lactofree milk, as I did miss it. TMI but it literally worked like a laxative, and very quickly! I can't help wondering there must be something else in milk. Or do you think they don't quite remove all the lactose? Maybe they are...
  21. cristiana
    It is interesting you have ulnar nerve issues. Me too, left and right. Starting really playing up just before diagnosis - I was always waking up with numb fingers, hands or lower arms. So I think gluten had a bearing. I had the tests and have a confirmed diagnosis for that one.
  22. cristiana
    Ironictruth, I think you could be onto something. Get him/her to check your sacroiliac joints too, they cause all sorts of referred pain. Cstark - I have had this sort of pulsating buzzing in my face in the past, it waxes and wanes. Doc thinks I have mild neuralgia. Triggers seem to be poor neck position and also cold wind on my face. Caffeine too...
  23. cristiana
    Hi Ironictruth I'm just wondering if this is nerve impingement? Any pain in your hip/back area?
  24. cristiana
    Hi Buckarett Can you describe where these tremors/vibrations are? Also, do you know what your B12 levels are? Sometimes a clinic will say you have normal B12 but by other countries' standards they would not be considered normal. It could be you are still deficient. That said, I would say it is just possible it is connected to anxiety. I...
  25. cristiana
    My liver function tests showed I had elevated gamma globulin levels for about six months prior to diagnosis which worried my doctors. They came down to normal after I adopted a strict gluten-free diet. I have never drunk alcohol so it just goes to show that gluten alone can cause odd liver function tests! I have a book here, 'Celiac for Dummies',...
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