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cristiana

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Everything posted by cristiana

  1. cristiana
    That's interesting, trents. Do you supplement B12 too? I do wonder sometimes if I need to look at that again as I get tingling and find it responds quite quickly to a dosing of B12, but I'm now concerned to take that too as I imagine that can affect the hemaglobin, too?
  2. cristiana
    Not as far as I know. I gather that can be a factor - I had a chest X ray since I fell ill with possible pneumonia but nothing unusual detected.
  3. cristiana
    Hi All Just wanting to hear from anyone who has ever had/or who has high hemoglobin. I gather a lot of us celiacs have strange blood test results, particularly liver function (enzyme) tests, which often improve after going gluten-free. Thankfully mine have to date, all apart from one thing. I was anemic before DX and went onto iron supplements...
  4. cristiana
    Icelandgirl and I often remark, "There's always something [to be worried about]"! Whilst is obviously important to have all these tests and there is good reason to check them (one reads that very occasionally doctors miss something) it has done my health anxiety absolutely no favours having blood test after blood test!
  5. cristiana
    Hi Matt I'd love answers to this one too. My own levels have varied since I have been monitored, over the last three or so years. I asked my GP about this and I seem to recall she said to me that levels of hydration affect this number. i.e. when my figures were in the 90s it was because I was super-hydrated. When my numbers were in the ...
  6. cristiana
    Hi Elle. To be honest, to this day I am not sure if I actually had zoster sine herpete. It was one of several suggestions by bewildered doctors. What I can tell you is that I had to have MRIs because one doctor thought I might have trapped nerve in my spine and I thought it would reveal something dreadful being the sort of person who gets weird...
  7. cristiana
    Hi Elle I just wanted to add, I too have had that burning pain, in my case it was on the left hand side of my torso, which wrapped round from my back to the front of my ribs in a line. It went on for months. I was given various possible diagnoses although my brother in law thought it might be shingles without the rash (he is a GP). Zoster sine herpete...
  8. cristiana
    RMJ - thanks for coming back to us. Keep us posted if you do get any answers. I think magnesium is definitely worth a shot, no pun intended. As I said in an earlier post, mine tends to come and go - I really don't know why but if I get any answers I'll let you know, too. I suspect sometimes that it cross contamination, as well as perhaps damage that...
  9. cristiana
    Hello Elle Among this online community you are not alone in either your symptoms or how you feel about visiting the doctor. I for one understand the anxiety that you are going through, my own weird nerve stuff and other puzzling symptoms have had me really scared at times. So much you are going through could very well be gluten related, it really...
  10. cristiana
    RMJ, thanks so much for the update. Wonder if you can let us know what happens once you have the MRI, it would help us other tinglers to know what might being going on with us! Awol and Icelandgirl, your responses are also very helpful. Neuropathy appears on plenty of lists of symptoms; there are quite a lot of older posts on it on this website...
  11. cristiana
    Hi RMJ I started to experience mild tingling in both my feet and my left calf the summer before I was DX'd. It got worse when I exercised in certain restrictive footwear. I was finally DX'd in the spring of 2013, but months prior to that I also found myself waking up with numb fingers and arms on occasion, which would soon pass if I moved my arms...
  12. cristiana
    A brave, kind lady. She helped so many people.
  13. cristiana
    Michael, well done for booking those tests. I can only speak for celiac disease but if you have read other posts on this forum about stress you will see that anxiety and depression are often very common before diagnosis. I have never been exactly laid back but prior to my diagnosis I was experiencing terrible out of the blue anxiety - so bad I didn...
  14. cristiana
    Hi Michael. I was silly. I went through stretches of having bad stomach pain and diarrhea - usually at times of high stress - and because IBS was so talked about I assumed (always dangerous!) that was what it was without ever checking with my doctor. Things got a lot better for a while - not sure why. Then they got a lot worse - hence I was finally...
  15. cristiana
    Hi Michael and Welcome! It sounds like you are doing absolutely the right thing. Just to reassure you that prior to my diagnosis I too had bleeding - mine was caused by such bad diarrhea I had fissures. Prior to that probably since my teens I had had episodes of what I would call 'nervous stomach' from time to time and other odd symptoms but it...
  16. cristiana
    Hi Dylan I just wanted to join SLLRunner in welcoming you to the forum and yes, do ask to be tested for Celiac and Chrons. My nutritionalist told me that celiac disease is a great mimicker of many illnesses which I think must make a doctor's job all the harder when it comes to diagnosis. For many of us it took us a long time to get a diagnosis...
  17. cristiana
    Hello 1398_Days! Sounds like an allergy to me - although I would have thought if it were gluten exposure it would gradually reduce rather than keep coming back??? Of course, there are a lot of seasonal allergens out there at the moment if you are in the Northern hemisphere. If you are at all concerned I would raise it with your doctor...
  18. cristiana
    Welcome to the Forum, Kal. I think we have quite a few Australian coeliacs on board here so hopefully someone will be able to chime in about how long it will take for your endoscopy. I'm in Britain and here it depends greatly where you live in the country - it can take many, many weeks, so some people go private if they are feeling very poorly...
  19. cristiana
    Hi - think I remember 'speaking' to you before but can't find the post! Thanks for the update. I had painful headaches which got worse and worse as I went into my twenties. They became auras - kind of silver grey paisley pattern - without pain just before I had my first child, at a time when I started to experience hypnopompic hallucinations ( seeing repeat...
  20. cristiana
    Thanks so much, gluten-free, in my hypchondriacal panic I saw that website! It is good to have an endorsement from a celiac. I remember seeing quite a few reassuring stories in it along the lines that you describe. Funny isn't as because I now feel far less inclined to eat large amounts of carbohydrate now I have cut back a bit. It seems the more...
  21. cristiana
    It is overwhelming at first but step by step you will begin to find food you like - new naturally gluten free 'clean' food you have never tried before, or gluten free substitutes that taste almost as good or just as good as the food you miss. Someone told me one just get used to gluten free bread in the end. But there are some on the market that...
  22. cristiana
    I am very impressed by Morrison's Supermarket and their Free From Range. This lovely advert has just appeared. Dedicated to all who have gone to a party and not been able to eat much or indeed anything. Open Original Shared Link
  23. cristiana
    Thanks! When I get a mo. I shall do some reading. Anything to get rid of these highs and lows. I must say a friend of mine who has done paleo is positively glowing now.
  24. cristiana
    Thank you both so much for your replies. I like the sound of what's on the menu, cyclinglady! I think I have definitely been straying down the cake aisle too often so will look out for more protein, GFinDC. Readjusting to fewer carbs is making me feel a bit weird - and from what I read this might be causing the thirst which thankfully is much better...
  25. cristiana
    Hi Kyz My blood ferritin was the same as yours. I was put on heavy duty stuff by the doctor but it hurt so bad, I got terrible diarrhea (mind you, I was still an undiagnosed celiac at the time) and I won't tell you what other horrid symptoms. Once I was diagnosed another GP put me on ferrous gluconate which you can get over the counter. She told me...
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