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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Lukas Firstly Welcome to the Forum. I know others will join in but I'd just like to say if you read all my post history you would see that I have had very similar symptoms to you. I was diagnosed in 2013. Some of my symptoms I'm fairly sure are celiac related. Sometimes the answer is rather more complicated. Here are the ones that mirror...
  2. cristiana
  3. cristiana
    Yes, I imagine not having a diagnosis is difficult. A friend of mine doesn't have celiac disease (she had all the tests) but her awful neurological symptoms are now getting better as a result of a gluten free diet that she took up to keep someone else company. So it just shows how important that people who have neurological problems look into celiac disease...
  4. cristiana
    I think I need to take this all much more seriously. Strange as I have a couple of celiac friends who sail very close to the wind and don't take all these precautions and seem to be fine. Whereas I get all this odd stuff and try to tell everyone why I am being careful and they think I'm being silly. I suppose the only real way to be absolutely sure is to...
  5. cristiana
    Hello Manasota. I am truly grateful to you for taking the time to write. It is comforting to me that your eye symptoms that resembled mine passed, although it seems you have much else to deal with - I am sorry. The thing I find very difficult as a celiac is that our condition could explain so much, and yet could always be something else! Did...
  6. cristiana
    Thank you for posting your experiences. I hope others might chime in, but meantime I found this old article which gives me hope that what I have is to do with celiac disease, although I find it unnerving (excuse the pun) that it could be nerve damage and that it might get worse. My optician seems pretty unconcerned which I should be glad about but I...
  7. cristiana
    In the international room, JMG and I have been talking about the unexplained eye symptoms that we have had that we believe has been a result of gluten damage. We wanted to know if anyone has had eye symptoms which the medical profession have either diagnosed or have, you feel, mis-diagnosed. I have had aura migraines in both eyes in the past but about...
  8. cristiana
    Wilco!..... zzzzzzz
  9. cristiana
    Thank you so much for getting back to me. I don't get grey patches but eithert tiny sparkling lights in my centre vision, or sometimes what I can only describe as what looks like water on a windscreen, either in a tiny line acrross my central vision or sometimes covering a third of my central vision. It does not obscure my vision, I can still see but...
  10. cristiana
    Sorry to go slightly off piste but what is your eye issue, JMG, if you don't mind my asking? My right one isn't quite right since I got ill although I pass my eye tests and had a retinal scan an all appears well. Oh - and an MRI. I am no stranger to tests!
  11. cristiana
    Yes, well, sort of - but my pack looked like this. http://www.tesco.com/groceries/product/details/?id=293498895 Good old Tescos! But I see that like those you have posted, they are a limited production run. Maybe that is a blessing in disguise. Although you may find there are some in the shop still. We bought ours only a few days ago in Havant...
  12. cristiana
    I'd forgotten about the breathlessness and palpitations - you can add that to my list too! Yes, the hallucinations were odd and I was scared until I read about them on the internet - I searched for answers there as my young foreign neurologist had never heard of them (could have been a language problem). I think it could be related to migraines - that...
  13. cristiana
    Hi Lyndsay These are the following symptoms that I shared with you: heavy bleeding, abdominal pain and tingling throughout entire body, ibs symptoms, vertigo, joint pains in hips, heartburn, indigestion and migraines, low iron count and elevated gamma globulins - in other words, elevated liver enzymes. I also had two bad bouts of canker sores...
  14. cristiana
    Good news for you JMG - this Christmas I found a big bag of Cadbury's Milk Chocolate chunks wrapped individually and gluten was not mentioned on the ingredients list. They were delicious! So lovely to eat Dairy Milk again. Let's hope the fruit and nut varieties follow suit. And now I need to go on a diet!
  15. cristiana
    I'm just interested to know if anyone has managed to find a solution to a problem that is really bugging me. About six months before my DX (in 2013, where my biopsy showed bad damage to my gut, and also my blood test readings were off the scale), I started to get neuro issues. Tingling extremities, arms and legs, numb hands and arms on waking, and twitching...
  16. cristiana
    I think I need to put this on the wall in my kitchen. This is great advice. I had hoped that I'd get better really fast - but it has happened very slowly, with a few setbacks. I will try to take the longer view from now on. Thanks!
  17. cristiana
    Now heard of two people who have been having symptoms but the tests ended at stomach level, they took no samples of the small intestine. I wonder how common that is - how many people could be slipping through the net?
  18. cristiana
    Wow - thanks for this tip off. I miss cheesecake... The iced mince pies are delicious! Sainsbury's gluten-free tortellini are a new find. Really good but only cook them for the 1 minute - they start to go too soft otherwise. What I do miss is Cadbury's Fruit and Nut. I wish they didn't have to put wheat in their chocolate - it's odd, because...
  19. cristiana
    Poorlypup Well done for perservering. Isn't extraordinary that you had the same experience as my friend? What a shame! I think interdepartmental communication might be the problem - very difficult. I feel sorry for the NHS as everyone tries their best but I think having had so many tests myself it is good to double check with the person issuing the...
  20. cristiana
    Hi Poorlypup I'm British so I'm bilingual on this website when it comes to the spelling of coeliac! So I'll spell it the British way here. So much of what you say reminds me of my own pre-diagnosis journey. I too was told by one doctor I was suffering from stress but was finally diagnosed with coeliac disease in 2013. Tingling fingers, chills...
  21. cristiana
    I have posted recently on this but something to add. A friend of mine told me she gets bad sores when she eats potato chips loaded with salt. I am now finding that I have the same problem if I overindulge. She has non-celiac gluten intollerance; I have celiac disease. I don't think there is any link with either but you might like to see if it is anything...
  22. cristiana
    Hi Pegleg My gastroenterologist told me (after all sorts of tests came back normal) that I might have IBS - I had the exact same Mystery Pain # 1 that you cite above. I could understand having pain before a BM but mine really majored after one - sorry, TMI - and it could continue for hours sometimes and the pain seemed also to affect my hip/sacroiliac...
  23. cristiana
    Hi Emma I just wanted to chime in to encourage you that although you may be having joint pain it may not persist. I gave up gluten in May 2013 after being diagnosed with celiac disease that April. Within months I started to get searing pain in my sacroliac joints and pain that referred to all sorts of other sites. Open Original Shared Link ...
  24. cristiana
    Hi James again. One other thought - I've just posted a similar reply on another thread. Are you eating oats? Even though the pure, uncontaminated by gluten variety are well tolerated by most celiacs a few of us (and I am one) cannot eat them and feel like I have had some gluten if I do. If you are eating them it might be one foodstuff you might...
  25. cristiana
    Hiya Kam Just one thought ... might not help with all your symptoms but might alleviate some - are you still eating oats, abeit pure oats (those that haven't been cross-contaminated by gluten?) Some celiacs have issues with a reaction to the protein avenin in oats. I was told by the NHS to give up oats 'for a few months' but when I went back to...
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