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cristiana

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Everything posted by cristiana

  1. cristiana
    Thanks so much, posterboy. My nutritionalist has also advised me to try to keep levels stable to stop neuropathy from getting worse. It was good to read your advice. Much appreciated.
  2. cristiana
    Hi Cristina Well done! So glad you are making this progress - and thank you for the update. Do keep us posted of your results. A lot of us have found that the medical profession is not aware of the neurological effects of celiac/non-celiac gluten intollerance. Here in the UK there is a lot of work going on to inform GPs and in the short time I...
  3. cristiana
    Ditto. I've been doing the same!
  4. cristiana
    I know exactly what you are talking about. I share a house with gluten eaters and I think that accounts for some cc. Also, I tend to buy the sort of food that you might find in Coeliac UK's book that does not declare it is gluten free, but they deem safe. Maybe small amounts are getting in that way. But my underlying neuro symptoms, which I think are...
  5. cristiana
    Hi again Cristina I just wanted to reemphasise what Jmg has said re: don't assume that gluten is not a problem for you, even if your blood comes back as normal. I couldn't agree more with this advice. The other thing is make sure they give you the full barrage of celiac tests. I had the full panel and my gastroenterolgist said that only one of...
  6. cristiana
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  7. cristiana
    Hi Cristina Reading your symptoms I felt I was reading about me! I don't have thyroid issues that they have ever discovered, or geographical tongue, but I have had so much of what you have gone through. I was diagnosed in the spring of 2013 but prior to that, around the time of the 2012 Olympics, I started to develop unbelievable anxiety that...
  8. cristiana
    Hola de nuevo. It depends what you are after. If you are after good value, clean hotels, we find that is usually the norm for the Premier Inn chain. We tend to use them a lot. Not luxury, but usually of a good standard. Unhelpfully I have never stayed in one in London but google 'Premier Inns London' and there seems to be a good selection. Just...
  9. cristiana
    Hola Ricardo I am very sensitive to gluten but I've never had cross-contamination problems from ASK or Franky and Benny's - both chain restaurants, most large towns will have one or the other - or both! My children love them too. Ask for the Gluten Free menus when you arrive and just make sure when you order to say your son is a Coeliac. I always...
  10. cristiana
    Sorry Lukas, meant to say , the ENT's tests were odd - things like walking blindfolded to see if I drifted to the right or left, he stuck a probe up my nose to test my Eustachian Tube or something, there was a hearing test etc. I'm not sure if any of that is relevant but I thought I'd let you know in case! Also, I had separate tests with a neurologist...
  11. cristiana
    Hi again Lukas Regarding the tests for the cotton wool under foot/walking on a rolling deck problem, I eventually went to see an Ear Nose Throat specialist. It was odd how it came about because for a while kept going back to the family doctor (what we call a GP here in the UK) and I had all sorts of in surgery tests like the hall pike maneoevure...
  12. cristiana
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  13. cristiana
    Hi Lukas Firstly Welcome to the Forum. I know others will join in but I'd just like to say if you read all my post history you would see that I have had very similar symptoms to you. I was diagnosed in 2013. Some of my symptoms I'm fairly sure are celiac related. Sometimes the answer is rather more complicated. Here are the ones that mirror...
  14. cristiana
  15. cristiana
    Yes, I imagine not having a diagnosis is difficult. A friend of mine doesn't have celiac disease (she had all the tests) but her awful neurological symptoms are now getting better as a result of a gluten free diet that she took up to keep someone else company. So it just shows how important that people who have neurological problems look into celiac disease...
  16. cristiana
    I think I need to take this all much more seriously. Strange as I have a couple of celiac friends who sail very close to the wind and don't take all these precautions and seem to be fine. Whereas I get all this odd stuff and try to tell everyone why I am being careful and they think I'm being silly. I suppose the only real way to be absolutely sure is to...
  17. cristiana
    Hello Manasota. I am truly grateful to you for taking the time to write. It is comforting to me that your eye symptoms that resembled mine passed, although it seems you have much else to deal with - I am sorry. The thing I find very difficult as a celiac is that our condition could explain so much, and yet could always be something else! Did...
  18. cristiana
    Thank you for posting your experiences. I hope others might chime in, but meantime I found this old article which gives me hope that what I have is to do with celiac disease, although I find it unnerving (excuse the pun) that it could be nerve damage and that it might get worse. My optician seems pretty unconcerned which I should be glad about but I...
  19. cristiana
    In the international room, JMG and I have been talking about the unexplained eye symptoms that we have had that we believe has been a result of gluten damage. We wanted to know if anyone has had eye symptoms which the medical profession have either diagnosed or have, you feel, mis-diagnosed. I have had aura migraines in both eyes in the past but about...
  20. cristiana
    Wilco!..... zzzzzzz
  21. cristiana
    Thank you so much for getting back to me. I don't get grey patches but eithert tiny sparkling lights in my centre vision, or sometimes what I can only describe as what looks like water on a windscreen, either in a tiny line acrross my central vision or sometimes covering a third of my central vision. It does not obscure my vision, I can still see but...
  22. cristiana
    Sorry to go slightly off piste but what is your eye issue, JMG, if you don't mind my asking? My right one isn't quite right since I got ill although I pass my eye tests and had a retinal scan an all appears well. Oh - and an MRI. I am no stranger to tests!
  23. cristiana
    Yes, well, sort of - but my pack looked like this. http://www.tesco.com/groceries/product/details/?id=293498895 Good old Tescos! But I see that like those you have posted, they are a limited production run. Maybe that is a blessing in disguise. Although you may find there are some in the shop still. We bought ours only a few days ago in Havant...
  24. cristiana
    I'd forgotten about the breathlessness and palpitations - you can add that to my list too! Yes, the hallucinations were odd and I was scared until I read about them on the internet - I searched for answers there as my young foreign neurologist had never heard of them (could have been a language problem). I think it could be related to migraines - that...
  25. cristiana
    Hi Lyndsay These are the following symptoms that I shared with you: heavy bleeding, abdominal pain and tingling throughout entire body, ibs symptoms, vertigo, joint pains in hips, heartburn, indigestion and migraines, low iron count and elevated gamma globulins - in other words, elevated liver enzymes. I also had two bad bouts of canker sores...
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