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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

tessa25

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  1. Umm, well, I think we can safely say you have celiac with those numbers. You are supposed to keep eating gluten until the endoscopy, if you choose to get one. Once you go 100% gluten free, no mess ups, those numbers should come down. After a while it'll be easy peasy. Note: I'm assuming the normal range for those numbers is less than 20.
  2. Can't help you with your questions. Make sure you keep eating gluten until all testing is done. I would recommend that you get the full celiac panel done so you can get quick answers. The full celiac panel is: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA
  3. His TTG IGG and DGP IGG are both very high. I think it would imply he's not gluten free enough. I've read that children should recover quickly once going 100% gluten free compared to adults. I'm sure the others here will give you some great ideas on how to make sure he's gluten free from now on. It's not easy.
  4. A high on any one celiac test should lead to a gastroenterologist doing an endoscopy /biopsies to confirm celiac. You have to eat gluten every day until the endoscopy has been done or you could get a false negative. Good luck!
  5. You could get a Nima sensor and go nuts testing the food she typically eats. It's possible she's getting cross contamination even though you think you're being super careful. Or maybe she's getting gluten at a friends house. If your house isn't 100% gluten-free there could still be a problem there that you that you missed. It's got to be hard to know if you're being careful without instant feedback. Good luck and welcome to the forum.
  6. Bloodwork quetion

    TTG IGA stands for tissue transglutimase IGA not Total IGA. Just to avoid misunderstandings. I believe a weak high with TTG IGA could be caused by other conditions. But even a weak high should lead to a gastroenterologist doing an endoscopy/biopsies to check for celiac. A number that is above zero but not high is normal.
  7. Bloodwork quetion

    The tests for celiac are: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA Of the tests in the above list the only one that doesn't actually test for celiac is IGA. IGA is used to tell you if you have enough antibodies to make a negative on the TTG IGA and the DGP IGA tests valid. Perhaps he should get the full celiac panel as listed above. Note you have to be on gluten for 12 weeks for celiac Blood tests.
  8. Low IGA can cause TTG IGA and DGP IGA celiac tests to show a false negative. Welcome to the forum!
  9. Can you post the ranges for each test? The numbers have no meaning without the ranges.
  10. You made the correct decision. I only eat food that's cooked in my house because I am having trouble getting my numbers down as well. When invited to somebody else's house I usually ask them what they're serving and then I make an equivalent for myself at home and bring it. That way I'm eating the same thing as everybody else. My friends love having me over because it doesn't cost them anything to feed me. :-) I purchased a Nima sensor to test the food that I eat when I try new things. Maybe one of those would help you. It's easy to ensure you don't eat gluten if all of your food is made from scratch. But it's not easy to make everything from scratch necessarily. LOL
  11. If you lived in Colorado the screening would be free. But there's only a one in 50 chance of that.
  12. SO OVER eating gluten free!

    Udis chicken florentine is a great microwave meal.
  13. SO OVER eating gluten free!

    There are great tasting gluten-free equivalents to everything that you listed. There is a gluten-free chocolate doughnut hole out there that tastes fantastic. No difference whatsoever between gluten-free and regular. Canyon bakehouse makes great tasting bread. Betty Crocker has a great gluten free chocolate cake mix so you can make your own cake.
  14. I know this will go over like a lead weight, but I've had a couple of things come up low gluten on my Nima sensor. It can detect as low as 5ppm so it's entirely possible that the items had less than the 20ppm standard. Not going to list them as it is most likely <20ppm based on ingredients.