Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Celiac!

JoanneP

By JoanneP
in Meet Up Room

Recommended Posts

JoanneP Newbie
JoanneP
Posted

Hello!

I was just diagnosed with Celiac about 6 weeks ago (I'm 50).  Feeling a tad overwhelmed.  I think I have a grasp on it, and then I realize I really don't have a clue!  (Example:  My husband and I were in Florida a week ago and I broke out in a rash.  Long story short, I realized sunscreen has gluten! ugh...).  What is so frustrating/confusing to me is finding real accurate information about miscellaneous products that may/may not contain gluten.  Make up?  Moisturizers?  I downloaded a gluten-free app to scan products, but so far, most things I scan come up "product bar code not known".  I use Oil of Olay facial moisturizer and I can't seem to find a definitive answer on whether it's gluten-free???  Is there an app or a website out there that is current and accurate?  So many times when I google something, I get articles from at least ten years ago.  Did I mention I'm feeling overwhelmed???

ANY information would be SO appreciated!!!!

Thanks!

Joanne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Welcome to the forum Joanne,

I am sorry I can't help with the skin products question.  Being a man I don't use such things myself.  But I know they have been discussed on the forum many times before so maybe a helpful person will come along soon with info.

Basic info regarding starting the gluten-free diet for you though:

Try to stick to whole foods cooked at home for several months at least.  No eating out at friends or restaurants.

You may find it helpful to stop all dairy for a few months also.

Oats are a problem for some of us as well as wheat, rye and barley  So it might be good to avoid oats also.

Your rash could be DH (dermatitis herpetiformis), which is a an itchy skin rash only people with celiac get.

Sometimes people starting the gluten-free diet think they will recover in a couple weeks.  But it is more common for recovery to take months or years.

It would be wise to have your doctor check your vitamin and mineral levels for deficiencies.

tessa25 Rising Star
tessa25
Posted

I used to use Oil of Olay sensitive skin, but when I got a Nima Sensor it tested positive for gluten and I switched to Jergens Daily moisture fragrance free.

Nima isn't meant for testing non food products, but I can't take the risk.

 

cyclinglady Grand Master
cyclinglady
Posted

While a Celiac reaction requires actual consumption of gluten, I take no risks.  Sunscreen might melt into my mouth a long bike trip or I could bite a nail.  

I use CeraVe lotion for my face.  In winter, I use their heavier cream.  I also use the Equate “CeraVe” version by Walmart which is made in Canada.  I use a lot of sunscreen.  I buy Equate which does not contain gluten, is recommended by Consumer reports and is inexpensive.  Do not use CeraVe sunscreen.  For some reason they changed their formula (they must have changed suppliers).   I also use plain Vaseline Intensive care lotion (white bottle)  around the house.  Eucerin Daily SPF 15 is good too for facial sunscreen.  

Google a list of gluten ingredients.  Keep it on your phone or a paper copy with you.  Soon you will have the list memorized.  Here is one example:

https://celiac.org/gluten-free-living/what-is-gluten/sources-of-gluten/

Trisha Thompson is a dietitian who has celiac disease.  She is also “the Gluten Free Watchdog” which is like subscribing to Consumer Reports.  I highly recommend a subscription.  She tests products!  Here is an article she wrote on cosmetics:

https://jandonline.org/article/S2212-2672(12)01203-8/abstract

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,498
    • Most Online (within 30 mins)
      7,748
    Nicole71
    Newest Member
    Nicole71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Art Maltman
      My 5 months of Struggle

      By Art Maltman · Posted

      I did a test already not exactly sure if it was the right one the doctor I went to at first refused to give me the test but i evantail convinced him but he wasnt exactly sure what test to do. I didn't eat gluten on sunduy monday tuesday and i had the test on thursday. Is it possible the test will still be accuret
    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!
    • knitty kitty
      A year and a half of test confusion...

      By knitty kitty · Posted

      Since you're having a last hurrah with gluten, request another round of blood tests for celiac antibodies.  Make sure you're eating ten grams or more daily for those few weeks before your capsule endoscopy.  You probably weren't eating a sufficient amount of gluten needed to provoke sufficient antibody production.   
    • cristiana
      Christmas Cake

      By cristiana · Posted

      Hello all I am taking some time out from work today to make my annual Christmas cake along the lines of a tried and tested English recipe which means a fruit cake, with marzipan  and icing.   As usual, I've left it too late - we're meant to bake these things some time  in advance to improve the flavour.    I never remember.  But it never seems to matter! I thought I'd share it in case any UK coeliacs still haven't made theirs and don't have a recipe, or any of my friends across the Pond want to try making one.  Do you make iced fruit cakes like this in the US for Christmas? - I have no idea! I adapt it slightly as instead of fondant icing I make Royal Icing which sets hard and you can create exciting snow scenes with it if you can find any tiny model houses, churches and trees to put on it!  (my Mum used to do this).   https://www.coeliac.org.uk/information-and-support/your-gluten-free-hub/home-of-gluten-free-recipes/1511804/ With thanks to the charity Coeliac Uk for this recipe. Cristiana  
    • trents
      My 5 months of Struggle

      By trents · Posted

      Welcome to the forum, @Art Maltman! Ask your physician to order serum antibody tests specifically designed to detect celiac disease. That's the place to start but you shouldn't be on a gluten free diet some weeks before the blood draw. You certainly have some symptoms that are characteristic of celiac disease and you have a first degree relative that has celiac disease. So, I think this would be an appropriate request to bring to your physician. Here is an article outlining the various serum antibody tests that can be ordered when checking for celiac disease:   The physician may not be open to ordering a full panel but push for at least these two: total IGA and tTG-IGA. By the way, absence of gut pain is very common in the celiac population. We call them "silent" celiacs as they have no or very minor symptoms. There are over 200 symptoms and spinoff health issues that have become associated with celiac disease and the range of symptoms and effects produced by the disease in different individuals various tremendously. 
×
×
  • Create New...