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cristiana

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Everything posted by cristiana

  1. cristiana
    Kittylover - sorry you haven't got the answers yet but that is great news about Dr Fasano. I hope you get the answers you are after then. I do sympathise as for me my continuing neuro issues are amongst my most vexing symptoms although yesterday I suddenly realised that the tingling I have been experiencing on and off since DX in my left calf has finally...
  2. cristiana
    Hi Ashley Firstly, welcome to the forum. Sympathies too - I too have gained weight - I am now 14 pounds more than I was at diagnosis two years ago and if things carry on, well who knows. I am still just within the healthy BMI but compared with my weight two years ago I feel bigger than I should be, esp. as long before my DX and two pregnancies...
  3. cristiana
    You might have something called ulnar compression - my hands and fingers are sometimes numb when I wake up (plus tingle during the day sometimes). The nerve conduction study will find that out for you. I go through periods of patches of tingling on my arm, face and legs and stress seems to set it off. I am sure it is either deficiency or too much of one...
  4. cristiana
    Hi tpchan I am afraid I don't understand all these different tests but I do know that a lot of UK GPs have been sent info on this site - see link. Open Original Shared Link If it suggests any tests that you haven't had, it might be worth showing to a doctor and having another try. But maybe you are looking for tests outside the NICE recommendations...
  5. cristiana
    My friend's daughter has a gluten intolerance and had someone make her a croquembouche for her wedding, which I understand is often used as a wedding cake in France. I have never tried cooking choux pastry with gluten-free flour but found it easy with normal flour. Maybe something to try!
  6. cristiana
    Poor you - I hope you are feeling better soon. I don't know any flight attendants personally with celiac disease but there was a case in the British press once when one was glutened. I think BA will be taking things more seriously from now on! Open Original Shared Link
  7. cristiana
    I found this from Coeliac UK - we add an 'o' in the UK and I am still not sure why! It doesn't seem necessary! Open Original Shared Link My own nutritionalist said it was worth waiting 6-12 months after taking up gluten free diet so that when oats are introduced it will be obvious if there are problems. It will also have given your tummy time to...
  8. cristiana
    I got really sick before I was diagnosed with celiac disease two years ago. I never want to feel like that again! That has made me so very resolute - unlike a friend of mine, who takes quite a lot of risks, but she was never as ill as I was. I worry about her as I feel that she is courting danger with her lax attitude. I do wonder if I had never been...
  9. cristiana
    It must be very frustrating. I really hope you can get the injections soon - in the meantime, I gather orange juice with the tablets might help with the take up. Might be worth a try.
  10. cristiana
    Hi again Kerrygirl. I have been told that iron anemia can be responsible for hair loss. I certainly lost a lot when I was anemic, I got quite a shock when I saw how much I had lost. It has got better - although I never had the thickest hair in the first place, but definitely, there has been an improvement.
  11. cristiana
    Mari&me - in response to your B12 question, again, that is something that can be assessed with a specific B12 blood test. My B12 was low on Dx, but I think I have a continuing problem as I get prolonged pins and needles and I start taking B12 sublinguals with large doses and this really seems to help. Reading mrsrag's comment about gluten-free oatmeal...
  12. cristiana
    Not sure...
  13. cristiana
    Welcome to the Forum. When I was first found to be anemic it was blamed on the usual women's issues rather than celiac disease. How old is your daughter? Did your doctor actually provide the latest iron and B12 readings from the lab - wondered if you could share them?
  14. cristiana
    I'm sorry as I haven't got the time to read your previous posts just now but I am wondering if your son has a dairy intolerance? I think I read somewhere that that can cause pale, yellow stools. Worth discussing with your doctor.
  15. cristiana
    Colleen - and I thought you were winking at me! Haha! Just out of interest, neural symptoms... aside Ataxia, which is a whole subject on its own, and vitamin/mineral deficiencies, why do we get neuro symptoms? Does the gluten actually cause demyelination or inflammation or what? Just wondering if anyone knows?
  16. cristiana
    Hi Colleen...I',m very interested in what you are saying. Around the time of my DX I had what felt like twitching in my face. I was stressed at that time and suffering from all sorts of deficiencies, including iron. A close relative actually suffers from a twitch in his left eye area which sometimes causes one side of his face to contort. He is...
  17. cristiana
    Thanks CarC - that is interesting and I think would tie in. Colleen - I have no excuse, really, as I have (since recovery) put on ten pounds so should be cutting back. Next time I shall use that excuse rather than the, "Are you sure that is a gluten free biscuit?" - as we call cookies in the UK- as my reason not to eat it. It did taste nice though......
  18. cristiana
    I think I must accept that two years after giving up gluten some of my tingles and buzzes are here to stay. However, someone offered me a gluten free cookie the other day which was, alas, nothing of the sort. About two days latter my face was twitching and buzzing. Now it feels stiff but now my tongue feels slightly tingly. Does anyone know how long...
  19. cristiana
    Thanks Colleen! In the UK we use an oil derived from the linseed plant for conditioning cricket bats, our national 'bat and ball' game. Perhaps it should be better reserved for something along those lines...
  20. cristiana
    Does anyone here use Flaxseed Oil? In my search for good oils to help my buzzing nerves I thought I would give some a try. However, I had some this afternoon and whether it was related to a delayed reaction to glutening a week ago or just because it or something else disagreed with my I now have stomach ache. Should we seek out gluten-free Flaxseed Oil...
  21. cristiana
    Colleen - thanks so much for thinking to post this here. It is very helpful.
  22. cristiana
    Hi CurrantCottage Love your user name! Just to say that I was taking iron tablets prescribed by my GP when I was referred to my BUPA gastroenterologist as I was recovering from iron anemia - and he (the gastroenterologist) told me post diagnosis to keep taking them, too. I was taking something called ferrous gluconate. Do check with your GP...
  23. cristiana
    I had some pain, in the groin area and a bit further up, I think where you are referring to, but on the left side. My doctor sent me for an ultrasound scan just to check ovaries etc - all OK. I mentioned to the doctor who did the scan that the pain seemed worse when I moved. She thought it might be mechanical. I am going to put this past my gastroenteroligist...
  24. cristiana
    Colleen - thank you so much for that reply, I find it v. reassuring. Looking back the latest stuff came along with some stressful hospital tests, a new job and a nasty virus. You have really helped me. xx
  25. cristiana
    This quesiton is for anyone who has recovered from neurological symptoms. I often read on celiac posts online that neuro symptoms are often the last to clear up. I am trying my hardest to stay clear of gluten but the neuro problems persist, two years gluten-free. They almost seem to disappear, then start off again. Same things - buzzy ankle, tingling...
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