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cristiana

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Everything posted by cristiana

  1. cristiana
    I'm just wondering - aren't there other B vitamins deficiencies that can cause tingling? Or too much can also cause tingling - see this about B6? Open Original Shared Link I know a couple of people who have to have B12 injections several times a year as they have pernicious anemia.
  2. cristiana
    Those are the ones that are typically affected in celiacs. I am sure others will chime in.
  3. cristiana
    Hi Amina Can you tell us which liver readings went up by 60 points? What I can tell you is Liver Function Tests aka Liver Enzyme Test results can be skewed in celiacs, from what I understand. One of my own readings was out of range and is within normal range now. I totally understand your anxiety, but try to not to panic. Easily said, because...
  4. cristiana
    Hi Ender Yes, a stitch in time saves nine as we say here - maybe you do in the States. My cousin is a medical rep and says the billions that could be saved if money was spent trying to catch things before they became big problems.... I think I would be more proactive in trying to find the reason for all this myself if it weren't for the fact that...
  5. cristiana
    Hi Ender When I was diagnosed with celiac disease I had terrible tingling and buzzing going on in my extremities, particularly in my left foot. It very gradually got better after sticking to a gluten free diet but also supplementation - iron (ferritin); B12 (sublingual methylcobalamin) and vitamin D. I would get those levels checked if I were you...
  6. cristiana
    Perhaps a bit too early to be talking about this as we are scarcely half way through November, but my mother told me that the big UK supermarket chain are running a big advertising campaign for a gluten free Christmas on TV and I found it here on youtube. I was really pleased to see that they are offering a gluten free Christmas cake in their range as...
  7. cristiana
    Bienvenue - and my sympathies. I love France but have only visited it once since my coeliac diagnosis and it was as difficult as you say, although I did find a few products in a really huge supermarket in Normandy but that was just before we left. I was really suffering with neuropathy when we made that trip. We were in Bayeux one day and I was...
  8. cristiana
    Girls, thanks so much for your replies. And the hugs! I think I ought to print your advice out to pursue the thyroid question with my doctor once I know how the scan goes. Wow - anemic for 20 years? That is dreadful. I have just received some Floradix in the post, a German iron supplement that one can add to OJ and hopefully it will be easier...
  9. cristiana
    Okay - as expected my iron has taken a dive (from 41 to 20). I imagine what I am going through has a lot to do with this, plus the fact that I have ceased supplementation over a year ago. Cyclinglady - is it common practice for celiacs to have to routinely resort to supplementation? I have been gluten-free since May 2013 and ceased iron tablets about...
  10. cristiana
    Hi cyclinglady - thank you so much. This month has been awful, worst ever, and yet other months are fine. I can't help thinking my thyroid is playing up and could be behind all of this. I guess I will need to ask for more thyroid tests if my scan doesn't reveal anything.
  11. cristiana
    Like many of you I had anemia at dx. With various tablets and including red meat in my diet things improved and last reading, over a year ago, I had reached 41 on the scale. I have had to stop taking the tablets as increasingly they disagreed with me and my readings were going up without them. However, approaching the menopause with episodes of menorrhagia...
  12. cristiana
    Do you have problems with you sacroiliac joint? It could be that. Open Original Shared Link Periodically I get something similar except in my case it is not warmth but the feeling that my hip is on fire, and it refers down my thigh. It was bad last night but having rested it is good again. In my case it is, I think, made worse by certain exercises and...
  13. cristiana
    If you can bear to eat them, tins of sardines and bags of nuts are good portable source of protein. On a recent trip to Scotland I discovered the supermarket over the road made some nice bowls of salad, ready to eat, so I didn't go hungry and in fact it would have been a very healthy diet had I not discovered they also sold excellent gluten-free Scottish...
  14. cristiana
    I have relapses and apart from small amounts of gluten I am seeing that even pure oats are really a problem for me (I think this is the case in about 10 per cent of celiacs?). I had some several weeks ago and have had a burning stomach and C ever since(not D, which is what I had at DX) but I also find that things I normally eat without problems will cause...
  15. cristiana
    Thanks so much for posting thread. It seems to me there could be a need for manufacturers to note that they are Oat Free, along the ever-growing list of symbols! I am too now experiencing bad headaches, something I thought I had left behind. Yuck!
  16. cristiana
    I shall be following the subject with great interest. Re: symptoms I have a lot of tingles, twinges and buzzes - some days with this electricity I am sure if they wired me up I could power the Christmas Lights in London's Regent Street. I have had all sorts of tests since DX including diabetes, MRIs, thyroid. Apart from a DX of ulnar compression I have...
  17. cristiana
    Thank you so much! I am definitely going to look into this. Since going gluten-free I have been increasingly reliant on products that probably share lines with oats but have never given it a thought! The gut pain I have gone through the two or three times I have eaten pure oats since DX lasts a long while so what on earth made me eat them again the other...
  18. cristiana
    I have just tried certified gluten-free pure oats again. I last tried them in November and had a burning sensation in my gut for some weeks so did not want to eat them for a while before trying again. So I had hoped now I am nearly two and a half years into the gluten-free journey I might be able to eat them again but I am in pain, yet again ,so have decided...
  19. cristiana
    Hi again Felix. I am sorry, I missed the bit about diabetes. I have a couple of other thoughts but I am not sure if they would be OK for a diabetic so forgive me if I'm not suggesting stuff you can eat. My grandmother often suffered from consitpation and I noticed that whereas we all had a cup of tea first thing in the morning she would have a cup of boling...
  20. cristiana
    Hi Felix When one adds fibre to the diet, which I am sure you are doing, it is also important to add extra liquid. A drink that might be worth trying is a cold glass of orange juice first thing - my daughter's teacher recommended it -and that seemed to help when she had similar problems. A really good gluten free probiotic might help. Walking a reasonable...
  21. cristiana
    And a couple of other things... A friend of mine was told to eat a banana and a handful of walnuts when anxiety strikes by a very well qualified nutritionalist. Something to do with serotonin - I really cannot remember, but she says it helps. Worth a try. Also, I found it is good to steer clear of caffeine and also avoid sugar highs and lows. ...
  22. cristiana
    The first of cascade of symptoms that eventually led to my diagnosis was extreme anxiety. I was having a lovely summer with my family, all was good in the world, yet I would wake up in the middle of the night feeling so charged with anxiety that I thought I too was going to take an exam - or make a speech to hundreds of people. I had racing thoughts and...
  23. cristiana
    While you are waiting for testing perhaps try peppermint tea and take some probiotics - both measures really helped with the trapped wind. Also exercise.
  24. cristiana
    Hi Victor and welcome When I finally got gastro symptoms I had that same burning sensation and suddenly dairy products were giving me D (although at the time I didn't dream it was celiac disease). I always considered that I had a nervous stomach but just didn't put all these things together. I think it is great you are seeing the doctor Thursday...
  25. cristiana
    So true about the bananas - a dear friend who qualified as a nurse here in the UK in the 1940s said that in Britain during WWII any bananas that made it through the maritime blockades were given to tiny children with stomach problems! As for the rest of the population, they had to do without, so much so that some children didn't even know what they looked...
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