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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    People can be very insensitive. However, a situation I find almost more difficult is well-meaning people preparing something for me, going to a huge amount of trouble on my behalf, only to discover that what they have cooked/bought still has gluten in it. I am getting to the stage where I just feel it is easier to always have my own treats/snacks on standby...
  2. cristiana
    I only developed 'classic' celiac symptoms (D) about two months before my diagnosis. Before that time, I was suffering from fatigue, anemia, migraines and what I would describe as a nervous stomach (sometimes played up but not always)... but no doctor put two and two together. My own GP told me recently that a young man came in to see her with anemia ...
  3. cristiana
    I have a feeling that the very high percentage cocoa bars might be gluten free but make sure you check the labels. But those aren't the ones I really like, the Lindor chocolate is what sets it apart from the others....
  4. cristiana
    That's great to hear, Gemini! Thanks so much again.
  5. cristiana
    Those look just right. I don't see that they sell them in the UK yet but usually good ideas catch on fast! Thanks so much.
  6. cristiana
    Anyone know a chocolate manufacturer that actually does a good gluten-free impersonation of Lindt Lindor bonbons with that melty chocolate inside? I haven't found one yet.
  7. cristiana
    Me too. Lindt, are you listening? Can you use something else?! Please!
  8. cristiana
    Gemini - also wanted to thank you for being so nice about British food. Having lived abroad, including France, I know we haven't had the best reputation for restaurant food in the past. But I truly think that things have improved immensely in the last 20 years - it is still possible to have a bad meal,of course, but that is possible anywhere! Thanks again...
  9. cristiana
    This is potentially very good news. The other day I went into the tiniest independently owned cafe in my home town and the cafe owner produced a file of ingredients. She had simply photocopied the label of the chocolate powder that she was using in the hot chocolate but this was so helpful. I went to Ikea in Southampton and again found a very helpful...
  10. cristiana
    Egger - funny you should say that a about a week ago I increased my consumption of cheese because there wasn't much else to eat - I don't plan well when I shop - and I got C and a bit of lower abdominal pain.
  11. cristiana
    To add to cyclinglady's questions, have you had antibiotics over the last few months, as this may have reduced the amount of good bacteria in your gut? In that case you may find taking some powerful probiotics helpful. I definitely had lactose intollerance at DX although could manage small amounts of hard cheese. A year on from DX, when I was introducing...
  12. cristiana
    What a shame! My jar, not old, reads: Ingredients: Yeast extract, Salt, Vegetable Extract, Niacin, Thiamin, Spice Extracts (Contains Celery), Riboflavin, Folic Acid, Vitamin B12. Expires Feb 16. My friend says that the ingredients haven't changed in all these years so it is interesting how gluten ingredients can sneak in undetected, and for...
  13. cristiana
    For any British Coeliacs who like Marmite, a friend told me last night I should not be eating it. I found this on the web today. Thought I should share it as my old Marmite jar has no warnings. Open Original Shared Link
  14. cristiana
    Hi Marie I'm wondering if you might also have some nerve entrapment? I read somewhere that celiacs are prone to carpal tunnel etc. I was diagnosed with ulnar nerve entrapment earlier this year. I have had pins and needles and numbness but I admit it tends to be there mostly when I wake up and wears off. I have buzzing in my left foot and up my calf...
  15. cristiana
    Hello - thanks so much, both. Yes ravenwoodglass - certified gluten-free oats. I might try to stay away from them until at least February, after my next blood test. As you say, heatman, at least they are easy to avoid than other stuff. I have been really shaken by this reaction, if indeed that is what it is - worse than the last time I had gluten by...
  16. cristiana
    Hello All I realise that most celiacs can tolerate pure oats but I wondered for those of you that can't (apparently 10% of us?) what your symptoms are. I am trying to figure out if that is what is wrong with me at the moment. Having consciously avoided oats since my diagnosis I ate about 100g in two days last weekend and initially I had terrible abdominal...
  17. cristiana
    I know... me too. And flapjack - if you have that in the States? It is difficult to know whether we have this problem with avenin or whether our stomachs are still sore.
  18. cristiana
    Hello I am living in the UK and we are about to celebrate "St Andrew's Day" the Scottish way with a gluten free haggis. Having at first not been able to go near an oat since diagnosis I have noticed in recent months the odd oat biscuit seems to be OK although this week I am noticing I have discomfort in my stomach, and a sort of general soreness in my...
  19. cristiana
    Hi Peg My sympathies - I have had dreadful anxiety that was bad just before diagnosis, then as my iron and B12 levels normalised it was much better. Personally, I am very grateful I found the book by Paul David and would recommend it to anyone with anxiety. You may want to read his blog first just to see the approach he takes but as far as I can make...
  20. cristiana
    Brilliant news nikkijayne. Your doctor sounds fab. All I can say is make the most of eating all those things you think you will miss once you go gluten-free. In the run up to my endoscopy I had Weetabix for breakfast, McVities Penguins, the works.... and interestingly with all that, the most incredible headaches! A tense pain in the centre of the forehead...
  21. cristiana
    nikkijayne and oukethelousa Hello both. I have just found a really helpful resource that might interest you. I have also posted it under a separate topic, "Think Coeliac" in the International Room. It seems that 36% of celiac disease patients are currently incorrectly diagosed with IBS. It also lists all the tests advised under the National Institute...
  22. cristiana
    My sister recently made me aware of the "Think Coeliac" resource that was posted to my brother-in-law's inbox (he is a GP) and I thought it might be of use to any British visitors to this site who are looking into how to get tested, symptoms, statistics pertinent the UK, etc, etc. Hope it helps. Open Original Shared Link PS It reveals that...
  23. cristiana
    Sorry - I have just re-read your post and missed that before your problems have been dismissed as IBS. That is more difficult. However, it may just be worth demanding one (in as nice a way as possible!). I just feel that the climate here is changing a bit, perhaps even since you last went in about your IBS, and doctors are being encouraged to "think...
  24. cristiana
    Hi nikkijayne Welcome to the forum and to the two different spellings of celiac/coeliac. I will go with the British version today! My symptoms were not all gastric. Looking back there were various weird neurological things happening and my 'nervous stomach' which only played up now and again I thought was perhaps just a touch of IBS. Eventually...
  25. cristiana
    Don't worry about that sort of TMI on this site ! I am no doctor but in my own case the fissure healed very quickly. Literally loads of bright red blood in the toilet bowl one week, none the next, once I realised that the iron was really excacerbating this D and had greatly lowered the dosage. Whether a fissure would cause a scar visible by a camera...
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