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Latest Celiac Disease News & Research:
Everything posted by cristiana
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Hi everyone I have just been chatting with a friend from this site and we thought it would be good to post this question. I have always been a little bit anxious about my health but when I fell ill with celiac disease my blood tests revealed that I had elevated blood protein (gamma globulins) and anemia and for a while my doctor was wondering if...
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Hi Celiac Ninja Anxiety was a huge problem for me before I was diagnosed, horrid - and so totally different from just being an anxious type of person, which I would say is just my personality type. What helped was my lovely doctor getting my Ferritin normal, B12 levels normal. Then of course getting off gluten when they finally found out what was wrong...
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ARCHIVED Repeated Accidental Glutening Effects?! How Long Does This Last?!
cristiana replied to lmj623's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
elless, glad you brought this topic up again as two weeks down the line from glutening caused by half a very small bar of chocolate and some crumbs, and the terribly bad idea of taking several NSAIDS to help with a painful joint probably causing damage in itself, I feel I am back to square one with discomfort. Then today I happened to meet my nutritionalist... -
ARCHIVED Low Ferritin
cristiana replied to bridee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mine went up by over 10 points, I think it was, in three months, through supplementation before they knew I was coeliac. I was taking some really heavy duty iron though. I would agree with kareng - if the damage is patchy, some will still go in. -
ARCHIVED Opinions On List Of Symptoms?
cristiana replied to cardarlinow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Apart from the skin bumps and GERD, I could be reading my list of symptoms, with perhaps a variation of the skin pain you mention in that for seven months now I have itchy nerve pain which at times affects the feeling of my skin on the left side of the torso, around ribs and also above the hip, like there is a rash there, but there isn't. At times it is... -
ARCHIVED First Aid For Cramping And Indigestion Pain After Taking Nsaid
cristiana replied to cristiana's topic in Related Issues & Disorders
My husband will love the commercial, his type of humour! He is British but always reckoned he'd like living in a place like that. Thanks for the tip about trapped wind too, I have a new pain to the left of my abdomen above my hip which I get if I eat dairy and the peppermint tea thing seems to really work. I think you are right about the antacids, they... -
ARCHIVED Has Anyone Had This?
cristiana replied to shadowicewolf's topic in Related Issues & Disorders
I am afraid I don't know what the symptoms are for an excess of those vitamins. I wonder if anyone else reading this can help? I do know that sometimes if I take B12 too late in the day it does make me feel very alert, I can't sleep. Maybe jittery would describe it, esp. if I have also had a lot of caffeine! Definitely start on the D vitamin, that's... -
ARCHIVED Has Anyone Had This?
cristiana replied to shadowicewolf's topic in Related Issues & Disorders
The air bed thing, yes, I would say I had that for six months last year. I could also compare it at times as if I were walking on board a heaving deck on board ship. My legs and arms felt distant and disconnected at times, although they worked perfectly well. I really thought I might have ataxia. I kept going to the doctors who said it was probably anxiety... -
ARCHIVED First Aid For Cramping And Indigestion Pain After Taking Nsaid
cristiana replied to cristiana's topic in Related Issues & Disorders
Thanks so much GFinDC for all of this, you have been extremely helpful. Boots the Chemist are in almost every town including ours so if things don't get better I can buy some easily. I have looked at the product online and recognise the packaging so I bet they do stock it. My sister who isn't a celiac told me yesterday that she took two Neurofen a... -
ARCHIVED Oral Nsaids - Are They Safe For Celiacs?
cristiana replied to cristiana's topic in Coping with Celiac Disease
Sounds like we've been thinking along the same lines, icelandgirl. But I bet you are a great mom (or mum as we would say in the UK) anyway. -
ARCHIVED Oral Nsaids - Are They Safe For Celiacs?
cristiana replied to cristiana's topic in Coping with Celiac Disease
I so understand what you mean about children. My husband cheered me up this evening though. As I was sitting on the sofa feeling sorry for myself, complaining that our children will remember their mother as 'always feeling ill', he replied, 'Well at least they won't remember you for nagging them to tidy up all the time' which is true because for simply... -
ARCHIVED First Aid For Cramping And Indigestion Pain After Taking Nsaid
cristiana replied to cristiana's topic in Related Issues & Disorders
The mind is powerful and I wish I could switch it from negative to positive mode. I was just reading the other day how depression can make aches and pains much worse and I suddenly realised I have got so bogged down with feeling ill and imaginging the worst that perhaps that in itself is creating a vicious cycle. I shall look out this L-glutamine esp.... -
ARCHIVED Oral Nsaids - Are They Safe For Celiacs?
cristiana replied to cristiana's topic in Coping with Celiac Disease
icelandgirl - wouldn't it be great if in a few months time we were feeling better! I think one of the things that has got to me is the fact that the consultant treating me, a lovely fellow, said to me that when I adopted the gluten-free diet I would feel so much better. I had such high hopes! I was so glad - I thought without gluten it would all come... -
ARCHIVED First Aid For Cramping And Indigestion Pain After Taking Nsaid
cristiana replied to cristiana's topic in Related Issues & Disorders
Love it - arsenal! You are so right. When I open the cupboard I have to be careful that all the bottles of supplements don't fall out and hit me on the head! -
ARCHIVED First Aid For Cramping And Indigestion Pain After Taking Nsaid
cristiana replied to cristiana's topic in Related Issues & Disorders
Thanks cyclinglady and GFinDC. I think part of the problem is that I can't be at home much at the moment as it is the school holidays and yesterday I think I left too long between meals and when I did eat, it was gluten-free but rather fatty food. So I shall go equipped with lots of water and eat some bland stuff today. GFinDC, that is really interesting... -
ARCHIVED First Aid For Cramping And Indigestion Pain After Taking Nsaid
cristiana posted a topic in Related Issues & Disorders
I thought I should create a separate topic following on from my discovery that taking just a few NSAIDS over a about a week has caused gastro symptoms, probably worsened by the fact that I was glutened around the same time as taking the tablets. Cramps and indigestion, a sort of burning just under my ribs, these are the symptoms which seem to get worse during... -
ARCHIVED Oral Nsaids - Are They Safe For Celiacs?
cristiana replied to cristiana's topic in Coping with Celiac Disease
Hi cyclinglady - well done for finding the reason for the twinges. I am not 100% sure yet that it was the NSAIDs in my own case or accidental glutening, perhaps the two went hand in hand to cause the problem. Just hope it goes away soon, there's always something, I would love a day when I wasn't trying to figure out why I felt 'off'! -
ARCHIVED Oral Nsaids - Are They Safe For Celiacs?
cristiana replied to cristiana's topic in Coping with Celiac Disease
Thanks so much everyone. V. interesting links nvsom. I have decided that my journey with NSAIDs ends here! I wonder if anyone else has had the experience of it setting off their gut problems in the first place, like me. I foolishy thought that as a recovering celiac, many months on from giving up gluten, I would be able to cope with taking them again... -
ARCHIVED Oral Nsaids - Are They Safe For Celiacs?
cristiana posted a topic in Coping with Celiac Disease
Hi everyone I have been suffering from gastro pain these last few days - accidental glutening I thought. But then I wondered, I have been taking NSAIDs (a brand called Nurofen here in the UK) because I have inflammation of the sacroiliac joint and wondered could the real cause of this gastro pain be the anti-inflammatory medication? I have just remembered... -
I was glutened albeit in small amounts twice in the last two weeks. Yesterday I had a potato salad and an iced lolly at the local swimming pool - we don't usually get much hot weather here in England during the summer months so one has to make the most of it! - and I felt queasy within half an hour of eating, really like the bad old days just prior to my...
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ARCHIVED Learning How To Eat Again
cristiana replied to hiketheAT's topic in Coping with Celiac Disease
Are you finding that you are able to tolerate dairy? If so, that's great, but if you are having issues with dairy (this may well just be temporary) my nutritionalist said it was important to get calcium from somewhere else and has encouraged me to eat tinned sardines which fortunately I have acquired more of a taste for! Eggs are good too for providing... -
ARCHIVED Question: Sudden Dizziness, Possible Trace Exposure From Goya Beans?
cristiana replied to Chaff's topic in Super Sensitive People
I just wanted to say that I had sudden vertigo last summer and for months was quite sure I was being glutened, but despite being strict could not find out what was causing it. It came on suddenly, my limbs felt distant and disjointed, it was a weird feeling, and I felt that I was continuously walking on board a ship at sea. I thought I must be suffering... -
This new setback has made me look at things again, I was really really strict at the beginning as I kept having blood test results with slightly elevated gamma globulins but the electrphoresis tests didn't show any spikes, just diffuse inflammation. Thankfully the blood straightened out nicely when I went gluten free and I thought, well, I have this under...
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ARCHIVED When To Give Up On Symptoms Improving On The gluten-free Diet?
cristiana replied to nvsmom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well said, icelandgirl. I hope things do get better for you Nicole and what encouraging responses for those of us whose health issues persist, I think there are quite a few of us out here. Thank you all for sharing. -
Total sense - a 'lightbulb moment' in fact! Thank you so much. I am definitely not going to eat out until this joint is better because I am sure that has been the cause of my most recent CC and I have started washing my hands properly every time I make my children's toast.