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cristiana

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Everything posted by cristiana

  1. cristiana
    To add to cyclinglady's questions, have you had antibiotics over the last few months, as this may have reduced the amount of good bacteria in your gut? In that case you may find taking some powerful probiotics helpful. I definitely had lactose intollerance at DX although could manage small amounts of hard cheese. A year on from DX, when I was introducing...
  2. cristiana
    What a shame! My jar, not old, reads: Ingredients: Yeast extract, Salt, Vegetable Extract, Niacin, Thiamin, Spice Extracts (Contains Celery), Riboflavin, Folic Acid, Vitamin B12. Expires Feb 16. My friend says that the ingredients haven't changed in all these years so it is interesting how gluten ingredients can sneak in undetected, and for...
  3. cristiana
    For any British Coeliacs who like Marmite, a friend told me last night I should not be eating it. I found this on the web today. Thought I should share it as my old Marmite jar has no warnings. Open Original Shared Link
  4. cristiana
    Hi Marie I'm wondering if you might also have some nerve entrapment? I read somewhere that celiacs are prone to carpal tunnel etc. I was diagnosed with ulnar nerve entrapment earlier this year. I have had pins and needles and numbness but I admit it tends to be there mostly when I wake up and wears off. I have buzzing in my left foot and up my calf...
  5. cristiana
    Hello - thanks so much, both. Yes ravenwoodglass - certified gluten-free oats. I might try to stay away from them until at least February, after my next blood test. As you say, heatman, at least they are easy to avoid than other stuff. I have been really shaken by this reaction, if indeed that is what it is - worse than the last time I had gluten by...
  6. cristiana
    Hello All I realise that most celiacs can tolerate pure oats but I wondered for those of you that can't (apparently 10% of us?) what your symptoms are. I am trying to figure out if that is what is wrong with me at the moment. Having consciously avoided oats since my diagnosis I ate about 100g in two days last weekend and initially I had terrible abdominal...
  7. cristiana
    I know... me too. And flapjack - if you have that in the States? It is difficult to know whether we have this problem with avenin or whether our stomachs are still sore.
  8. cristiana
    Hello I am living in the UK and we are about to celebrate "St Andrew's Day" the Scottish way with a gluten free haggis. Having at first not been able to go near an oat since diagnosis I have noticed in recent months the odd oat biscuit seems to be OK although this week I am noticing I have discomfort in my stomach, and a sort of general soreness in my...
  9. cristiana
    Hi Peg My sympathies - I have had dreadful anxiety that was bad just before diagnosis, then as my iron and B12 levels normalised it was much better. Personally, I am very grateful I found the book by Paul David and would recommend it to anyone with anxiety. You may want to read his blog first just to see the approach he takes but as far as I can make...
  10. cristiana
    Brilliant news nikkijayne. Your doctor sounds fab. All I can say is make the most of eating all those things you think you will miss once you go gluten-free. In the run up to my endoscopy I had Weetabix for breakfast, McVities Penguins, the works.... and interestingly with all that, the most incredible headaches! A tense pain in the centre of the forehead...
  11. cristiana
    nikkijayne and oukethelousa Hello both. I have just found a really helpful resource that might interest you. I have also posted it under a separate topic, "Think Coeliac" in the International Room. It seems that 36% of celiac disease patients are currently incorrectly diagosed with IBS. It also lists all the tests advised under the National Institute...
  12. cristiana
    My sister recently made me aware of the "Think Coeliac" resource that was posted to my brother-in-law's inbox (he is a GP) and I thought it might be of use to any British visitors to this site who are looking into how to get tested, symptoms, statistics pertinent the UK, etc, etc. Hope it helps. Open Original Shared Link PS It reveals that...
  13. cristiana
    Sorry - I have just re-read your post and missed that before your problems have been dismissed as IBS. That is more difficult. However, it may just be worth demanding one (in as nice a way as possible!). I just feel that the climate here is changing a bit, perhaps even since you last went in about your IBS, and doctors are being encouraged to "think...
  14. cristiana
    Hi nikkijayne Welcome to the forum and to the two different spellings of celiac/coeliac. I will go with the British version today! My symptoms were not all gastric. Looking back there were various weird neurological things happening and my 'nervous stomach' which only played up now and again I thought was perhaps just a touch of IBS. Eventually...
  15. cristiana
    Don't worry about that sort of TMI on this site ! I am no doctor but in my own case the fissure healed very quickly. Literally loads of bright red blood in the toilet bowl one week, none the next, once I realised that the iron was really excacerbating this D and had greatly lowered the dosage. Whether a fissure would cause a scar visible by a camera...
  16. cristiana
    Hi ceceliac I am so sorry you are having this trouble. Forgive me as I am a bit pressed for time so have not been able to read all your previous posts just now - but I am so glad you are going to see a gastroenterologist again. However, I wondered, can you just see your normal doctor to find out if perhaps this bleeding is something as simple as fissures...
  17. cristiana
    Hi Autumn Well I am back - I thought I wouldn't be able to come on line this week but I have had the chance, as it turns out! It sounds as if the doctors were checking you for colitis, that sort of thing, rather than celiac disease which would have been an endoscopy as in a camera down the throat. Still - at least you know that your lower intestines...
  18. cristiana
    Hi Autumn Ah - so not dairy. But whatever the reason, glad you have had some good days. About five months before my diagnosis I had the most awful diarrhea which I thought at the time was down to stress and iron supplements. It cleared up after a while, then came back again, independent of stress and iron supplements. Then I got the right blood tests...
  19. cristiana
    Hi Autumn Sky Just to say first that my computer is in dire need of surgery so I will go silent for a few days (unfortunately I do not have any other means of going online at the moment). I will leave the blood results to those better acquainted with their meaning but thanks for posting the references. Just to say - do you think the diarrhea has cleared...
  20. cristiana
    Hi Autumn Sounds like good advice above. Just wanted to say I hope your hand is feeling better and that Saturday goes well. That endoscopy may well give you some of the answers you are searching for. Take care xx
  21. cristiana
    PS - your local pharmacist should be able to guide you to some good gluten-free vitamins.
  22. cristiana
    Autumn - good for you, keep eating the gluten but the dairy is a separate issue and won't matter. Re shoulder pain, I found when I had that horrible feeling that a hot shower on the painful area or a good soak in a hot bath before bedtime helped to some extent. Hairloss isn't an easy issue to deal with as I know myself but if celiac is your problem...
  23. cristiana
    Hi Autumn In my own GP's surgery here in England they will print off results for you, even if you haven't seen the doctor. If I were you I would get them to do exactly that and you can post the celiac results here - the people on this website really know their stuff, as I say, it is something that I never went into but others should be able to cast some...
  24. cristiana
    Hi - I'm so glad cyclinglady came in. I never went into my own blood results (actually, I never even saw them) but my gastroenterologist told me one set was not convincing at all, but one other reading was through the roof. So cyclinglady is right - you do need the full panel. It is difficult in the UK to see a GP at times but try to get an appointment...
  25. cristiana
    Hi Autumn - welcome to the Forum. I am so sorry you are going through this. I am not an expert on reading test results so will ask someone else to chime in on what they make of your tests but could you just tell us, are you in the UK? It might help someone guide you in the right direction as regards who to turn to next in the health system.
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