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cristiana

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Everything posted by cristiana

  1. cristiana
    Thank you GFinDC, I am beginning to wonder if I would be doing better on replacement hormones anyway - mine don't seem that effective anymore! Interesting what you say about many people having them and never knowing it - I was thinking today at church there's probably about ten people here with the same condition but they don't know it! Thanks again...
  2. cristiana
    That is very reassuring. Thank you. My thyroid has seemed off for some months now, my hair is thinner and I really feel the cold like never before. How do they treat Hashi's if you have nodules?
  3. cristiana
    Thank you for that extremely helpful link... and for that advice about the ultrasound, it doesn't sound at all bad really. It is interesting that you started off with one, then another came along. Do you know, do they ever just 'disappear'? I don't know of anyone in our family who has a thyroid problem so I really appreciate your and Colleen's comments...
  4. cristiana
    Thanks so much for getting back to me so quickly. I must admit it wasn't news I expected. I gather to have one is of more concern than several, but I guess it is possible that I might have more than one, as I don't think the MRI scan shows them in the best detail.
  5. cristiana
    Hello Fellow Celiacs An MRI scan has just revealed that I have a thyroid nodule. I am yet to have the ultrasound etc to confirm what type it is. I was so surprised at yet another new diagnosis of something else that I didn't ask for details, but I imagine it measures about 1cm from what I saw on the scan. For some reason or another he couldn't actually...
  6. cristiana
    I'm hoping about the hair thing too.... what I do know is my friend had a Thyroid problem and she took the meds and her hair is great now. Also, I am told low blood iron can cause thinning hair. So perhaps that is something else worth looking into? If I am given some medication for my thyroid and I see improvement I will post this progress -and also...
  7. cristiana
    It's in our family too. No-one has ever had an official diagnosis as far as I know, I guess because everyone's got it and lives well with it. It seems mostly to affect our hands, I think it is esp. aggravated with stressful situations, too much caffeine, low blood sugar, fatigue, etc. Has come down my mother's family. So far I'm the only officially...
  8. cristiana
    Hi - I really hope you get the answers you want this year. Just to say I really sympathise. I have had one health scare after another and felt like kissing the Dr when she finally found that I was Celiac. Then I gave up dairy and other things, then I started to get rocking vertigo and felt slightly off balance. So eventually see an ENT who says it's...
  9. cristiana
    Looking back, my first major symptom of celiac disease (apart from occasional D. which I just assumed was IBS or a nervous stomach) may have been mouth ulcers about eight years ago. They never tested my B vitamins then but I think it was probably down to a deficiency. I had another bout about two years ago. I took a vitamin supplement fizzy drink which...
  10. cristiana
    Hi notme! Did it take weeks or months?... for me, it hit two months after going gluten-free, that was July, and I still have it
  11. cristiana
    Thanks again pricklypear. Glad I'm not the only one - although sorry you are going through it, if you know what I mean. Just wondering, do you or does anyone else know if vertigo from gluten ataxia is a 24/7 feeling, rather than just lasting several hours every day? I am not talking about the type which hangs around for a few days or even weeks as a...
  12. cristiana
    Thanks for your reply, pricklypear That's interesting... do you get the spinning rooom vertigo .... or sort of swaying back and forth type, which is the type I get, along with feeling I'm on a ship's deck. Also, do you feel your gait is slightly affected?
  13. cristiana
    Hi Everyone I am now having tests for my ongoing feelings of being on board a ship. The ENT now thinks it isn't inner ear, so I just wondered, for any of you who actually have gluten ataxia, can you tell me, if you suffer from feelings of being imbalanced, vertigo issues etc, is it 24/7 or do certain actions set it off? In my own case, I don't wake...
  14. cristiana
    Hi Louise I was diagnosed by endoscopy and have been gluten-free for six months now. Initially I continued to get bloating, stomach pain and D. All that has pretty much gone now... in my own case the following brought around an improvement. I gave up dairy pretty soon after gluten as my stomach was still v. uncomfortable and continuing problems...
  15. cristiana
    Certainly, a great help. Thank you. It seems whichever way I look at it I am heading for some more tests! I should set up camp at the surgery. I have an unusual surname which I always had to spell when I rang the surgery, now no spelling necessary, in fact, I think they probably would recognize my voice without my needing to give a name! I think...
  16. cristiana
    Kamma, thanks again - all really helpful, thank you too for that detailed list. In answer to your question, I have had ringing ears since a child to a greater or lesser degree. I remember having flu when I was about eight, lying in bed and being frightened because in the silence the ringing was really loud - we lived in the countryside, v. quiet, no...
  17. cristiana
    Kamma - thank you so much for this info, including the list of trigger foods. It is good to find a fellow sufferer - but my commiserations to you for being a fellow sufferer, it is grim, you are right. The evening I googled the symptoms and came back with "rocking vertigo" my sister happened also to be on line and found some info on mal de debarquement...
  18. cristiana
    In the UK, Sainsburys and Waitrose are other good stores which you find in most towns which also have free-from aisles, the bigger the branch, the better the choice available.
  19. cristiana
    Hi dilettantesteph. Thanks so much for your swift reply. Glad to hear your migraines are so much better. I gave up gluten back in the spring, so about six months now, although strictly speaking there has been accidental glutening about once a month since then, the last one an accidental teaspoon of sauce about six weeks ago. On another post, someone...
  20. cristiana
    Like a lot of celiacs I have suffered from migraines in the past. From having bad painful headaches they then turned into the aura type, (without pain, hooray!) when I had my first child, and in more recent years I have the type that temporarily affect the peripheral vision with blind spots. Since going gluten free, I have developed a new symptom and...
  21. cristiana
    Hi JoyMurphy So much of what you say rings true to my own experience - this word problem, I too have that, some days worse than others, but it is embarrassing as I sometimes have to do public speaking and I wonder what the audience must be thinking! Or what inappropriate words I am using instead of the word I should be using! I had to actually ask an...
  22. cristiana
    JoyMurphy - thanks for these comments. I feel very much like you as you describe. I had the numbness and tingling, for me it was usually on waking, but in recent weeks that seems to be much better. I can't say I like the new feelings of being at sea, thought - esp. feeling of a downward surge running through me, my torso I would say, and head, just as...
  23. cristiana
    Re: iron. Maybe something to consider, if you haven't tried them already. I found most iron tablets actually hurt my stomach and upset it too, badly! So my doctor told me to try ferrous glucanate as she says some people find them gentler on the stomach. I was told to take two tablets first thing in the morning with a glass of water, an hour before eating...
  24. cristiana
    Hi Answerseeker I should say that my iron level was very low a year ago (7!) - they suspected the usual women's stuff. So I was put onto iron then. Finally they discovered it was celiac disease and it was at that point the gastro consultant said he'd like it to be higher than 20, which it was in the spring. I think it is v. wise to get levels checked...
  25. cristiana
    Thanks Pegleg - v. helpful. Answerseeker, just to say my ferritin level is about the same as yours but has gone up about 10 points since starting the gluten-free diet, and my consultant was pleased it was going up but he has asked me to keep taking ferrous glucanate for another six months so I guess he thought there was still room for improvement. I...
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