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cristiana

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Everything posted by cristiana

  1. cristiana
    Hi Dolphin, welcome to the forum. A lot of us on here are dealing with problems that the doctors can't identify immediately or agree on. It can be very frustrating and sometimes scary. When one is looking for answers it is normal to look to the internet for answers... but then one finds something scary on google! I know exactly what you say...
  2. cristiana
    Amazing book - an absolute godsend. I think it helps that it is written by an ex-sufferer. That chapter on Setbacks may be all you will need to read. Oh... and make sure your iron and B12 levels are good, that will really help. All the very best.
  3. cristiana
    I was very anxious before my diagnosis.. I found a book by a chap called Paul David which helped me understand anxiety better and it gives advice on recovery. I gather some GPs in the UK recommend it and I can see why. He also has a website. Thing is, he explains that setbacks can occur but that doesn't mean you are back to where you were. That helped...
  4. cristiana
    Hi gwynanne4life You sound like my twin in a couple of ways! Firstly, I had that neuropathy (lower legs and feet) at the time I was diagnosed and thankfully after many months sublingual B12 supplements it seems to be all but gone now - a year on. I was so worried about it but by some miracle I met a newly diagnosed English Celiac like me whilst...
  5. cristiana
    Hi Doya and welcome to the forum. I saw your other post - you say that the itching has now gone over to your left side, having started on the right. I have bad irritation in my chest, under the breast, and it wraps around to the back on my left side, these last three months. It has been suggested it is shingles - there is a type without a rash. See my...
  6. cristiana
    Mimsy - I must thank you for this. I had not thought that this would generate any more posts so sorry I haven't come back sooner. The incredible thing my brother in law, a doctor of some 20 years standing, has also said he thinks I have had shingles, either the lesion has been overlooked or it was the type without a rash. So I went to my own surgery...
  7. cristiana
    Hi Ben If you register and join Coeliac UK online they will send you some bumph including a food and drink directory which is very helpful (that is also available online). www.coeliac.org.uk I am in my mid-forties and was told by my consultant that I would feel like a twenty-five year old again once I was on the gluten-free diet. Well... a...
  8. cristiana
    I have had pain and irritation recently and a weird feeling for a couple of months now. It has affected half my back and half my chest. Like you, same side, in my case, just the left. I have been told by one doctor the sensation is probably caused by having had shingles without the rash, i.e. nerve damage – look up Dermatomes, it is interesting. ...
  9. cristiana
    Thanks so much nvsmom - glad you haven't got costochondritis any more! It doesn't sound nice. One doctor thought I could have Tietze syndrome but then said, "I'm not sure that explains the itchiness". I find it so hard dealing with uncertainty as I always imagine the worst. If anyone else has had either condition and found it caused itchiness in their...
  10. cristiana
    I have pain and irritation generating from the left side of my rib cage,under the arm and breast area. Having all sorts of investigations but getting nowhere as doctors can't agree. Does this sound like it could be costochondritis to anyone who has suffered from it as reading stuff on line suggests the pain should come from the sternum, which isn't the...
  11. cristiana
    Hi Kate - thanks so much for your helpful post. It looks like it is your first one, too, so welcome to the forum! I see that it looks quite a road ahead but I guess it is much better your son and I know what we have got and the follow ups will help keep us on the straight and narrow. I am in my mid-forties so after years of not feeling well and unwittingly...
  12. cristiana
    Just wondering, can any British celiacs (coeliacs!) let me know if I will have to see my NHS gastro consultant forever more. I was diagnosed about a year ago and so far have had to see him in September, next appointment is in April. The last time I saw him he was very pleased with my blood test results, thankfully, but I have another lot lined up before...
  13. cristiana
    I hope you feel better soon... but I can't help thinking that gluten just must have got in there somewhere. How about stock they might used for the chowder? Was it prepared in a dedicated gluten free area? I am British, so I don't know the recipe too well, but can beer be in chowder? Beer contains gluten I think. I was out with my sister and mother...
  14. cristiana
    LauraTX, thanks so much, I will look into it. It has just dawned on me since posting this whether if bringing dairy back into my diet might be responsible, as it didn't seem to be giving me an upset stomach anymore I assumed my villi were better and I could tolerate it again. I guess it might be making my chest feel itchy, the itchiness has always been more...
  15. cristiana
    Hello all Not quite sure where to post this... but here goes. I am strict with the gluten-free diet. I have never been sure, however, if other foods are causing problems. Early January I had this mild but nonetheless annoying itch, ache and soreness begin in my upper left chest, under my left arm and under the breast. No swelling or rash or anything...
  16. cristiana
    Really good advice about vitamins and minerals above. From my own personal experience I am convinced that having low levels of B12 and iron were really contributors to my own feelings of anxiety. The anxiety started to improve when I started to take supplements, long before I was found to be Celiac and finally gave up gluten. Have you ever had those levels...
  17. cristiana
    I really think one good place to start is that full celiac panel test that nvsmom talks about. So many of us have had odd symptoms, difficult to pin down sort of stuff, and the positive celiac test helped put the pieces together and then everything starts to make sense. I'm not a medically trained person but I do have a hernia (umbilical) which I can actually...
  18. cristiana
    Hi BlessedMommy So understand about your feeling weary of people's reactions. Although I actually did end up being diagnosed with celiac disease a few months ago the journey that led to DX was scary - terrible anxiety that came from nowhere, a liver function test that showed I had elevated globulin levels that indicated something nasty could be going...
  19. cristiana
    I'm not sure if what you have is wheat related. However something that one of my children had was discoid eczema which looked pretty similar. He was tested but was found not to have celiac disease. I hope you find an answer soon.
  20. cristiana
    This bug is taking ages to resolve. Still stomach cramps and night sweats, a week on. I suddenly thought just now... I had just finished a course of antibiotics the week before I got it, do you think the antibiotics might have taken out the "good bacteria" from my gut and that's why it's taking so long to budge? Or do you think it's just now I'm a celiac...
  21. cristiana
    LIke you, I am fast drawing the conclusion that eating out isn't worth it in terms of cross-contamination. So I try to suggest to friends that we meet for coffee instead of lunch, wherever possible and try to think of the money I am saving! Do you take vitamin B12 supplements as even though your levels may now be normal, they may still be on the low...
  22. cristiana
    Wondering if you have ulcers, too? I had ulcers and what looked like blood blisters in my mouth prior to diagnosis with celiac and it felt like I was eating crushed glass at mealtimes. Soooo painful. I started drinking a fizzy vitamin drink which was v. rich in B12 and C vitamins and they went. Do you know what your B12 levels are like... might be related...
  23. cristiana
    Sorry Greebo - I've only just seen this. I buy Solgar Vitamin B12 from my local health food shop - but I see that they have an online shop - I've just found it: solgaronline.co.uk
  24. cristiana
    Interesting.... I had forgotten this but reading your post I remember I suffered terribly from bouts of neck pain when I was a child, and it stopped in my teens. I was only diagnosed a celiac a few months ago - I'm now in my forties - so I don't know if there was any connection, but I do know it really interrupted my sleep at times and can make you feel quite...
  25. cristiana
    Thanks girls! Almost as soon as I posted this my sister rang to say her little boy had it too - and he's not a celiac! And we were there at the same party. Sorry to take up forum time, just goes to show how easy it is to attribute everything to gluten!
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