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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Really good advice about vitamins and minerals above. From my own personal experience I am convinced that having low levels of B12 and iron were really contributors to my own feelings of anxiety. The anxiety started to improve when I started to take supplements, long before I was found to be Celiac and finally gave up gluten. Have you ever had those levels...
  2. cristiana
    I really think one good place to start is that full celiac panel test that nvsmom talks about. So many of us have had odd symptoms, difficult to pin down sort of stuff, and the positive celiac test helped put the pieces together and then everything starts to make sense. I'm not a medically trained person but I do have a hernia (umbilical) which I can actually...
  3. cristiana
    Hi BlessedMommy So understand about your feeling weary of people's reactions. Although I actually did end up being diagnosed with celiac disease a few months ago the journey that led to DX was scary - terrible anxiety that came from nowhere, a liver function test that showed I had elevated globulin levels that indicated something nasty could be going...
  4. cristiana
    I'm not sure if what you have is wheat related. However something that one of my children had was discoid eczema which looked pretty similar. He was tested but was found not to have celiac disease. I hope you find an answer soon.
  5. cristiana
    This bug is taking ages to resolve. Still stomach cramps and night sweats, a week on. I suddenly thought just now... I had just finished a course of antibiotics the week before I got it, do you think the antibiotics might have taken out the "good bacteria" from my gut and that's why it's taking so long to budge? Or do you think it's just now I'm a celiac...
  6. cristiana
    LIke you, I am fast drawing the conclusion that eating out isn't worth it in terms of cross-contamination. So I try to suggest to friends that we meet for coffee instead of lunch, wherever possible and try to think of the money I am saving! Do you take vitamin B12 supplements as even though your levels may now be normal, they may still be on the low...
  7. cristiana
    Wondering if you have ulcers, too? I had ulcers and what looked like blood blisters in my mouth prior to diagnosis with celiac and it felt like I was eating crushed glass at mealtimes. Soooo painful. I started drinking a fizzy vitamin drink which was v. rich in B12 and C vitamins and they went. Do you know what your B12 levels are like... might be related...
  8. cristiana
    Sorry Greebo - I've only just seen this. I buy Solgar Vitamin B12 from my local health food shop - but I see that they have an online shop - I've just found it: solgaronline.co.uk
  9. cristiana
    Interesting.... I had forgotten this but reading your post I remember I suffered terribly from bouts of neck pain when I was a child, and it stopped in my teens. I was only diagnosed a celiac a few months ago - I'm now in my forties - so I don't know if there was any connection, but I do know it really interrupted my sleep at times and can make you feel quite...
  10. cristiana
    Thanks girls! Almost as soon as I posted this my sister rang to say her little boy had it too - and he's not a celiac! And we were there at the same party. Sorry to take up forum time, just goes to show how easy it is to attribute everything to gluten!
  11. cristiana
    Hello Celiacs On Saturday I ate what was supposed to be a slice of gluten free birthday cake. I now wonder if the baker thought to check the baking powder, cocoa, decorations - etc. I certainly should have! Because Saturday night I had a nightmare. Sunday ditto. Both nights woke up in a cold sweat. Monday Morning my stomach hurt, felt ill at lunch...
  12. cristiana
    Hi Stella. I am sorry, like quite a few of us on the forum, sometimes it does feel as if the celiac test is just the tip of the iceberg! My thyroid ultrasound came back showing I had several tiny nodules, but one over 1cm, so they told me I could keep it if they found that it was normal but guess what... they didn't get enough cells to be 100% sure...
  13. cristiana
    In the UK, or at least certainly in the area where I live, first you have the blood test for celiac on the National Health Service, if that is positive, then you have an endoscopy and then if that is positive you are referred to a nutritionalist. It is standard procedure. I think it was helpful because it was the nutritionalist who first stressed to me...
  14. cristiana
    Hi. I'm in the UK so the dosage is in mgs - but my box if ferrous glucanate is labelled 300mg and I take two a day. The instructions are as follows... "Adults (including the elderly) and children over 12 years For the prevention of iron deficiency: take two tablets daily For the treatment of iron deficiency: take four to six tablets daily in divided...
  15. cristiana
    Thanks for that Kamma - that is v. helpful.
  16. cristiana
    One thing to consider might be trying ferrous gluconate - it is much kinder on the stomach. I had awful trouble with other iron supplements but find that taking a couple of gluconate tablets with water on an empty stomach first thing, an hour before eating, and things are pretty much normal in that department! I started supplements six months before my...
  17. cristiana
    Dizziness/vertigo/imbalance can be such a difficult thing to live with but what interests me is that judging by the websites devoted to the subject it is a problem that blights the lives of many non-celiacs and often there is no formal diagnosis made - or after a while, a different diagnosis is given. My problems started in July three months into the...
  18. cristiana
    Thank you GFinDC, I am beginning to wonder if I would be doing better on replacement hormones anyway - mine don't seem that effective anymore! Interesting what you say about many people having them and never knowing it - I was thinking today at church there's probably about ten people here with the same condition but they don't know it! Thanks again...
  19. cristiana
    That is very reassuring. Thank you. My thyroid has seemed off for some months now, my hair is thinner and I really feel the cold like never before. How do they treat Hashi's if you have nodules?
  20. cristiana
    Thank you for that extremely helpful link... and for that advice about the ultrasound, it doesn't sound at all bad really. It is interesting that you started off with one, then another came along. Do you know, do they ever just 'disappear'? I don't know of anyone in our family who has a thyroid problem so I really appreciate your and Colleen's comments...
  21. cristiana
    Thanks so much for getting back to me so quickly. I must admit it wasn't news I expected. I gather to have one is of more concern than several, but I guess it is possible that I might have more than one, as I don't think the MRI scan shows them in the best detail.
  22. cristiana
    Hello Fellow Celiacs An MRI scan has just revealed that I have a thyroid nodule. I am yet to have the ultrasound etc to confirm what type it is. I was so surprised at yet another new diagnosis of something else that I didn't ask for details, but I imagine it measures about 1cm from what I saw on the scan. For some reason or another he couldn't actually...
  23. cristiana
    I'm hoping about the hair thing too.... what I do know is my friend had a Thyroid problem and she took the meds and her hair is great now. Also, I am told low blood iron can cause thinning hair. So perhaps that is something else worth looking into? If I am given some medication for my thyroid and I see improvement I will post this progress -and also...
  24. cristiana
    It's in our family too. No-one has ever had an official diagnosis as far as I know, I guess because everyone's got it and lives well with it. It seems mostly to affect our hands, I think it is esp. aggravated with stressful situations, too much caffeine, low blood sugar, fatigue, etc. Has come down my mother's family. So far I'm the only officially...
  25. cristiana
    Hi - I really hope you get the answers you want this year. Just to say I really sympathise. I have had one health scare after another and felt like kissing the Dr when she finally found that I was Celiac. Then I gave up dairy and other things, then I started to get rocking vertigo and felt slightly off balance. So eventually see an ENT who says it's...
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