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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi ceceliac I am so sorry you are having this trouble. Forgive me as I am a bit pressed for time so have not been able to read all your previous posts just now - but I am so glad you are going to see a gastroenterologist again. However, I wondered, can you just see your normal doctor to find out if perhaps this bleeding is something as simple as fissures...
  2. cristiana
    Hi Autumn Well I am back - I thought I wouldn't be able to come on line this week but I have had the chance, as it turns out! It sounds as if the doctors were checking you for colitis, that sort of thing, rather than celiac disease which would have been an endoscopy as in a camera down the throat. Still - at least you know that your lower intestines...
  3. cristiana
    Hi Autumn Ah - so not dairy. But whatever the reason, glad you have had some good days. About five months before my diagnosis I had the most awful diarrhea which I thought at the time was down to stress and iron supplements. It cleared up after a while, then came back again, independent of stress and iron supplements. Then I got the right blood tests...
  4. cristiana
    Hi Autumn Sky Just to say first that my computer is in dire need of surgery so I will go silent for a few days (unfortunately I do not have any other means of going online at the moment). I will leave the blood results to those better acquainted with their meaning but thanks for posting the references. Just to say - do you think the diarrhea has cleared...
  5. cristiana
    Hi Autumn Sounds like good advice above. Just wanted to say I hope your hand is feeling better and that Saturday goes well. That endoscopy may well give you some of the answers you are searching for. Take care xx
  6. cristiana
    PS - your local pharmacist should be able to guide you to some good gluten-free vitamins.
  7. cristiana
    Autumn - good for you, keep eating the gluten but the dairy is a separate issue and won't matter. Re shoulder pain, I found when I had that horrible feeling that a hot shower on the painful area or a good soak in a hot bath before bedtime helped to some extent. Hairloss isn't an easy issue to deal with as I know myself but if celiac is your problem...
  8. cristiana
    Hi Autumn In my own GP's surgery here in England they will print off results for you, even if you haven't seen the doctor. If I were you I would get them to do exactly that and you can post the celiac results here - the people on this website really know their stuff, as I say, it is something that I never went into but others should be able to cast some...
  9. cristiana
    Hi - I'm so glad cyclinglady came in. I never went into my own blood results (actually, I never even saw them) but my gastroenterologist told me one set was not convincing at all, but one other reading was through the roof. So cyclinglady is right - you do need the full panel. It is difficult in the UK to see a GP at times but try to get an appointment...
  10. cristiana
    Hi Autumn - welcome to the Forum. I am so sorry you are going through this. I am not an expert on reading test results so will ask someone else to chime in on what they make of your tests but could you just tell us, are you in the UK? It might help someone guide you in the right direction as regards who to turn to next in the health system.
  11. cristiana
    How annoying. Here in the UK a lot of manufacturers now list gluten containing ingredients and allergens in bold in the ingredients. I learned a lesson the hard way when I ate a brand of chocolate that didn't put gluten in bold so missed it completely, although they listed milk and soya in bold. Colleen is so right, every label, every time. Not easy...
  12. cristiana
    gluten-free Lover - you have really cheered me up! I have the paper clip feeling in the exact same place! So it is not just me! I will ask my gastro consultant when I next seem him what is there on the anatomical chart?! Thing is yesterday I had an elasticated waist on and that is where the pain was, today a skirt that doesn't put pressure in the...
  13. cristiana
    Hi gluten-free Lover... Thank you for a very comprehensive reply. Yes, that is how the pain feels as you describe in the first para. It also sometimes feels as if there is a paperclip there (or a staple) that is trapping something! I could almost believe it was trapped wind at times. Other times it's like a bee sting. Then it is an itch. A doctor...
  14. cristiana
    Thanks Colleen - I'm sorry, I need to sort out a signature. I just tried but couldn't find out how. Anyway, I have been gluten-free for a year since May 2013, I was diagnosed by biopsy and blood test a year ago - readings were through the roof. Since diagnosis I have had all sorts of weird and wonderful symptoms but this sacroiliac pain predates diagnosis...
  15. cristiana
    Hi everyone Has anyone had sacroiliac pain (I gather SI problems are quite common in celiacs) that has referred to the front of the body? I have inflammation in that left joint but have had pain in my left groin and also, a weird sort of itch/soreness kind of midway between my left hip and my tummy button that never troubles me at night but does seem...
  16. cristiana
    Joanna Rowsell is a really inspirational young British Olympian who has suffered hair loss from a young age and it is really good to read how she has dealt with it. I have always had fine hair but it got really thin around the time of my diagnosis which I think may have been to do with being anemic. I do feel for you as I know exactly how heartless and...
  17. cristiana
    Thank you all so much. There's so much good advice above I feel I ought to print this post out and stick it on the kitchen wall and next to the medicine cabinet. I really appreciate your taking the time to reply to this. Many of my relatives have sailed through life ignoring aches and pains and even more worrying symptoms and have got through to the...
  18. cristiana
    Hi everyone I have just been chatting with a friend from this site and we thought it would be good to post this question. I have always been a little bit anxious about my health but when I fell ill with celiac disease my blood tests revealed that I had elevated blood protein (gamma globulins) and anemia and for a while my doctor was wondering if...
  19. cristiana
    Hi Celiac Ninja Anxiety was a huge problem for me before I was diagnosed, horrid - and so totally different from just being an anxious type of person, which I would say is just my personality type. What helped was my lovely doctor getting my Ferritin normal, B12 levels normal. Then of course getting off gluten when they finally found out what was wrong...
  20. cristiana
    elless, glad you brought this topic up again as two weeks down the line from glutening caused by half a very small bar of chocolate and some crumbs, and the terribly bad idea of taking several NSAIDS to help with a painful joint probably causing damage in itself, I feel I am back to square one with discomfort. Then today I happened to meet my nutritionalist...
  21. cristiana
    Mine went up by over 10 points, I think it was, in three months, through supplementation before they knew I was coeliac. I was taking some really heavy duty iron though. I would agree with kareng - if the damage is patchy, some will still go in.
  22. cristiana
    Apart from the skin bumps and GERD, I could be reading my list of symptoms, with perhaps a variation of the skin pain you mention in that for seven months now I have itchy nerve pain which at times affects the feeling of my skin on the left side of the torso, around ribs and also above the hip, like there is a rash there, but there isn't. At times it is...
  23. cristiana
    My husband will love the commercial, his type of humour! He is British but always reckoned he'd like living in a place like that. Thanks for the tip about trapped wind too, I have a new pain to the left of my abdomen above my hip which I get if I eat dairy and the peppermint tea thing seems to really work. I think you are right about the antacids, they...
  24. cristiana
    I am afraid I don't know what the symptoms are for an excess of those vitamins. I wonder if anyone else reading this can help? I do know that sometimes if I take B12 too late in the day it does make me feel very alert, I can't sleep. Maybe jittery would describe it, esp. if I have also had a lot of caffeine! Definitely start on the D vitamin, that's...
  25. cristiana
    The air bed thing, yes, I would say I had that for six months last year. I could also compare it at times as if I were walking on board a heaving deck on board ship. My legs and arms felt distant and disconnected at times, although they worked perfectly well. I really thought I might have ataxia. I kept going to the doctors who said it was probably anxiety...
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