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cristiana

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Everything posted by cristiana

  1. cristiana
    So for clarification, for a celiac, having traces of gluten in the diet not only inflames the gut but can arguably also cause any other part of the body to become inflamed - for example, the sacroiliac joint?
  2. cristiana
    Thanks so much Colleen, I must read that - never have, even though I've been reading everything else! Perhaps that's where I have been going wrong!
  3. cristiana
    This interests me as before I was diagnosed with celiac disease my bad headaches (which I always suspected were actually migraines because they made me feel sick and I couldn't look at light) turned into aura migraines without pain. The first episode I had was the silver flashing lights, kind of a paisley pattern, in both eyes which was then followed by...
  4. cristiana
    Thanks so much, fellow (ex-)sufferers. So interesting greenbeanie that you had relief after going gluten free. I am just wondering if trace amounts of gluten are getting in and making things worse. I have to share a kitchen with my family of gluten eaters and I'm now wondering about crumbs, gluten in the oven, on drawer handles etc. Clearly what is going...
  5. cristiana
    Well, having experienced all sorts of weird pain in my left rib and left hip/groin area which sometimes made me feel as if my skin were on fire but there was no rash, I have seen a really good chiropractor who has discovered that I have inflammation in my left sacroiliac joint - and boy did I feel it! Yet I was completely unaware of it until she touched...
  6. cristiana
    Thank you everyone. Steph, you do sound like you have very similar reactions to me, perhaps it is the fat. Oh well... back to the tinned sardines (my nutritionalist said I should eat them for my calcium intake!)
  7. cristiana
    I have found it such a relief at last to be able to attribute all the weird symptoms I have been having all these years to Celiac. The diet has forced me to eat healthily and discover that healthy food isn't all that bad after all - in fact I rather like it, plus I don't have the dreadful cravings I used to have borne of years of eating what I liked just...
  8. cristiana
    Just wondering, in the last month or so I have been feeling queasy after eating hard cheese and other dairy products. I have also been glutened twice during this period. I am just wondering, having been able to tolerate hard cheese after a few weeks of going gluten free a year ago, could this glutening be responsible for damaging the tips of the villi enough...
  9. cristiana
    Hi Irish Heart. Reporting back to say scan went well, and probiotics beginning to work! Wish I had taken them a year ago! They seem to make me feel a tiny bit nauseous but perhaps that is just me thinking about it too much. But will persevere as I think the benefits are worth it. Thanks so much for your support.
  10. cristiana
    Odd. My tummy pain used to be more evenly distributed but now it is also mostly left side. Left sided abdominal pain. Left sided nerve pain in chest and hip area. Also left leg seems to feel fizzy sometimes after exercise. I had never really thought about it before. I'm not sure if it is just a coincidence, but maybe there is something in it!
  11. cristiana
    Will do - and thank you! x
  12. cristiana
    Thanks girls! It certainly feels like a war is going on! Good to hear from you, Irish Heart. I have been thinking of you with my burning skin going on still. I'm having a pelvic scan Wednesday to check this burning pain just below the surface of my skin - still no rash - and now this trapped wind isn't anything else. By the way, I typed in skin pain...
  13. cristiana
    So interesting, thank you. I seem to be less upset by the latest dose, perhaps it was because I took the last lot too close to a very strong peppermint tea!
  14. cristiana
    Little Gems, that makes them sound even better! I might try taking one at night, tonight then. After all it is Sunday tomorrow so if my tummy protests I can take it easy. I think I read somewhere that at first there is a bit of a battle going on with the good guys and the baddies so perhaps that's what's happening. I am keen to give them a go as clearly...
  15. cristiana
    Hi mawmaw. The Nutritional Facts on the back state, "Serving Size 1 Capsule - L plantarum (SD1) 10 Billion; L salvirarius (ATCC 11741) 4 Billion and L rhamnosus (TP) 3 Billion. It also says the RDA has not yet been established! Compared with those figures you have given me it seems that these might be far too strong? How can there be Billions in such...
  16. cristiana
    Hi everyone. My nutritionalist has put me onto a very strong dose of Probiotics which I am supposed to take, once daily, on an empty stomach. I have had problems with trapped wind and she is of the view that because in the last 18 months I have had to take three rounds of antibiotics, not to mention having experienced a lot of D around the time of...
  17. cristiana
    Thanks for sharing your experience, Samjayde. I am grateful. I am having yet another scan next week to just check all OK in my lower abdomen area. If that is clear I think I will feel more confident to take some medication - I didn't want to numb any pain (which I gather itching can be, a type of pain) that was trying to tell me something. I hope your...
  18. cristiana
    Thanks so much, my celiac friends, very much appreciated. It is always good to know that I'm not the only one! What a brilliant forum.
  19. cristiana
    Hi Noob. Have you had your vitamin B12 and your iron levels checked? Might be worth looking at - mine were both low and I am sure that supplements really helped overcome the horrid anxiety I suffered around the time of diagnosis. Have a look at this link for more people's experiences. https://www.celiac.com/forums/topic/105599-b-vitamin-weirdness-does...
  20. cristiana
    Not a nice subject, but is there anything to take that will help deal with trapped wind? Since just before my diagnosis it was a real problem and now, having been recently glutened, the same feeling of trapped wind in the descending colon and sometimes the left side of my abdomen down from about tummy button level looks more distended than the right. It...
  21. cristiana
    Hi dillentantesteph, that's helpful. I too seem to be encountering new gastro problems too, not D neither C but since having been glutened (wheat in chocolate, why do they do that?) my problems with dairy has come back, I feel like I have trapped wind (left side pain, by groin). My nutritionalist thinks I need to take some probiotics as I have had to take...
  22. cristiana
    I just wanted to chime in and say if this continues, it might be worth looking into to make sure it isn't caused by something else. Last summer I was suddenly struck with a type of vertigo - my arms and legs felt odd when I walked, I felt like I was walking on a ship's deck at sea. Very anxiety inducing. I really thought I was coming down with ataxia...
  23. cristiana
    The bathroom problem: a common problem post recovery it seems. The advice I have been given is to drink more liquids, eat more fruit and vegetables and exercise more. I guess the next bit of advice might be worth checking with your pharmacist or health care provider but I found that the magnesium supplements I took post-recovery helped things. I wasn...
  24. cristiana
    Thank you both for this extra advice. It is so appreciated. Re: glucose sugar levels,I have had various tests not all that long ago but maybe I ought to have one redone just in case. Meanwhile I had some accidental gluten today in piece of chocolate (why do they put it in chocolate?) so what with the sugar and the gluten and the caffeine I'm expecting...
  25. cristiana
    Irish Heart - hello again! As you can see I am still on the quest for nerve pain relief. I am definitely going to take your advice on board about the massage with my physio. I agree with you that a lot of nerve pain is probably attributed to fibromyalgia. In the UK although maybe someone reading this might disagree I feel people are not diagnosed with...
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