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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Irish Heart. Reporting back to say scan went well, and probiotics beginning to work! Wish I had taken them a year ago! They seem to make me feel a tiny bit nauseous but perhaps that is just me thinking about it too much. But will persevere as I think the benefits are worth it. Thanks so much for your support.
  2. cristiana
    Odd. My tummy pain used to be more evenly distributed but now it is also mostly left side. Left sided abdominal pain. Left sided nerve pain in chest and hip area. Also left leg seems to feel fizzy sometimes after exercise. I had never really thought about it before. I'm not sure if it is just a coincidence, but maybe there is something in it!
  3. cristiana
    Will do - and thank you! x
  4. cristiana
    Thanks girls! It certainly feels like a war is going on! Good to hear from you, Irish Heart. I have been thinking of you with my burning skin going on still. I'm having a pelvic scan Wednesday to check this burning pain just below the surface of my skin - still no rash - and now this trapped wind isn't anything else. By the way, I typed in skin pain...
  5. cristiana
    So interesting, thank you. I seem to be less upset by the latest dose, perhaps it was because I took the last lot too close to a very strong peppermint tea!
  6. cristiana
    Little Gems, that makes them sound even better! I might try taking one at night, tonight then. After all it is Sunday tomorrow so if my tummy protests I can take it easy. I think I read somewhere that at first there is a bit of a battle going on with the good guys and the baddies so perhaps that's what's happening. I am keen to give them a go as clearly...
  7. cristiana
    Hi mawmaw. The Nutritional Facts on the back state, "Serving Size 1 Capsule - L plantarum (SD1) 10 Billion; L salvirarius (ATCC 11741) 4 Billion and L rhamnosus (TP) 3 Billion. It also says the RDA has not yet been established! Compared with those figures you have given me it seems that these might be far too strong? How can there be Billions in such...
  8. cristiana
    Hi everyone. My nutritionalist has put me onto a very strong dose of Probiotics which I am supposed to take, once daily, on an empty stomach. I have had problems with trapped wind and she is of the view that because in the last 18 months I have had to take three rounds of antibiotics, not to mention having experienced a lot of D around the time of...
  9. cristiana
    Thanks for sharing your experience, Samjayde. I am grateful. I am having yet another scan next week to just check all OK in my lower abdomen area. If that is clear I think I will feel more confident to take some medication - I didn't want to numb any pain (which I gather itching can be, a type of pain) that was trying to tell me something. I hope your...
  10. cristiana
    Thanks so much, my celiac friends, very much appreciated. It is always good to know that I'm not the only one! What a brilliant forum.
  11. cristiana
    Hi Noob. Have you had your vitamin B12 and your iron levels checked? Might be worth looking at - mine were both low and I am sure that supplements really helped overcome the horrid anxiety I suffered around the time of diagnosis. Have a look at this link for more people's experiences. https://www.celiac.com/forums/topic/105599-b-vitamin-weirdness-does...
  12. cristiana
    Not a nice subject, but is there anything to take that will help deal with trapped wind? Since just before my diagnosis it was a real problem and now, having been recently glutened, the same feeling of trapped wind in the descending colon and sometimes the left side of my abdomen down from about tummy button level looks more distended than the right. It...
  13. cristiana
    Hi dillentantesteph, that's helpful. I too seem to be encountering new gastro problems too, not D neither C but since having been glutened (wheat in chocolate, why do they do that?) my problems with dairy has come back, I feel like I have trapped wind (left side pain, by groin). My nutritionalist thinks I need to take some probiotics as I have had to take...
  14. cristiana
    I just wanted to chime in and say if this continues, it might be worth looking into to make sure it isn't caused by something else. Last summer I was suddenly struck with a type of vertigo - my arms and legs felt odd when I walked, I felt like I was walking on a ship's deck at sea. Very anxiety inducing. I really thought I was coming down with ataxia...
  15. cristiana
    The bathroom problem: a common problem post recovery it seems. The advice I have been given is to drink more liquids, eat more fruit and vegetables and exercise more. I guess the next bit of advice might be worth checking with your pharmacist or health care provider but I found that the magnesium supplements I took post-recovery helped things. I wasn...
  16. cristiana
    Thank you both for this extra advice. It is so appreciated. Re: glucose sugar levels,I have had various tests not all that long ago but maybe I ought to have one redone just in case. Meanwhile I had some accidental gluten today in piece of chocolate (why do they put it in chocolate?) so what with the sugar and the gluten and the caffeine I'm expecting...
  17. cristiana
    Irish Heart - hello again! As you can see I am still on the quest for nerve pain relief. I am definitely going to take your advice on board about the massage with my physio. I agree with you that a lot of nerve pain is probably attributed to fibromyalgia. In the UK although maybe someone reading this might disagree I feel people are not diagnosed with...
  18. cristiana
    Hello I have some nerve pain (at least, so far that is what the doctors the pain is) and am contemplating taking some sort of medication to help. It seems I might have had shingles without the rash after Christmas, but no one is sure if that is what is causing it especially with being an undiagnosed celiac for most of my life being in the mix. Spinal...
  19. cristiana
    Well, just to report back that it isn't nerve impingement, the MRI scans confirmed it, but according to the consultant, it sounds like it might be caused by 'something like shingles' and 'it sounds nervy'. If only the doctors could agree - three out of five think its nerve related, two think it could have been shingles that set it off (if only I had been...
  20. cristiana
    Hi Kay - sounds like you and I went gluten free around the same time. I had such high hopes for an amazing transformation in my own health but it seems as soon as I have resolved one issue, another turns up! In my own case I do find heat and stress absolutely the worst thing but I got a lot of pain one day when I was preparing something cold from the freezer...
  21. cristiana
    Thank you both. You don't know how much this is helping me because I am really struggling. IrishHeart, your experiences of pain being exacerbated by exercise and also contact with fabric reassures me that the doctors are on the right track with this. It is honestly the weirdest pain I have ever encountered, it is in a generalized area, nothing too specific...
  22. cristiana
    Sorry... this is not going to be very helpful but I was listening to the radio a couple of months ago and apparently this is quite a common sensation felt by people. They even gave it a name, but they didn't actually link it to celiac. I get this feeling in the small of my back sometimes, now when I come to think of it I have only really noticed it in the...
  23. cristiana
    Hi Irish Heart – hope you see this. Just wanted to ask you a couple more questions, hope that is OK. Did you actually find anything other than food made your nerve pain worse? I am feeling a bit discouraged because I am noticing that when I do exercise the pain seems worse and then lingers for the rest of the day. And stress really makes things w...
  24. cristiana
    Just back from our trip. Thought I would just share my findings in case of use to anyone in the future... Prezzos do a great gluten free risotto - there are several outlets, but if you visit their restaurant on North Bridge you will see it has the most amazing view of the New Town. Frankie and Benny's actually have a decent gluten-free menu, there...
  25. cristiana
    I don't know about you but one of my problems pre-diagnosis was liver function test results that my doctor didn't like the look of. I often get the impression that people think I am taking this gluten-free diet too far but when I say that gluten affects my liver they don't say any more.
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