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cristiana

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Everything posted by cristiana

  1. cristiana
    Hello I have some nerve pain (at least, so far that is what the doctors the pain is) and am contemplating taking some sort of medication to help. It seems I might have had shingles without the rash after Christmas, but no one is sure if that is what is causing it especially with being an undiagnosed celiac for most of my life being in the mix. Spinal...
  2. cristiana
    Well, just to report back that it isn't nerve impingement, the MRI scans confirmed it, but according to the consultant, it sounds like it might be caused by 'something like shingles' and 'it sounds nervy'. If only the doctors could agree - three out of five think its nerve related, two think it could have been shingles that set it off (if only I had been...
  3. cristiana
    Hi Kay - sounds like you and I went gluten free around the same time. I had such high hopes for an amazing transformation in my own health but it seems as soon as I have resolved one issue, another turns up! In my own case I do find heat and stress absolutely the worst thing but I got a lot of pain one day when I was preparing something cold from the freezer...
  4. cristiana
    Thank you both. You don't know how much this is helping me because I am really struggling. IrishHeart, your experiences of pain being exacerbated by exercise and also contact with fabric reassures me that the doctors are on the right track with this. It is honestly the weirdest pain I have ever encountered, it is in a generalized area, nothing too specific...
  5. cristiana
    Sorry... this is not going to be very helpful but I was listening to the radio a couple of months ago and apparently this is quite a common sensation felt by people. They even gave it a name, but they didn't actually link it to celiac. I get this feeling in the small of my back sometimes, now when I come to think of it I have only really noticed it in the...
  6. cristiana
    Hi Irish Heart – hope you see this. Just wanted to ask you a couple more questions, hope that is OK. Did you actually find anything other than food made your nerve pain worse? I am feeling a bit discouraged because I am noticing that when I do exercise the pain seems worse and then lingers for the rest of the day. And stress really makes things w...
  7. cristiana
    Just back from our trip. Thought I would just share my findings in case of use to anyone in the future... Prezzos do a great gluten free risotto - there are several outlets, but if you visit their restaurant on North Bridge you will see it has the most amazing view of the New Town. Frankie and Benny's actually have a decent gluten-free menu, there...
  8. cristiana
    I don't know about you but one of my problems pre-diagnosis was liver function test results that my doctor didn't like the look of. I often get the impression that people think I am taking this gluten-free diet too far but when I say that gluten affects my liver they don't say any more.
  9. cristiana
    Thanks for the warning. Maybe GFinDC is right about the wine instead! I think just at the moment I can more or less handle the pain, but I guess it is something to bear in mind if it gets worse, I hope it won't.
  10. cristiana
    Hi Soaps. Not sure if you are a British Celiac (Coeliac). If you are you will probably be aware that Frankie & Benny's do a gluten-free menu these days which has been a real lifesaver for me as I have children who enjoy eating there so now we can all eat when we go out. There does appear to be one in Blackpool - it has good reviews. Open...
  11. cristiana
    GFinDC. Thank you so much for that recommendation, I see in that link they also say it helps with post shingles pain (Lyrica, not wine!). I google too much for my own good on websites looking for answers and I noticed someone said they took just one Lyrica tablet and the neuralgia went away! Now that's effective! Although it looks like one might have...
  12. cristiana
    IrishHeart... thank you so much. It is so good to know I'm not the only one, even more to know that it is behind you now. That gives me hope. Lidocaine patches - oddly enough, a friend of mine was prescribed them and she suggested I tried a box. Would you say best to put it on the spine where the neural path emerges or on the actual painful part itself...
  13. cristiana
    It has been a year now since I went gluten-free. The neuropathy in my hands and feet is pretty much gone. However I now have a different type of odd sensation - pain under my left arm and in the chest/breast area, which sometimes almost feels like an internal itch, hard to describe. Around the time this first struck I also got a burning sensation that ran...
  14. cristiana
    I'm just wondering if some of your new symptoms could be down to your developing a new type of migraine. There are so many different types of migraine out there.
  15. cristiana
    We're off to Edinburgh soon. This'll be the longest trip I've taken since one last year to France which was pretty disastrous in terms of accidental glutening. Hoping for better this time. Any Scottish celiacs out there or recent travellers who can recommend some good value restaurants before I resort to packing a five day picnic, which is something I...
  16. cristiana
    I hope your chiropractor can shed some light on things. As for me, thanks for asking, well, still internal itch, on hip now and chest area again, left side. Seems to be exacerbated by tight clothes, certain movement, stress... doctors can't agree on what it is so I am not getting any treatment. Awaiting some scan results in case it is nerve impingement...
  17. cristiana
    Dolphin I sympathise, we are in the same situation here regarding referrals, you have to go through a GP. Is there any chance you could ask to be referred to another GI and go privately, if necessary, to speed you up the list?
  18. cristiana
    Hello again. I think you should be congratulated on finding out what you have about the fructose intolerance. It is sometimes quite hard to track down what is causing these things. Have the doctors you have seen so far sent you for any particular tests? Particularly, have they ever done an endoscopy? Also is the back pain to the back of where...
  19. cristiana
    Hi Dolphin, welcome to the forum. A lot of us on here are dealing with problems that the doctors can't identify immediately or agree on. It can be very frustrating and sometimes scary. When one is looking for answers it is normal to look to the internet for answers... but then one finds something scary on google! I know exactly what you say...
  20. cristiana
    Amazing book - an absolute godsend. I think it helps that it is written by an ex-sufferer. That chapter on Setbacks may be all you will need to read. Oh... and make sure your iron and B12 levels are good, that will really help. All the very best.
  21. cristiana
    I was very anxious before my diagnosis.. I found a book by a chap called Paul David which helped me understand anxiety better and it gives advice on recovery. I gather some GPs in the UK recommend it and I can see why. He also has a website. Thing is, he explains that setbacks can occur but that doesn't mean you are back to where you were. That helped...
  22. cristiana
    Hi gwynanne4life You sound like my twin in a couple of ways! Firstly, I had that neuropathy (lower legs and feet) at the time I was diagnosed and thankfully after many months sublingual B12 supplements it seems to be all but gone now - a year on. I was so worried about it but by some miracle I met a newly diagnosed English Celiac like me whilst...
  23. cristiana
    Hi Doya and welcome to the forum. I saw your other post - you say that the itching has now gone over to your left side, having started on the right. I have bad irritation in my chest, under the breast, and it wraps around to the back on my left side, these last three months. It has been suggested it is shingles - there is a type without a rash. See my...
  24. cristiana
    Mimsy - I must thank you for this. I had not thought that this would generate any more posts so sorry I haven't come back sooner. The incredible thing my brother in law, a doctor of some 20 years standing, has also said he thinks I have had shingles, either the lesion has been overlooked or it was the type without a rash. So I went to my own surgery...
  25. cristiana
    Hi Ben If you register and join Coeliac UK online they will send you some bumph including a food and drink directory which is very helpful (that is also available online). www.coeliac.org.uk I am in my mid-forties and was told by my consultant that I would feel like a twenty-five year old again once I was on the gluten-free diet. Well... a...
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