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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello Gemini Thank you so much. So interesting that you took three years being as strict as that. I guess I should take comfort that my aura migraines are gone, and I haven't got a nervous twitch with my eyes anymore - it seems something is working! To be honest, the tingling only really gets to me when it is somewhere like my face, when it is in my...
  2. cristiana
    Laura - this is all very sound advice. Have you done Fasano's diet? I would love to hear from you or anyone who has. I have been living with a few mild tinglies since about nine months before my DX. They wax and wane, some come back in different places, sometimes start up again because of low blood surgar following exercise, other (for example a new...
  3. cristiana
    Well cocoa is a plant.... I quite like the idea of that!
  4. cristiana
    Thanks so much! RMJ, or anyone else who has given this a try, can you recommend any hot drink alternatives that might be permissible. I'm thinking probably root ginger sliced in water might be OK; mint or lemon in hot water. Is there anything else that might be nearly as interesting as coffee?! I think the coffee thing might be the most difficult for...
  5. cristiana
    Whoops! Sorry.... I think this should be in the diet section?
  6. cristiana
    I have been thinking about trying Fasano's Gluten Contamination Elimination Diet. Just recently I have had some of my symptoms back - tingling, ulcers, stomach pain. It could just be caused by cc or the very rare occasion where I have eaten a mouthful of gluten by mistake, not really sure. Anyway, I am going to see my gastro consultant again but the...
  7. cristiana
    We have this in our family. Seems to get worse in my case when I am low on sugar. And of course when I am anxious. I have noticed an older relative of mine has it and it has got worse with age. But it isn't Parkinsons.
  8. cristiana
    Hello there. I recommend you take a look at the following link to this excellent website - Think Coeliac! I was diagnosed through a blood test and endoscopy and have been through the NHS system but decided to hasten the process by using my private insurance to get the endoscopy over and done with quicker. Open Original Shared Link Your GP should...
  9. cristiana
    A good friend of mine from this site and I are always ping ponging back and forth from the doctors, meanwhile soldiering on… I'm sure we're not the only ones! What is suffering in my case is the house. I try to be there for my children, the family, the school and a few voluntary things that I do but the house is always a mess. In the olden days I...
  10. cristiana
    I attach a link that you might want to look at. https://www.celiac.com/articles/21858/1/Could-that-Canker-Sore-Mean-Celiac-Disease/Page1.html Do you think these lesions sound like what you have? Pre-DX I had two really bad bouts, felt like my mouth had shards of glass in it when it was at its worse. It was blistering, redness and sores. Both bouts...
  11. cristiana
    Definitely. Migraines visual and painful migraines - thankfully now a thing of the past. Brief episodes of waking up with what is called hympompic hallucinations when the disease first became active ten years ago - weird, but apparently even 'normal' people get them too! Episodes of finding it hard to find the right word for something - that still hits...
  12. cristiana
    Thank you! Lightbulb moment! I share the toothpaste with my family but the other day, by mistake, I used one of my gluten eating children's toothbrushes. Now it may or may not be related but these last two day I have had some awful canker sores develop in my mouth - I had two bad bouts before DX but no recurrences since being gluten-free. Could this...
  13. cristiana
    I'm just wondering - might it be worth having a stool sample analysed in case there is some sort of stomach bug causing this? Also - anxiety - have your iron/B12 levels been checked? If these levels are low, it can really have an impact.
  14. cristiana
    Hi Christine - do you have your B12 numbers to hand? I am interested - before DX they were just over the minimum level for me, which I think with my lab was something like 150. They went up to near 200, then when I started getting D. they went down again. My nutritionalist told me she was surprised I wasn't offered injections. However, I might ask for...
  15. cristiana
    Glad you found out what it was. I hope the eye drops work soon. I read this thread with great interest as I have had some odd eye issues in the last ten years. I had a short episode of double vision when my youngest child was very small and around that time I had lost a bit of peripheral vision for a few days. MRIs were clear though. My eyesight went...
  16. cristiana
    Hi MomB - thanks for sharing. Apart from all the other things I mention, I have noticed that for about a year now I have found it really painful on one side of my body if I wear tight clothing. I thought it might be shingles without the rash - a line along my chest to my spine on the left, it has really hurt to the point of it feeling almost like a burning...
  17. cristiana
    My endoscopy was performed in small private hospital. My first procedure, too. Dreaded it. Wanted to forgo whatever it was they put in my arm - in the UK you can have it withougt any sedation or you can have some sort of shot that kind of knocks you out, although you are still awake, kind of. My doctor and others told me that it would be fine and I should...
  18. cristiana
    An old thread that might be helpful. https://www.celiac.com/forums/topic/83588-gluten-free-and-still-high-ttg-iga-level/
  19. cristiana
    Hi Lance My sympathies as really, until I went gluten-free, I didn't have all the unexplained pains that I do now and I still don't know what to blame: is because I have damage caused by being an undiagnosed celiac for over forty years? Glutening? Other completely unrelated health conditions? Old age?! In my case, PN is tingling, fizzing and buzzing...
  20. cristiana
    I'm just wondering, have you had vertigo linked with gluten in the past? The trouble with vertigo is it has many different causes, including gluten. I only ask as I had a type of vertigo that I attributed to gluten cc that went on for months and it turned out it was cervical dizziness caused by an old whiplash injury. I'm sure others will chime...
  21. cristiana
    Or the odd chocolate!
  22. cristiana
    Bartfull, you are so right. Even some of the most well-meaning of restaurant/kitchen staff will get it wrong: either they don't understand how serious cc is or don't know what gluten is! The other day I went out and there were items marked 'G' on the menu. The key said this meant that the items in question were gluten free. Yippee I thought. But when...
  23. cristiana
    My brother in law lives in Freiburg and says there is an amazing gluten-free shop in his neighbourhood. Anyway, I was just trying to find it and came across this amazing website. The Germans are famous for their efficiency, I am not surprised such a helpful website exists. Anyway, looking at this you aren't going to have any problems over there! Open...
  24. cristiana
    janpell... hi. Not all over tingling. The ball of my left foot, around the ankle; sometimes in the toes (left and right); sometimes up the back of my left calf; a spot on my right calf; I sometimes wake up feeling my fingers have gone to sleep (I do have a DX for carpel tunnel and ulnar compression but some days are definitely worse than others) and the...
  25. cristiana
    Do you know, Icelandgirl, there is always something! I think I shall change my user name to alwayssomething. Just back from hospital tests on Friday, looking forward to a bit of a breather until the next blood tests, and then this buzz in my face starts up again! And in my legs! I am thinking I will go private to get my iron and B12 checked again. My...
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