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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    My cousin has just been telling me how helpful Pilates has been. When I was having some work on my hips and neck my physio said I needed to do it - to do with core strength or something - but I am afraid I still haven't booked onto a course. But my cousin put another light on it for me - she is a farmer and is always hauling heavy weights about. But how...
  2. cristiana
    My own nutritionalist actually saw someone who had been told she had MS and, being a very well-read and informed nutritionalist, just happened to ask this lady if she had been tested for celiac disease. Apparently she hadn't - and guess what, it was celiac disease all along! In the last decade or so have had four MRI brain scans but they have all been...
  3. cristiana
    Hello and welcome to the forum. I think, knowing what I now know about celiac disease, I would probably go for the testing. Some of your symptoms sound rather like mine. I had anxiety, brain fog, joint pain (althought mainly around the sacrolilac joint) muscle twitching (and for me eye twitching) and headaches of all varieties. I also had had...
  4. cristiana
    First aura migraine I ever had, whilst expecting my first child, I could hardly speak, and my hands felt like they weren't mine. Very disorientating. I thought I was having a stroke too. MRI scans showed nothing of concern. This was preceded a few months before with a mouthful of awful ulcers (which now I totally attribute to being a celiac). There were...
  5. cristiana
    Unfortunately due to senior moment syndrome I am not sure where I found it.... but 2013 sounds strangely familiar! I have been watering down my coffee significantly recently as it does seem to aggravate what I hope is the last of my gluten related tingles. I had a large cup when severely dehydrated the other day and my cheek felt like there was an electrical...
  6. cristiana
    Thanks for explaining this as I have just read the same research that Zebra shared and I was wondering, too. I had some problems on holiday and think it was due to the fact that the coffee from the vending machines must have been dispensed from the same nozzle as the hot chocolate, which I suspect had a wheat thickener in it.
  7. cristiana
    Thanks for posting this. It would be interesting to see what it looks like now, as you say. I think your doctor didn't do the exact same tests as my own, so I can't compare those readings with my own, but hopefully someone who knows about these particular tests might chime in.
  8. cristiana
    Definitely. When you get a breakdown of your Liver Enzyme Tests you may see the words albumin and globulin. Human blood contains blood protein - albumin and globulin. As I understand it if globulin is above normal levels it might indicate chronic inflammation in an auto-immune condition or can simply be a response to an infection. If either of these...
  9. cristiana
    Welcome to the Forum. Did your doctor say what level was high to indicate inflammation? In my case it was elevated globulin levels which I think is a pretty odd presentation for celiacs, but my gastroenterologist said it was unusual but it did happen. At the time my obvious symptoms were anxiety and anemia. I had suffered from migraines for years...
  10. cristiana
    Welcome to the Forum, Emma! I, too, am British - and there are several of us that use and contribute to this site, although you will notice most contributors are from the States, so I tend to drop the mystery 'o' in the British spelling of Coeliac when I type (and after all this time I am not sure why we include it!) Are you a member of Coeliac...
  11. cristiana
    Some years ago a nurse told me ginger could be beneficial. This article is interesting, see what you make of it.... Open Original Shared Link My dad had arthritis in his knees - I realise a completely different joint - but he did say that keeping weight down really makes a difference.
  12. cristiana
    Thanks so much friends. My GP did tell me that I could keep taking them but I wanted to check with the experts on this board too. The buzzing in my cheek is really playing up now having almost fizzled out (literally!) UNTIL I saw my doctor and she told me she was going to give me a barrage of blood test - B12 is just one of them... She has ordered so many...
  13. cristiana
    All the very best. I completely share your pain - I have on and off hip pain, and really don't like it when the doctor's office rings back! Just for what it is worth, a chiropractor told me my pain is sacroiliac pain even though sometimes it feels like my whole hip is on fire and needs replacing. SI pain is common in celiacs. So maybe that is it. Anyway...
  14. cristiana
    Absolutely nvsmon. I think doctors are quicker to pick this up in men - I know of two men who were dx'd just because of anemia. I think this was why my dx took so long to make... unfortunately in women anemia is often attributed to other factors.
  15. cristiana
    Mine was 9 before, and about 18 months later, 41. This is all from memory so subject to slight error. Thing is, I was able to absorb iron so when I was on some very hefty supplementation it went up very quickly initially. I think to 16 after six weeks. Then I took the pills on a more ad hoc basis because they never really agreed with me. After I admitted...
  16. cristiana
    I'm looking on advice on whether taking a B12 supplement prior to a blood test will distort the true picture by 'artificially' raising the amount in the blood. I have a few tingles and twitches which surface from time to time and am pretty sure that it is when my B12 is low. I have started on methycobalimin 1000mcg sublingual supplements in the last...
  17. cristiana
    Thanks so much Porcelain-dissonance. I have looked it up and it could be what is happening here, too. The attached seems to suggest sometimes these things get better with time - which is what appeared to happen when I had my first big experience of it around the time of DX. In recent months I have taken my eye off the ball really, not compromising on gluten...
  18. cristiana
    That is so interesting... thank you Cyclinglady. My friend's son and a distant aunt had this; I have done some research just now as you suggested and it seems that stress can bring it on, among other things. Interesting... I have been taking B12 for the last two weeks and PN symptoms in my feet and hands are much better, therefore I think I am low...
  19. cristiana
    I would be very interested to hear from any celiacs who have ever experienced tingling in their face. I was dx'd two years ago. About six months prior to my dx I went through an incredibly stressful time while my doctor did blood tests trying to find out what was wrong with me. I developed eye twitching and buzzing in my face which after a couple...
  20. cristiana
    Hi Alan This is one of my favourite resources, it is written for doctors in the UK, so don't be put off the European spelling of Coeliacl. I had migraines and a few other minor issues that I just thought were normal for me until I went on the gluten-free diet and they started disappearing. It is a bit like putting a jigsaw puzzle together which...
  21. cristiana
    I don't understand why gluten-free alternatives aren't fortified in the way that mainstay stuff is, such as bread and cereals, here in the UK. I am sure we need the vitamins more than the average person!
  22. cristiana
    Back on this topic, again. I am thinking about going back to my doctor as I do think I have small fibre neuropathy symptoms returning to the levels I had at DX - MomBTired's posted link has really made me think. I guess I could have blood sugar issues but I am not so sure. In recent months I have stopped supplementing and the tingles and buzzes have...
  23. cristiana
    Hi Alan. Welcome to the Forum. Have you ever had your B12 or iron levels checked? If these are low they can really affect anxiety levels - please get them checked if you haven't. I suffered from severe anxiety about six months before my diagnosis and obvious gastro symptoms started. (racing thoughts, weird physical sensations, waking up with...
  24. cristiana
    So right Laura - I had awful pain with orange juice for so long! But it took me soooo long to figure it out.
  25. cristiana
    Thyroid is a pain from what I've seen people go through. However, the age thing is another factor that just makes things even more difficult to figure out. I often wonder if I had been diagnosed ten years ago as some of my friends were whether it would have been an easier ride. However my overriding problem is being a lifelong hypochondriac, which has...
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