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Latest Celiac Disease News & Research:
Everything posted by cristiana
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ARCHIVED Ferritin levels and celiac?
cristiana replied to Breezy1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mine was 6 at diagnosis and has been as high as 40 since, but has recently gone down to 12. I've had gastritis over the summer so have been staying away from supplements as iron hurts my stomach. I wonder if you have any symptoms? I find that my hair thins when my iron reserves are low. I also get itchy skin, and a sore tongue. A consultant said... -
ARCHIVED Negative test...doctors reaction. OUCH!
cristiana replied to larann78's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A friend of mine had some serious neurological symptoms going on. She also had a rash. I don't think anyone ever thought the problem might be gluten (apart from me!), but she is a great baker and spent a few months baking stuff for a friend who was told to go gluten free. So she kept this friend company, eating all this stuff. All the symptoms went away... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Its interesting you should say that. I don't normally drink alcohol, I've always felt it tasted like medicine - no idea why! - but drank some sparkling wine recently out of politeness. Oh the pain! At my last appointment my gastroenterologist had asked me if I drank - she never told me why, but if that's what alcohol does to people with gastritis it should... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Hello everyone Thank you so much for all your contributions and tips, I'm sorry for my absence but I've had a big project deadline to complete. Over all, I think things are on the mend for me too. I was quite cynical at the doctors' approach at first. I'd have much rather had a scope to find out what was happening, instead of being prescribed three... -
ARCHIVED If you could correct one misconception about celiac, what would it be?
cristiana replied to Jmg's topic in Coping with Celiac Disease
Couldn't agree more. If only it were so simple. -
ARCHIVED Lower back pain
cristiana replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Also, carrying heavy weights. Try not to! I find heaving heavy shopping bags, especially carrying them on one side, causes dreadful pain. It is difficult but if you possibly can try not to carry heavy weights. I even find if my handbag (purse) gets over-stuffed with heavy things it can set things off. x -
ARCHIVED Lower back pain
cristiana replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Victoria Looking back, I've had it for years too. To be honest, magnesium, vitamin D (fish oil capsules), B12 and iron are the only supplements I take on a regular basis. I think if you get a diagnosis of SI problems you may be able to find some exercises that will help. Oddly enough one big thing that happened which reduced the pain... -
ARCHIVED Lower back pain
cristiana replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi - your pain sounds very familiar. A chiropractor will probably be able to confirm whether you have this problem or not because there is an area, sort of at hip level, either side of the spine, that often huts if you press down on it when you have this problem. When I get referrred pain and wonder what on earth is going on I press this area and - BINGO... -
ARCHIVED Lower back pain
cristiana replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have pain in my lower back, groin, thigh, glute - it was eventually diagnosed as sacroiliac pain. You might want to look it up. Apparently it is quite common in celiacs. As referred pain charts will show you, the pain is far from localised. Mine can be so tight at times it is difficult to walk. It burns when I have been sitting around too much... -
ARCHIVED High Incidence of celiac disease in Long Term Study
cristiana replied to cyclinglady's topic in Publications & Publicity
This is all so interesting! I have thought the incidence must be far higher than 1% for a long time -' we' seem to be everywhere. Today the shop assistant serving me was a celiac. The landlady at my holiday cottage is a celiac. Several of my friends are celiacs... The vicar is a celiac. My hairdresser is a celiac. People keep telling me their sibling... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Whitepaw, I'm so glad you have had this breakthrough. It is really good to know that something as simple as corn could be exacerbating things. The cookbooks look really promising and I will see if I can buy at least one of them. I think you are doing really well on your journey and I'm so grateful that you have been here holding my hand all these weeks... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Nope. Whitepaw, all I can say is I hope you are doing better than me! I had a really bad afternoon six days ago. I went out to tea at this posh hotel with my family and made the mistake of just drinking boiling water and watching them eat scones, jam, cream and by five I had that awful burning under my sternum and then that awful bubble sensation... -
ARCHIVED iron pills gastropathy/gastritis
cristiana replied to ironictruth's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I struggle with iron - even taking ferrous glucanate can sometimes cause symptoms. This summer I have been struggling with gastritis caused by, I believe, a combo of aspirin damage, iron and stress. I think things are slowly improving but I am still taking Zantac. I desperately need iron as I was borderline anemic a few months ago. I've managed to get... -
Chest tightness only symptom of being glutened?
cristiana replied to Noobette's topic in Coping with Celiac Disease
I had to comment as although I don't think I've had this reaction to glutening, I have had it when I have had to take iron and also now with ongoing suspected gastritis. I figure it is bloating, and get some relief when I drink hot water or mint tea. All the pressure is under my rib cage and I recall once crossing the road in town wondering if I'd actually... -
ARCHIVED Henderson's Relish - don't leave Yorkshire without it!
cristiana replied to cristiana's topic in Introduce Yourself / Share Stuff
Eeh bah gum, ta JMG! I find it fascinating that it has almost the same (or is it the same) colour label as Lea and Perrins? I wonder which came first? Hopefully they have moved from the building in the photo as they are selling so many bottles that they need bigger premises. Funny though - I thought you'd sent me a picture of a pub when I first... -
ARCHIVED Henderson's Relish - don't leave Yorkshire without it!
cristiana posted a topic in Introduce Yourself / Share Stuff
Just in case anyone is visiting Yorkshire in England, don't leave without buying a bottle of Henderson's Relish, which is Gluten Free! I am sure it can be bought elsewhere in the UK, but I have never seen it where I live, so I bought a couple of bottles when I was last in Yorkshire. It is quite delicious and a good Lea and Perrins substitute, plus it... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Isn't it bliss to be able to eat normal food again! And yet - things can't be right yet, as like you, I pay for it later. The sparkling wine was a real surprise to me: I don't like alcohol normally and I drank it to be sociable - if alcohol has this affect on others with gastritis, I now understand why the last consultant I saw asked if I drank. She was... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
How are you doing, Whitepaw? Are you GI symptoms continuing to improve? How is the rash? I'm feeling bloated, a mild discomfort still under my left rib some of the time, and although I thought my tum was better when I had a third of a glass of sparkling wine at a party the other day that burning pain came back for the afternoon. Hope you are faring... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Hello Awol Cast Iron Stomach - love it, your 'name' describes my former self. Thank you so much for sharing this, you have encouraged me no end because the last couple of days (probably since I decided chocolate and pizza were back on the menu) have been pretty rough. Just now I've had a little bit of bread and some Manuka honey, and just as I found... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Hiya Whitepaw Back from a week in the North of England. It was an annual holiday and I can tell you, just having less stress made a huge difference. Most days I've been on 75mg of Zantac. Half the time I might have needed a Gaviscon tab once a day, or some slippery elm (a teaspoon) in the evening, but that was just when I was eating too late or eating... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
If I'm at home I take the liquid - they sell both forms here in the UK. That said, chewables are handy - I put them in my handbag for any attacks that happen when I am away from the house! One normally settles things. I hear you about the inconsistency of symptoms - I have this too. I'm beginning to wonder why that is. Sometimes I think it is down... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
I think I could have become slightly intolerant of dairy again (I was around DX and have since recovered but it was slow). But I'm not quite sure because the side effects of Gaviscon can involve diarrhea. Even slippery elm affects my stool (sorry). It is hard to understand what is going on when the side effects mimic celiac symptoms! One thing I found... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you so much for all your help. Do keep me posted on your GI appointment next week. I've been reading about stomach ulcers (just in case I've got one) and chamomile tea seems to keep coming up. One website recommended four cups of chamomile a day which I'm going to attempt. https://draxe.com/ulcer-symptoms-diet-natural-remedies/ I've... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
Whitepaw, I also meant to say that my friend who has been having extreme gastritis issues since the winter (now it seems to be getting better after tapering off Lanzaprazole and introducing more natural remedies) told me that she used to feel acid in her stomach first thing, too. But now finally she is feeling better. It is good to know that there... -
ARCHIVED Gastritis or Glutening - Slippery Elm
cristiana replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
With omeprazole I never felt entirely good really - some time every day I felt off, but I think it might have been the bloating. Perhaps I never gave it long enough. Yet that nauseous feeling and diarrhea carried on for a few days after I stopped taking it. Now on day four of Ranitidine/Zantac. I did feel nauseous mid-morning but had to go on a few...