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cristiana

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Everything posted by cristiana

  1. cristiana
    Having had a horrid time with a sore tongue recently, I can pass on a bit of advice from one consultant. It is good to ensure that one's ferritin is up to at least 40 to deal with sore areas in the mouth. Might be worth getting a blood test. Also, B12 is another one to watch.
  2. cristiana
    Hi there KeriMary I think iron is something worth looking into on this one, too. My teenage daughter has been looking pale recently and has started using the wrong words for things - something that I do when my iron is low. It made life interesting when I used to have to give talks. One evening the audience was joining in as I tried to...
  3. cristiana
    A quick update for anyone who gets these odd readings with their coeliac disease. My ttg was elevated - significantly - in November (86) and the LFT/LET they ran showed my immunglobulins are up yet again - three points above normal. So it seems to be that my liver gets angry when I get gluten in my diet. Two gastrenterologists didn't even mention it...
  4. cristiana
    That's a great link Jmg. I often wondered. I have a funny feeling in 100 years, because language is ever changing, the 'o' will have dropped out of the English version. Like now it's all right to write alright, etc etc.
  5. cristiana
    Might be worth a TTG test, Icey?
  6. cristiana
    Interesting... I've just seen an incredible hospital nutritionalist about my recently elevated numbers. I thought I had gastritis with burping and upper bloating and burning over the summer. But it was gluten all along as my TTG went up to the 80s, and yet I thought I was being sooo good. Just goes to show. She reckoned a few glutenings in the autumn...
  7. cristiana
    Just a thought... I had ongoing tingling etc and I think it was when I mentioned this to my gastro he added a folic acid test to my slew of bi-annual blood tests. It turned out I was borderline normal. I seem to recall, too, that someone posted on this forum who had these symptoms and it was caused by too much B6. So maybe a couple of other...
  8. cristiana
    Hi Paigey Pants I've not tried it yet but I intend to, once the Christmas gluten-free treats are finished. Probably a couple of days into the new year. I'm going to go down this road as I have recently been tested and have elevated TTG, yet I thought I was being good enough. I can see stuff is probably sneaking in from my shared kitchen; in the...
  9. cristiana
    Hello there I was diagnosed in 2014 after experiencing a period of dreadful anxiety (phobias, mind racing in the small hours of the night, a feeling of impending doom etc, inability to function during the day, brain fog). Before I was diagnosed it was discovered I was low in iron (ferritin) at level 6, and just above normal B12. Supplementing...
  10. cristiana
    RMJ - this is great. Thank you. Documented on another thread, I too have had the disappointing news that I wasn't doing enough because after four years of what I thought was being super strict it was not enough. I take heart that at least my numbers are on a downward trend. Come the New Year I'm going to do exactly what you are saying.
  11. cristiana
    Happy Christmas from another corner of England to all my friends on this forum.
  12. cristiana
    Well, having trawled through mountains of mince pies I have concluded Sainsburys and Costa deserve joint first prize for the standard type; Sainsburys for the iced type. But the problem is the latter sold out days before Christmas. I didn't get to eat a Morrissons pie, nor an Asda one (if they do them). What do you think, JMG?
  13. cristiana
    Trents - G'day and thank you. I've been on gastritis meds this summer but then the pain was to the left. All this trouble started with glutening, iron supplements, a virus and aspirin (I know, stupid) in July plus a shedload of stress. I have been 'out of kilter' since. the doctors prescribed omeprazole, then ranitidine. I came off these at the end...
  14. cristiana
    Hello again Does anyone know whether my current elevated TTG status (in the 80s) would lead to burning pain. It seems worse when I start eating, and also when I get hungry. It is just under my right ribs, about an inch or two down from the sternum, almost along the ridge of where the ribs end. It woke me last night, a couple of times. I've...
  15. cristiana
    I'm not sure if this will help but I've had quite a few issues with my mouth over the years with a sore areas and canker sores, burning and tingling. The specialist that saw me about one particular lump this year told me I was vulnerable because my iron was low, and wrote in a follow-up letter to my gastroenterologist that I should aim to have ferritin levels...
  16. cristiana
    Hello again friends - still on the subject of TTG but a slightly different question. How quickly do TTG figures go up and down? If mine are 86, and I go on the Fasano diet in the New Year (before then I'll try really hard to be strict, too, but will probably eat certified gluten free food as it is Christmas!), should the figures have halved within...
  17. cristiana
    A very helpful post. Thank you, I'm going to try this.
  18. cristiana
    What a lovely group of friends you all are. Thank you! I was devastated at this news yesterday as for nearly five years I've been living under the delusion that all was well. Several of you on this website have mentioned the annual TTG test but I trusted my consultant implicitly, and thought that testing was just the American system. Alarm bells...
  19. cristiana
    Thank you cycling lady! On the positive, there is room for improvement. I would be even more upset if I'd been on a whole food diet all this time in an exclusively gluten free kitchen. It also occurs to me I've been wearing more lipstick recently and I haven't a clue if this could also set things off. I guess too that I could be one of those...
  20. cristiana
    Poster boy - thank you SO much for this post. You concluded with a quote from the KJB which I read only last night - before I knew any of this. You have encouraged me greatly. I'm going to read it later when the house is quiet but that is so interesting that an elevated TTG can be indicative of a problem with another protein. Thank you so much again...
  21. cristiana
    Bigchan - welcome to the forum. As Trents says, this isn't uncommon. I've today found out that my TTG levels are still significantly elevated at 86. Now I've been referred to a nutritionalist (again). As someone who is stricter than most I'm very disappointed. Trents - not meaning to hijack this post but these are encouraging words which I needed...
  22. cristiana
    Hello Friends You have a very shellshocked celiac posting this message this morning and I could do with some encouragement. Anyone who knows me will tell you I am a crashing bore when it comes to avoiding gluten. I hardly ever eat out; I take my own food, and read this forum almost every day. I had gastritis (not DX'd by endoscopy) earlier...
  23. cristiana
    Thank you so much for this, Ennis. The receipe sounds great. Thank you for the links, too. I'll look out for these in the UK - we do import quite a lot of gluten-free stuff from the States.
  24. cristiana
    Wow Ennis - that's really helpful. I do miss flapjacks - these recipes sound great. Yes please - a link for the flapjack especially.
  25. cristiana
    I'm not sure what your symptoms are when you are cc'd but if you are suffering from pain and D, and you are newly diagnosed, it could just be that your system is still healing and you are finding it hard to deal with this type of fibre. I was unable to eat lentils for a very long time after my diagnosis - it brought back the same sort of burning pain...
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