Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1):


deezer

Advanced Members
  • Content Count

    57
  • Joined

  • Last visited

About deezer

  • Rank
    Star Contributor

Recent Profile Visitors

6,992 profile views

About Me

  1. @cristiana, Hi! Thank you. This is helpful information. My Ttg has been low, but I did have a level of DGP recently that was barely positive and suggestive of the need to follow up for refectory celiac. However, a biopsy done near that time was totally clear. How did you get rid of your...
  2. I had a colonoscopy long ago, when I was first diagnosed. Haven't had one since. I had antibody test for Crohn's disease - they were clear. I have not had any pancreatic function tests other than serum lipase/amylase, though CT/Ultrasound are clear. I have not had any Spleen function tests...
  3. I should also mention that a recent EGD was completely clear, no signs of any damage to esophagus, stomach or small intestine. Also, what I thought was Beau's lines wasn't really - it was from me pushing down on my nail beds. My fingernails look mostly normal. It's the ongoing Left Upper...
  4. 7 years later I still have this. Wondering if anyone else can relate to this or offer any advice? :)
  5. That's interesting, but I believe they are not looking at serum CD57 levels - they are looking at levels in intraepithelial lymphocytes (IELs), lamina propria (LP) lymphocytes, and glands. In the study I linked above, they look at serum CD57 levels and find them to be low in several autoimmune...
  6. Does anyone have any information about CD57 NK cells in Celiac patients? I am trying to understand if my levels are normal and if there is anything I should do or can do to correct. I had a low lab test (CD8-CD57+ Lymphs 1.4% (ref 2.0-17.0), 15 Abs (ref 60-360)) and am concerned about my ability...
  7. What did you figure out with this? Does anyone else also experience this? I do.
  8. Where do you get gluten-free Kefir grains?
  9. What about the facility where it is processed? Do they sample the product to ensure it is indeed Gluten Free?
  10. I did try eliminating Soy for awhile. I had an IGg ELISA Food Allergy test done that showed some sensitivities to a variety of foods, so I I actually eliminated ALL of the following for 3-5 months (depending on the severity of the results), and then reintroduced them, one per week. I did in general...
  11. I had an MRI of my thoracic spine - which came out clear. X-rays and exam showed some scoliosis, but nothing major. YES - I do have those pain points running along both sides of the spine - many spots along my spine I can push on and feel quite a bit of pain. Thankfully my thighs and...
  12. My Celiac Diagnosis: - Diagnosed with Celiac Disease by an off-the charts tTg (Tissue transglutaminase) test, inflammation in my duodenum, and a small intestinal biopsy. - Symptoms were primarily neurological (tingling & numbness in my toes, fingers, head, paresthesia in my face). - Also...
  13. How strict are you? Do you eat "gluten free" packaged food, or do you prepare everything for yourself? Have you ever tested your food?