Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Pancreatic Enzymes An Celiac

TLymanP
 Share

Recommended Posts

TLymanP Rookie
TLymanP
Posted

has anyone with celiacs had experience with increased amylase and lipase levels when getting their bloodwork done? are these enzymes related in anyway to celiac?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Lindam
Guest Lindam
Posted

Yes I have had my bloodwork done, only to find something else wrong. My GI Doc said about 20% of Celiacs with have trouble with there pancreas. I am now on Lipram, taking 2-4 tablets with every meal and snack, taking up to 24 pills a day. I am feeling better, but I hate taking more pills.

Let me know if you have any other questions.

Linda :)

TLymanP Rookie
TLymanP
Posted
  • Author

Thanks for responding linda!! :)

so can i ask your situiation? were the enzymes amylase and lipase elevated in your bloodwork? its just that my doctors cant figure out whats wrong. i had elevated pancreatic levels in my blood work. but my enzyme function test was fine. so that cant be causing all of my weight loss and being unable to gain weight. could you explain your situiation to me? thank you so much!!

Tyler

Carriefaith Enthusiast
Carriefaith
Posted
My GI Doc said about 20% of Celiacs with have trouble with there pancreas

wow, I didn't realize there were that many celiacs with pancreas problems. I guess it's more common than I thought. I think I may be having problems with my pancreas and I have been doing some research on it. I seem to have a lot of the symptoms of chronic pancreatitis.

hthorvald Rookie
hthorvald
Posted

What kind of blood test did you have that provided these results? When I was first diagnosed, they did some extra CT scans to confirm that I didn't have cancer (I was 51 when diagnosed and pretty sick) and discovered that my pancreas was enlarged. When they did a repeat scan to take a better look, all was normal. There was about 3 or 4 weeks between tests and I had been gluten free for only 5 weeks by the time the second test was run, so maybe going gluten-free caused everything to go back to normal. But, I'm having my physical in a couple of weeks and plan on discussing my pancreas with my doctor to confirm that all is well. If I know the name of this blood test, I'll ask for it -- if for nothing else, peace of mind.

H.

TLymanP Rookie
TLymanP
Posted
  • Author

Hi,

they need to check the enzymes amylase and lipase. those are the enxymes that are secreted by the pancreas. hope that helps:)

Tyler

Guest Lindam
Guest Lindam
Posted

Hi All,

I went into the hospital having horrible vomiting and diarrhea attacks and they thought I was having a heart attack at first. So at that time they did every test under the sun, and noticed that the amylase and lipase levels were elevated, but before they could go anyfurther... more tests. So anyway, to make a long story short, I had gallbaldder problems, besides the celiac disease and after taking that out, everything went to heck. One time the levels would be okay, the next not. So I discussed all the scenarios with the Dr. and he stated that about 20% of all Celiacs have this problem and need to be on this medication. Once again I am on Lipram and take up to 24 tablets a day. Sometimes it really makes me want to choke, but I think what the heck, if overall I am feeling better, then why not. Since going on it he has not checked my blood again, and because I am doing so well, he doesn't want me to come back for another year! Yippee!

I hope this helps, and if I didn't answer your question, sorry, ask me again.

Linda

:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

Thanks for your info Linda. I'm trying to get all the stuff I can on pancreas problems and celiac disease.

  • 13 years later...
deezer Apprentice
deezer
Posted

How did you make out?

Ennis-TX Grand Master
Ennis-TX
Posted
39 minutes ago, deezer said:

How did you make out?

This is a old post from 2005, if your having issues please start a new topic and perhaps someone can help?


I have some odd pancreas issues with mine not producing enough, seems I had some issues with my immune system attacking my nervous system etc. and after a gluten exposure a few years ago I stopped digesting some foods like meats, animal fats, etc. And would vomit them up hours later or poop them out undigested. I have to take porcine enzymes before meals to digest meals, and even then it messes with how much of foods I can eat and meats have to be limited. >.< I seemingly do not respond blood glucose well either as my blood sugar spikes to hell with carbs/sugars. So I assume my pancreas is FUBAR but no insurance anymore to get stuff tested.

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      These articles may be helpful:
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      5

      Skin issues

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph, by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some...
    3. N Young
      - N Young posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Frustrated with Providers

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time. Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten...
    4. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    5. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Test interpretations

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,116
    • Most Online (within 30 mins)
      10,442
    DiDi53
    Newest Member
    DiDi53
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Iron loss and potential celiac.

      By Scott Adams · Posted

      These articles may be helpful:    
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph,  by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some pills ! I made the mistake of saying Im waiting on Infectious disease. She asked how did I get referral and I said I did it online.The next day I checked the status and it was denied! I did get  a referral to the dermatology office i went to last year that over charged me and did a biopsy on me stating inconclusive! I went to another dermatologist and he stated I should see Infectious disease at place i put in referral. With that I contacted that dermatologist and waiting to see if he thinks dermatology or Infectious disease is the route.I do have appointment for dermatology next week.Until then i did purchase Zahler paraGuard advance intestinal  flora support  from Sprouts. Im also very alarmed that the fact celiac isn't addressed properly infact its downplayed. When I had my son tested for HLA-DQ2 and it came out positive because he is eating everything and he is extremely skinny but he isn't dealing with severe diagestive issues because thats all he knows NOW or yet because he is still young 21.I too didn't know any difference when i was that age because thats all we know.Life changes will get him in latter years im afraid because what im dealing with.That scares me.The specialist we went to was only about congestion he is getting.He is getting congestion because he is eating what he isn't supposed too! Zero talk about celiac and HLA-DQ2 positive. Only talk was he is congested because we live in the Valley! They wanted to do surgery! I did write again to our district leader considering when I did call, the guy stated he knew all about celiac. I really wanted to tell him NO YOU DON'T but held my tongue. For my skin sores the cream given didn't do anything because ive also had in past.Ive been putting liquid vitamin c on it and taking vitamins which is making a little difference just with the last few days of doing.
    • N Young
      Frustrated with Providers

      By N Young · Posted

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time.   Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten challenge. I went on an elimination diet and found relief on the Dermatitis within a month. I have no doubt that I am celiac and very sensitive now. Now my issue is that I changed physicians due to retirement and he performed a blood test and included a celiac test. I was very upset because I did not request the test and had not been eating gluten for 25 years. Of course the test was negative.  My question - Will this cause me any issues with health treatment if my records now have that I dont have celiac? I like this physician and I am appalled that he performed the test. (he told me his brother is also celiac).  I feel that we are still living in the dark ages. I dont want to cause problems because I rarely need health treatment since I live a fairly healthy lifestyle.  Since I am at this age and been through so much getting to this point am I being unreasonable for being upset? I am not expecting to see this physician for another 2 months.  Need to know if I can expect issues with future treatments. How can a physician not know about the gluten challenge this day and age?   
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    • trents
      Test interpretations

      By trents · Posted

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour bread) for at least two weeks prior to the day of the procedure. @Ginarwebb, your tTG-IGA >250 would seem to be a pretty high test result, though to be sure of that statement, I would need to see what the lab used for a "normal" range. Do you have that number also? Different labs use different scales. There isn't an industry standard yet. The tTG-IGA is the centerpiece of celiac blood antibody testing. Your ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER (aka, "EMA") is positive as well. This is an older test, and a relative expensive one, compared to the tTG-IGA which has largely replaced. But the EMA is still ordered by some docs and is highly reliable. That both of them agree in your case and this is strong evidence that you have celiac disease. Concerning the ENDOMYSIAL ANTIBODY TITER (aka, "total IGA") being high, there are two things of importance. First, it tells us you are not "IGA deficient" such that your tTG-IGA test result is reliable. Second, a high total IGA test score can suggest other health concerns, some of which are serious. It can also mean nothing. Talk to your doctor about this. I would also suggest you research the implications of a high total IGA. In addition to IGA celiac diagnostic tests there are also IGG tests which are handy when total IGA is sub normal.  Here is an article outlining the various tests that can be run for diagnosing celiac disease:  
×
×
  • Create New...