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TLymanP

Pancreatic Enzymes An Celiac

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Guest Lindam

Yes I have had my bloodwork done, only to find something else wrong. My GI Doc said about 20% of Celiacs with have trouble with there pancreas. I am now on Lipram, taking 2-4 tablets with every meal and snack, taking up to 24 pills a day. I am feeling better, but I hate taking more pills.

Let me know if you have any other questions.

Linda :)

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Thanks for responding linda!! :)

so can i ask your situiation? were the enzymes amylase and lipase elevated in your bloodwork? its just that my doctors cant figure out whats wrong. i had elevated pancreatic levels in my blood work. but my enzyme function test was fine. so that cant be causing all of my weight loss and being unable to gain weight. could you explain your situiation to me? thank you so much!!

Tyler

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My GI Doc said about 20% of Celiacs with have trouble with there pancreas

wow, I didn't realize there were that many celiacs with pancreas problems. I guess it's more common than I thought. I think I may be having problems with my pancreas and I have been doing some research on it. I seem to have a lot of the symptoms of chronic pancreatitis.


Carrie Faith

Diagnosed with Celiac Disease in March 2004

Postitive tTg Blood Test, December 2003

Positive Biopsy, March 3, 2004

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What kind of blood test did you have that provided these results? When I was first diagnosed, they did some extra CT scans to confirm that I didn't have cancer (I was 51 when diagnosed and pretty sick) and discovered that my pancreas was enlarged. When they did a repeat scan to take a better look, all was normal. There was about 3 or 4 weeks between tests and I had been gluten free for only 5 weeks by the time the second test was run, so maybe going gluten-free caused everything to go back to normal. But, I'm having my physical in a couple of weeks and plan on discussing my pancreas with my doctor to confirm that all is well. If I know the name of this blood test, I'll ask for it -- if for nothing else, peace of mind.

H.


Helen Kendrick

Gluten free since 5/03/04

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Guest Lindam

Hi All,

I went into the hospital having horrible vomiting and diarrhea attacks and they thought I was having a heart attack at first. So at that time they did every test under the sun, and noticed that the amylase and lipase levels were elevated, but before they could go anyfurther... more tests. So anyway, to make a long story short, I had gallbaldder problems, besides the celiac disease and after taking that out, everything went to heck. One time the levels would be okay, the next not. So I discussed all the scenarios with the Dr. and he stated that about 20% of all Celiacs have this problem and need to be on this medication. Once again I am on Lipram and take up to 24 tablets a day. Sometimes it really makes me want to choke, but I think what the heck, if overall I am feeling better, then why not. Since going on it he has not checked my blood again, and because I am doing so well, he doesn't want me to come back for another year! Yippee!

I hope this helps, and if I didn't answer your question, sorry, ask me again.

Linda

:)

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Thanks for your info Linda. I'm trying to get all the stuff I can on pancreas problems and celiac disease.


Carrie Faith

Diagnosed with Celiac Disease in March 2004

Postitive tTg Blood Test, December 2003

Positive Biopsy, March 3, 2004

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How did you make out?


For God loved the world so much that he gave his one and only Son, so that everyone who believes in him will not perish but have eternal life. - John 3:16

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39 minutes ago, deezer said:

How did you make out?

This is a old post from 2005, if your having issues please start a new topic and perhaps someone can help?


I have some odd pancreas issues with mine not producing enough, seems I had some issues with my immune system attacking my nervous system etc. and after a gluten exposure a few years ago I stopped digesting some foods like meats, animal fats, etc. And would vomit them up hours later or poop them out undigested. I have to take porcine enzymes before meals to digest meals, and even then it messes with how much of foods I can eat and meats have to be limited. >.< I seemingly do not respond blood glucose well either as my blood sugar spikes to hell with carbs/sugars. So I assume my pancreas is FUBAR but no insurance anymore to get stuff tested.

 


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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