Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cristiana

Moderators
 View Profile  See their activity

  • Posts

    1,891

  • Joined

  • Last visited

  • Days Won

    74

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello again Does anyone know whether my current elevated TTG status (in the 80s) would lead to burning pain. It seems worse when I start eating, and also when I get hungry. It is just under my right ribs, about an inch or two down from the sternum, almost along the ridge of where the ribs end. It woke me last night, a couple of times. I've...
  2. cristiana
    I'm not sure if this will help but I've had quite a few issues with my mouth over the years with a sore areas and canker sores, burning and tingling. The specialist that saw me about one particular lump this year told me I was vulnerable because my iron was low, and wrote in a follow-up letter to my gastroenterologist that I should aim to have ferritin levels...
  3. cristiana
    Hello again friends - still on the subject of TTG but a slightly different question. How quickly do TTG figures go up and down? If mine are 86, and I go on the Fasano diet in the New Year (before then I'll try really hard to be strict, too, but will probably eat certified gluten free food as it is Christmas!), should the figures have halved within...
  4. cristiana
    A very helpful post. Thank you, I'm going to try this.
  5. cristiana
    What a lovely group of friends you all are. Thank you! I was devastated at this news yesterday as for nearly five years I've been living under the delusion that all was well. Several of you on this website have mentioned the annual TTG test but I trusted my consultant implicitly, and thought that testing was just the American system. Alarm bells...
  6. cristiana
    Thank you cycling lady! On the positive, there is room for improvement. I would be even more upset if I'd been on a whole food diet all this time in an exclusively gluten free kitchen. It also occurs to me I've been wearing more lipstick recently and I haven't a clue if this could also set things off. I guess too that I could be one of those...
  7. cristiana
    Poster boy - thank you SO much for this post. You concluded with a quote from the KJB which I read only last night - before I knew any of this. You have encouraged me greatly. I'm going to read it later when the house is quiet but that is so interesting that an elevated TTG can be indicative of a problem with another protein. Thank you so much again...
  8. cristiana
    Bigchan - welcome to the forum. As Trents says, this isn't uncommon. I've today found out that my TTG levels are still significantly elevated at 86. Now I've been referred to a nutritionalist (again). As someone who is stricter than most I'm very disappointed. Trents - not meaning to hijack this post but these are encouraging words which I needed...
  9. cristiana
    Hello Friends You have a very shellshocked celiac posting this message this morning and I could do with some encouragement. Anyone who knows me will tell you I am a crashing bore when it comes to avoiding gluten. I hardly ever eat out; I take my own food, and read this forum almost every day. I had gastritis (not DX'd by endoscopy) earlier...
  10. cristiana
    Thank you so much for this, Ennis. The receipe sounds great. Thank you for the links, too. I'll look out for these in the UK - we do import quite a lot of gluten-free stuff from the States.
  11. cristiana
    Wow Ennis - that's really helpful. I do miss flapjacks - these recipes sound great. Yes please - a link for the flapjack especially.
  12. cristiana
    I'm not sure what your symptoms are when you are cc'd but if you are suffering from pain and D, and you are newly diagnosed, it could just be that your system is still healing and you are finding it hard to deal with this type of fibre. I was unable to eat lentils for a very long time after my diagnosis - it brought back the same sort of burning pain...
  13. cristiana
    Another thought came to me yesterday. I spent some of the day with someone who is suffering from post-herpetic neuralgia and it occurred to me this is where I had the weirdest symptoms a few years ago that a doctor thought might be shingles without the rash. I wonder if this could be a return of PHN? But then when I read what a hiatus hernia feels...
  14. cristiana
    Good point Ennis, magnesium is a wonder. Also good for twitching muscles, as I have found.
  15. cristiana
    Also, low iron and folic acid. I think you should get your levels tested, supplementation can make a real difference if it is required. However - make sure it IS required by being tested, as overload of certain vitamins, minerals etc, can be dangerous and can cause symptoms.
  16. cristiana
    Yup, that's the place I have the sensation, you've described it well. The odd thing is that it came about with the gastritis. Weird. Maybe all the excess acid and wind did somethign to that area.
  17. cristiana
    Thank you Tescos! Some decent, gluten free, OAT FREE (yay, I'm one of the 10-20% who can't handle them) Christmas shortbread. Delicious! If you are reading, Tescos, please keep more of your products oat free, then 10-20% more of us will buy them! https://www.tesco.com/groceries/en-GB/products/297117886
  18. cristiana
    Do you know, Ennis, that's interesting. Thank you. One thing is I don't suffer from this at night whilst lying down. In fact, even if I fall asleep in front of the telly (which I always seem to be doing) when I wake up it has gone. It is as if by relaxing it moves - whatever 'it' is. I can't massage that area though because my ribs are in the way. ...
  19. cristiana
    Hello experts! I have another mystery complaint and would value some feedback. This summer, as documented on this website, I had what the doctors thought was gastritis. I did have acid heartburn and burning pain under my sternum. During this time I noticed a sensation to the left of where the burning was. Sometimes it appeared at the same time...
  20. cristiana
    Hi JMG I'll send you some iced mince pies if you cannot find any! Nil desperandum! They are in the larger stores so they must be elsewhere - maybe you need to try a bigger branch? There is a small one near us and it had none... The other bit of good news is Cadbury's Heros has the chunks in it this Christmas. And guess what - a nut warning, but...
  21. cristiana
    Ahoy there Fellow Mince Pie Fanciers! Yes, I have to say that the iced mince pies from Sainsburys top the bill - mind you, probably not for the purist, or those who do not have a sweet tooth. I am ashamed to say I think I have consumed five boxes since November!! Nothing piles on the pounds quicker than those iced mince pies. The Costa mince...
  22. cristiana
    Hi there. This caught my eye as I got phlebitis which wouldn't shift for month when I was in my late teens. My sensible GP at the time said I just had blood that clotted easily and to never take the contraceptive pill. Fastforward to my diagnosis at 45 (I'm now 50) the docs discover that even while my blood iron has been low, my haemoglobin is...
  23. cristiana
    Hello Nicole My thoughts would go straight away to some sort of issue with the ovaries, or appendix, but presumably these things have been checked? Has she had a colonoscopy in recent months? In my own case I've had pain on the left side, in the groin and pelvic area, which goes through to my back (not the spine area but just around the hip). ...
  24. cristiana
    I say, JMG - half a lemon meringue pie in one sitting? Steady on, old chap... (Actually, I think that shows great restraint!)
  25. cristiana
    And well done, Morrisons.
×
×
  • Create New...