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cristiana

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Everything posted by cristiana

  1. cristiana
    A difficult pain to describe. At times for me it was a dull ache, other times burning. When I had an u/s I was told the pain was where my stomach was. When I am glutened I get the same pain as when I have gastritis, caused by, say, certain antibiotics or aspirin. When I am having a flare I find it really soothing to drink chamomile tea.
  2. cristiana
    Thank you RMJ - as my symptoms are so similar to a reaction to gluten I have suspected this for some time but this is the only place I have seen anything written about it. I'm very grateful for your taking the time to reply. Interestingly the store where I purchased this loaf do list oats in bold text in their ingredients list - which is what they do with...
  3. cristiana
    Hello All I've been feeling really bloated, sore stomach, IBS like symptoms over the last couple of weeks and discovered that I had confused my usual loaf of bread was replaced with one made with pure oat flour. Since my DX in 2013 I've tried pure oats every few months and have concluded that unfortunately I'm just one of those coeliacs that can't eat...
  4. cristiana
    HI Becktoria Just saying hi to a fellow Brit, but also to say I have that pain you describe when I'm having a flare when I've been glutened. I also sometimes get pain in the pelvis, and to the sides of my abdomen - this thing keeps you guessing! All the best with the diagnosis, and if it is Coeliac, I recommend joining Coeliac UK for at least...
  5. cristiana
    Wow! It was my left leg. I was working in France, crazy hours in an auberge, desperate to learn the language so happy to work from 6am to midnight. I was on my feet all day. I think I knocked my leg or something one day and the swelling wouldn't go down. I haven't ever asked to see my doctor's reports of the time but the words 'sticky blood' stuck...
  6. cristiana
    Anita - I'm interested that you have had problems with thrombophlebitis. I had phlebitis when I was a teenager for many months. I was told at the time I had 'sticky' blood. Is your hemoglobin within normal limits? Mine is high normal even though my blood iron is borderline normal.
  7. cristiana
    I had terrific SI joint pain for a long time. It started up with a vengeance around the time of my diagnosis and took a while to subside but it still comes back from time to time. It used to be worse in my left side, now it's on my right side just as I speak. It can be very painful - a sort of tightness, and burning. I also have a weird thing from...
  8. cristiana
    Yes... that extra pressure makes itself felt. In the UK where I live I understand they used to operate quickly if someone developed a hernia but nowadays they tend to leave it until it is necessary. There is always a slight risk that it can quickly turn into an emergency but I've had mine for fourteen years now and it hasn't really altered much.
  9. cristiana
    I didn't realise it at first but much of my bloating after diagnosis was to do with lactose intolerance. When I went onto a gluten free diet I was able to eat hard cheese but began to notice that yoghurt, milk, soft cheese which are high in lactose contributed to it. I continued to eat hard cheese but cut back on the other stuff. Once my gut had healed...
  10. cristiana
    By way of an update. I think when I used Gaviscone and a PPI it caused so much bloating (relieved by burping!) that it was aggravating pain in my back. The days I don't use these meds the bloating is almost non-existent and I feel much better - just a little back pain, except I have burning in the epigastric area! So I think I need to sort out this...
  11. cristiana
    Just to say I had tingling arms and legs, hands falling asleep (both arms numb on waking), twitching and buzzing. I wondered if I'd ever get better. It comes back from time to time but thankfully never for very long. I do think it may have also been connected to low B12, ferritin and magnesium. My doctor asked me to supplement ferritin,...
  12. cristiana
    Hi Kate My good friend who doesn't have celiac disease but does have regular bouts of gastritis was told by her doctor that half our town is taking PPIs. As a beautician she comes into daily contact with people mid-life plus and says that the amount of people taking PPIs is indeed astounding. I think doctors probably do prescribe them and renew the...
  13. cristiana
    Yes, I've had the numbness, tingling and chills (the last always follows a bad glutening). We sound very alike! I think Chamomile is definitely worth a go. You are right - it needs to be the pure stuff. For some reason it's quite easy to come by here - maybe the UK's proximity to mainland Europe where I think they must grow a lot of it. I hope...
  14. cristiana
    Vera (if you like it) is great escapism! She's a lady that loves cake and chips and all that healthy stuff, too, much to the consternation of her various detective sergeants. I'm so sorry that you have had all this trouble already this morning. I have problems when I have too much dairy - mostly trapped gas and D. My gastroenterologist is always...
  15. cristiana
    Hi Kate Don't apologise for going briefly off topic. Your discussion with Trents has been very interesting and eye opening for me. But just to say I had an appointment at a BC - sorry - by that I meant breast clinic, not British Columbia, more's the pity. I'm British though and looking at your long list I have to say we share a lot of the same...
  16. cristiana
    Came across this just now. Quite helpful I thought. https://en.wikipedia.org/wiki/Referred_pain
  17. cristiana
    Wise words. There are situations where it is totally necessary and would indeed be dangerous not to take it, such as Barrett's. Certainly, if I do have to take asprin I will need to take a ppi (although I'm hoping by then there will be a way of taking aspirin without this issue!) In the past I've been able to wean myself off omeprazole/ranitidine and...
  18. cristiana
    Hi Icey How do you take it? Is it a bit like slippery elm i.e. with water? Txx
  19. cristiana
    Agreed.I think this is why I'm now getting the burning and the back pain again. I have taken the Nexium this time round for under two weeks so I thought I might get away with coming off it quickly. Thank you for this post as it reminds me why the burning and back pain have come back. I used to come off PPIs gradually using Ranitidine but it isn...
  20. cristiana
    Hi Sandra I had strange visual stuff going on before diagnosis. I had one episode of double vision with temporary loss of peripheral vision that worried my doctor. I was sent for eye tests but due to a long waiting list wasn't seen for months. The eyes passed A1 by the time I saw someone. On reflection, I wonder if it was a type of type of migraine...
  21. cristiana
    Hi Kate Thanks so much for your very helpful reply, containing lots of useful advice. No need to worry - I am a hypochondriac! 😄 I suspect stress is part of the mix - since lockdown I've had to visit the BC clinic for a rash, and have an MRI lined up for tomorrow to investigate a lump in my mouth. That test has been put on hold since lockdown. ...
  22. cristiana
    I I've read about leaky gut but have never really understood it. Thank you - that's very interesting. I find I only have significant problems with pain and bloating with dairy after CC, or if I have taken antibiotics that disagree with me or NSAIDs. Oh - and gluten-free pure oats - disaster for me, and I really miss them... I stay off...
  23. cristiana
    This is excellent - thank you Knitty Kitty.
  24. cristiana
    No, I haven't tried it but I know someone who has given it a go although it's been a while since I met up with her to find out how it is going. Funnily enough I was only thinking that I need to look at my diet again and try to eat more fruit and veg. Have you completely given up potatoes, tomatoes and peppers? I think I'd find that quite tough, although...
  25. cristiana
    Hi Knitty Kitty Thank you SO much for sending me all of this. I will read it properly later when I've finished some work I have to do. I have wondered before about deficiencies. I'd love to know what sort of deficiencies I still have and I wouldn't be at all surprised if I have a problem with not enough magnesium because I occasionally get muscle...
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