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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Yes, it sounds likely that you have found the cause. Sounds like it has been a long haul, trying to find the answer. I've been told polcythaemia vera itself is actually very rare but recently discovered a distant cousin has it, even though it isn't meant to be hereditary. I do wonder if years of iron deprivation has had some sort of rebound effect...
  2. cristiana
    This is really helpful, Scott, many thanks. My husband say I snore but my children say it's my husband that snores! My consultant is just keeping an eye on things for the moment. Is a high RBC a variant of polycythemia?
  3. cristiana
    That's so interesting, Scott. Thanks for posting. My blood tests suggest something may be going on there. I've had higher results for RBC, and hematocrit in the past, but my last test showed my haemaglobin was a tad higher than usual. I was aware though before I went in for my test that I was dehydrated, and hadn't drunk enough that morning, so that may...
  4. cristiana
    My blood tests have been interesting since my DX in 2013. I've noticed that at times I have elevated red blood count and wonder if there is an overall upward trend but so far my doctors haven't said anything about it. What is the treatment for high red blood cell count?
  5. cristiana
    I was asked by knitty kitty to keep this updated - my hemoglobin is now 15.7, but my ferritin is 8 as I'm being good and not supplementing iron, as per doctor's instructions! That said I was quite dehydrated when the test was done, so maybe that has a bearing? My doctor isn't concerned but they are keeping an eye on things. When I was in my teens I...
  6. cristiana
    Yes, it's always heartening to meet a fellow sufferer, but a shame for the fellow sufferer all the same! I would give peppermint tea a go, though, if you haven't. Yes, and probiotics aren't always a silver bullet - I had problems with one brand and stopped using them for a while. Hopefully we will both find answers soon.
  7. cristiana
    Hi Mike I suffer from bloating, sometimes upper abdomen, other times lower abdomen so I do sympathaise. However, at the moment my bloating is so extreme that I can feel the gas moving around day and night! I'm now getting sacroiliac pain and brain fog, all the things I had for a long while before and after diagnosis. Couple of questions: Are...
  8. cristiana
    A difficult pain to describe. At times for me it was a dull ache, other times burning. When I had an u/s I was told the pain was where my stomach was. When I am glutened I get the same pain as when I have gastritis, caused by, say, certain antibiotics or aspirin. When I am having a flare I find it really soothing to drink chamomile tea.
  9. cristiana
    Thank you RMJ - as my symptoms are so similar to a reaction to gluten I have suspected this for some time but this is the only place I have seen anything written about it. I'm very grateful for your taking the time to reply. Interestingly the store where I purchased this loaf do list oats in bold text in their ingredients list - which is what they do with...
  10. cristiana
    Hello All I've been feeling really bloated, sore stomach, IBS like symptoms over the last couple of weeks and discovered that I had confused my usual loaf of bread was replaced with one made with pure oat flour. Since my DX in 2013 I've tried pure oats every few months and have concluded that unfortunately I'm just one of those coeliacs that can't eat...
  11. cristiana
    HI Becktoria Just saying hi to a fellow Brit, but also to say I have that pain you describe when I'm having a flare when I've been glutened. I also sometimes get pain in the pelvis, and to the sides of my abdomen - this thing keeps you guessing! All the best with the diagnosis, and if it is Coeliac, I recommend joining Coeliac UK for at least...
  12. cristiana
    Wow! It was my left leg. I was working in France, crazy hours in an auberge, desperate to learn the language so happy to work from 6am to midnight. I was on my feet all day. I think I knocked my leg or something one day and the swelling wouldn't go down. I haven't ever asked to see my doctor's reports of the time but the words 'sticky blood' stuck...
  13. cristiana
    Anita - I'm interested that you have had problems with thrombophlebitis. I had phlebitis when I was a teenager for many months. I was told at the time I had 'sticky' blood. Is your hemoglobin within normal limits? Mine is high normal even though my blood iron is borderline normal.
  14. cristiana
    I had terrific SI joint pain for a long time. It started up with a vengeance around the time of my diagnosis and took a while to subside but it still comes back from time to time. It used to be worse in my left side, now it's on my right side just as I speak. It can be very painful - a sort of tightness, and burning. I also have a weird thing from...
  15. cristiana
    Yes... that extra pressure makes itself felt. In the UK where I live I understand they used to operate quickly if someone developed a hernia but nowadays they tend to leave it until it is necessary. There is always a slight risk that it can quickly turn into an emergency but I've had mine for fourteen years now and it hasn't really altered much.
  16. cristiana
    I didn't realise it at first but much of my bloating after diagnosis was to do with lactose intolerance. When I went onto a gluten free diet I was able to eat hard cheese but began to notice that yoghurt, milk, soft cheese which are high in lactose contributed to it. I continued to eat hard cheese but cut back on the other stuff. Once my gut had healed...
  17. cristiana
    By way of an update. I think when I used Gaviscone and a PPI it caused so much bloating (relieved by burping!) that it was aggravating pain in my back. The days I don't use these meds the bloating is almost non-existent and I feel much better - just a little back pain, except I have burning in the epigastric area! So I think I need to sort out this...
  18. cristiana
    Just to say I had tingling arms and legs, hands falling asleep (both arms numb on waking), twitching and buzzing. I wondered if I'd ever get better. It comes back from time to time but thankfully never for very long. I do think it may have also been connected to low B12, ferritin and magnesium. My doctor asked me to supplement ferritin,...
  19. cristiana
    Hi Kate My good friend who doesn't have celiac disease but does have regular bouts of gastritis was told by her doctor that half our town is taking PPIs. As a beautician she comes into daily contact with people mid-life plus and says that the amount of people taking PPIs is indeed astounding. I think doctors probably do prescribe them and renew the...
  20. cristiana
    Yes, I've had the numbness, tingling and chills (the last always follows a bad glutening). We sound very alike! I think Chamomile is definitely worth a go. You are right - it needs to be the pure stuff. For some reason it's quite easy to come by here - maybe the UK's proximity to mainland Europe where I think they must grow a lot of it. I hope...
  21. cristiana
    Vera (if you like it) is great escapism! She's a lady that loves cake and chips and all that healthy stuff, too, much to the consternation of her various detective sergeants. I'm so sorry that you have had all this trouble already this morning. I have problems when I have too much dairy - mostly trapped gas and D. My gastroenterologist is always...
  22. cristiana
    Hi Kate Don't apologise for going briefly off topic. Your discussion with Trents has been very interesting and eye opening for me. But just to say I had an appointment at a BC - sorry - by that I meant breast clinic, not British Columbia, more's the pity. I'm British though and looking at your long list I have to say we share a lot of the same...
  23. cristiana
    Came across this just now. Quite helpful I thought. https://en.wikipedia.org/wiki/Referred_pain
  24. cristiana
    Wise words. There are situations where it is totally necessary and would indeed be dangerous not to take it, such as Barrett's. Certainly, if I do have to take asprin I will need to take a ppi (although I'm hoping by then there will be a way of taking aspirin without this issue!) In the past I've been able to wean myself off omeprazole/ranitidine and...
  25. cristiana
    Hi Icey How do you take it? Is it a bit like slippery elm i.e. with water? Txx
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