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Latest Celiac Disease News & Research:
Everything posted by cristiana
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Hi everyone A couple of weeks ago, two weeks on from a bad cold, I was eating toast with a dry mouth and it irritated my throat and it triggered off a coughing fit. Since then tomato ketchup and strawberry juice have had the same effect on two separate occasions. Since then I notice that I end up coughing during and after meals and I don't look...
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Just to add to this... I had a holiday in France this year. There certainly are some gluten free products available with the crossed grain symbol on them in the larger supermarkets, and even in the smaller supermarkets. However, I did not find the range as comprehensive as the range we have in the UK. I did not eat out while we were away - I rarely do...
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New To This! Any Celiacs/gluten Free In Uk?
cristiana replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
You are very welcome! I'm just sorry when Easter ends because it means I can't eat Dairy Milk for another year ... I just wish Cadburys would make all their Dairy Milk chocolate gluten-free, not just their eggs! -
Still have symptoms, related to something else?
cristiana replied to ebutton's topic in Related Issues & Disorders
I second oats. Pure oats still cause issues for me, six years on. I had my blood tested a couple of years ago and despite what I thought were my best efforts, I found my ttg was at 87. So I met with a nutritionalist who encouraged me to stop eating out. Also, I redoubled my efforts in only choosing food that appears in the Gluten Free directory that... -
Question about antibodies
cristiana replied to seerwatch77's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for this cyclinglady. I'd forgotten that. I wonder how many coeliacs are beating themselves up about cc when in fact it has nothing to do with it. I've always had a suspicion that I'm not fighting just the one autoimmune issue. -
Have any of our lady members experienced this? I'd like to know more. A non-coeliac friend of mine has been experiencing this but I'm wondering how common it is. For myself, I do feel nauseous from time to time and wonder if actually it's hormonal rather than cc. It's too easy to blame everything on gluten! (Note: It's not actually being sick, just feeling...
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Question about antibodies
cristiana replied to seerwatch77's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Although I was diagnosed in 2013, for some reason I fell through the system and my TTG levels were only tested again in November 2017. (At diagnosis they were higher than 100 but I never knew by how much). When I was tested again, my TTG levels were in the late 80s in November 2017. I was referred to a nutritionalist, made some changes at home and... -
A very good point of Whitepaw's. I meant to add this myself. I notice that when I have too much iron it affects this area and I too have pain that goes around to the back. Once I took too much iron in the morning and, seriously, the pressure around this area was immense. I thought I'd collapse with it!
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Hello again Deezer I do have varying levels of discomfort in the LUQ. I can go days and barely notice it. Other times when badly glutened it is burning, and at its very worse there is nausea and a bit of heartburn. Other times it is an ache, and a feeling of fullness. If it is getting bad I do resort to taking a minimum dose of rantidine OTC...
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Hi deezer I took a very short course of OTC Nexium Control 20mg. I was desperate - I felt as if my stomach was on fire with battery acid! I then tapered off with a course of a few Ranitidine tabs. I know there are a lot of warnings out there about such reflux meds but in my own case, I find that if I use them for a short while and taper them off very...
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Hi! Yes, I get this when glutened. I didn't see the connection at first. Sometimes it feels almost like rib pain, a painful pressure on the underside of the left ribs. Other times it is there as well as just under my sternum. If you google epigastric pain that's kind of the area. It can be an ache or a burning sensation. Sometimes it goes to...
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It might also be worth looking at any medication that you are taking. I don't make regular use of it but sometimes I have to take reflux medication now and again after gluten exposure or when taking certain medication. I notice I get incredibly vivid dreams that are fairly disturbing if I take a ppi and go straight back to sleep. There is no effect...
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Wierd pain/discomfort
cristiana replied to Joepilk's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi! I have an umbilical hernia which feels similar to what you describe - always worse when I am bloated/have put on too much weight! I found cutting out dairy in the early days (apart from hard cheese, that didn't upset me) really cut down on the bloating. Hope you feel better soon. Cristiana -
Need Recovery Help Please.
cristiana replied to ChargersFan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi there, Do you have blood tests to compare TTG levels? My TTG antibodies were still high some four years gluten free (I think around 86). Unfortunately my specialist had omitted to give me that blood test since diagnosis so I don't know if it was temporarily elevated at 86 or whether they were coming down very slowly. At the time of diagnosis... -
Cross Contamination: Drawing the Line
cristiana replied to Ginger Beard Man's topic in Gluten-Free Restaurants
Hi RMJ So interesting to know this... I thought I was the only one taking a long time to get down to normal levels. I don't know what my DGP IgA levels were though. -
Cross Contamination: Drawing the Line
cristiana replied to Ginger Beard Man's topic in Gluten-Free Restaurants
Hi! It has taken a looong time for my ttg blood results to come down. As the cut off point is 100 here in the UK I have no idea how high it was at diagnosis, but I was quite ill, so possibly it was stratospheric five years ago. However, last year I was getting a lot of pain again (felt like gastritis) and it was discovered that my ttg was in the 8... -
Reflux - pain in neck above collarbone?
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi Ennis I've got some slippery elm that I used while I had gastritis so I'll start drinking it again, thank you. I'll look out for some marshmallow which is something I've not yet got in my arsenal! It's odd as I'm not really aware of a sore throat on the inside, it's just the pressure should I touch my throat right at the base of my neck. Also... -
Reflux - pain in neck above collarbone?
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi Cyclinglady It's so kind of you to reply so quickly - you know how much of a HA panicker I am! I think they were gluten-free, I'll check they had a product licence number they can only have if they are gluten free. (That's if I can still find the packet!) I'm so glad for you that the gastritis healed on its own. I remember you going through... -
Hello friends I got reflux which burned my throat and a terrible burning pain in my stomach about three weeks ago due to some antibiotics I was taking (Trimethoprim). This all blew up over the weekend so couldn't see my GP but the pharmacist gave me some Nexium and told me to take them while I finished the course, which I managed to do. I have...
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Hi Mooo I'm sorry you are going through this... I just wanted to chime in to say that I had about 9 months of gastritis like symptoms in the last year or so and when it all started I was getting heartburn that made my throat sore. I went to see more than one doctor and eventually one did a TTg test and found it was in the eighties. I was both disappointed...
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My iron levels vary a lot and I hover just above anemic quite often. My ferritin got better at one stage, rising to 40, and then dropped 20 points literally overnight because of 'women's issues' so I guess it depends on several factors, and also how far you were off being anemic in your last blood test. If your diabetes test it turns out to be normal...
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This is great advice from Trents, we can easily cause all sorts of imbalances by drinking too much. I have had several episodes of feeling REALLY thirsty in the last few years. But to date my blood tests and urine tests have been normal. Whilst I've been reading up about this, I read in several places anemia can cause thirst, too, and my blood iron...