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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Thanks, @trents. Annilee - do have a good look at the information about the Fasano diet, by following the link above. It could help you, it has certainly helped a lot of people on this forum in the past. Take care, Cristiana
  2. cristiana
    Hi Annilee Welcome! I agree with the above advice from trents. @trents - do you think Fasano's diet might help here? I am not on the forum as much as I used to be so I may have missed it, but I haven't noticed it mentioned recently. It used to be suggested a lot when I was first diagnosed?
  3. cristiana
    You are more than welcome. When I read your story it could have been describing my own experience. My GP spotted a fissure but you may have one a bit "further up" which s/he couldn't see. It was amazing the amount of bleeding it caused. Yes, my GP put me on the same iron they are giving you and it definitely made my diarrhea worse (although my iron...
  4. cristiana
    Hi Harriet Welcome to the forum, although I'm sorry you are suffering these symptoms. If your doctor has ordered an endoscopy, hopefully the following will help you manage your symptoms better:- Changing Iron Supplements: I too had blood, and I was told it was fissures. In fact things improved dramatically before going gluten free when I...
  5. cristiana
    Hi Nattalie If you are from the UK, it is worth bearing in mind that there are significant advantages in obtaining an official diagnosis of coeliac disease. Some people will just go gluten free without finding out for sure one way or another - I know two people who have done just that - but if it does turn out your child is coeliac, the NHS offers the...
  6. cristiana
    Helpful and positive - thanks for posting. I know in the past when I have had aches and pains they always seemed to get worse when I've been stressed.
  7. cristiana
    I had something that sounds just like that and it turned out to be a type of eczema, strange because I hadn't had it as a child. It started in my early 50s. I went to the doctor and he prescribed a topical steroid, Betnovate, and an emollient gel with an added anti-inflammatory agent known as Adex. He advised me to apply the Adex 20 minutes before...
  8. cristiana
    No problem - I am sure all the processed stuff can't be doing much good on all sorts of levels. My mother in law has always cooked from scratch and enjoys fantastic health in her 80s, I'm sure that's why.
  9. cristiana
    Hello again, @Azazello! "I guess I am also curious, given my TTG level of 49. How long do you figure being gluten free will take until I'm back to normal levels and start feeling more normal again? How long did it take you after going gluten free to start feeling normal again?" Good question. I've read this forum ever since I was first diagnosed...
  10. cristiana
    I sympathise with this, coming from England where afternoon tea has been a big part of our family's traditions! I have managed to reduce my sugar consumption from time to time but I find it hard to give up totally, partly because I have a sweet tooth (nature or nurture, who knows?!) but also as a coeliac often the only food available at a cafe or restaurant...
  11. cristiana
    Yes, I still do think it is early days. I am sorry but I can't post anymore just now as my husband needs to use this computer this evening. But I hope that others can help you - I'll try to post again tomorrow. For the time being, do read this - lots of helpful tips to make sure no gluten sneaks into your new diet.
  12. cristiana
    Hello Azazello Welcome to the forum. I haven't had the same joint issues that you describe, although I have had issues with other joints: my sacroiliac joints and ribs, and I'd say the pain got worse initially before it got better, like there was a sort of time lag after going gluten free. However, from memory, I think when my TTG test results...
  13. cristiana
    This is brilliant to read. @Dandk , what you say reminded me that around the time of my diagnosis I remember thinking my voice didn't sound quite right to me. I'd completely forgotten. Thinking back, around that time I started some pretty major B complex supplementation and that must have helped because it went away. I wish you continued improvement...
  14. cristiana
    @placey0918 That's really interesting. I'd love to have detailed tests for minerals and vitamins - unfortunately that sort of testing isn't routinely done here in the UK, not even under my private consultant which is a shame because I am sure many of my issues were to do with deficiencies. What you say about zinc is so interesting because I now...
  15. cristiana
    @I.M.Celiac Reading what you write, it reminds me I ought to be much more grateful for the care we receive through the NHS. Struggling to cope with the increasing health issues of a growing and an ageing population and chronic underfunding spanning decades, and we have had several NHS strikes recently, it is all too easy to focus on what it doesn't deliver...
  16. cristiana
    My nephew has type 1 diabetes and is tested for Coeliac routinely, I think every three years. I was surprised when I heard this was routine testing was required as like you I thought once tested negative, always negative, but seemingly not. Apparently up to 1 in 10 type 1 diabetics are coeliacs. https://www.diabetes.org.uk/guide-to-diabetes/enjoy...
  17. cristiana
    My consultant diagnosed someone in their 90s a few years ago!
  18. cristiana
    Very interesting. I noticed when in Italy a few years ago how much better the Italians were at stating a product was gluten free in a prominent place on the labelling than we were here. It made shopping so much easier. They did seem very coeliac aware. Is it true that all school children of six years old are screened for coeliac disease in Italy...
  19. cristiana
    The following blood tests (see list) are what are recommended in the UK, and should be available on the NHS after a coeliac diagnosis, but my experience was I was given these blood tests initially a bit more frequently (every six to nine months) following my diagnosis because I had anemia and odd liver function results at first. My consultant (I think...
  20. cristiana
    Yes, if anyone in the UK is reading this, if you are diagnosed with coeliac disease as a rule you will be entitled, under the NHS with the following: a dietician an annual review, including blood tests, with a gastroenterologist who checks you are coping with the diet OK and for any health complications DEXA bone scans, to check you are...
  21. cristiana
    Hi K Welcome to the forum, but I am so sorry you are going through this. It sounds a good thing you are going to have an endoscopy. However, a question: has your GP ordered any specific blood tests for Coeliac disease yet? If you have them, is there any chance you could share the results here with the lab ranges too, so we can take a...
  22. cristiana
    PS Do make sure you aren't over-supplementing as I have read this can also cause symptoms, apart from being dangerous in many cases. It is particularly important that you only supplement iron with doctor's supervision.
  23. cristiana
    Hi Chantal My neuropathy was predominantly tingling although I had some burning pain too at times. I've also had buzzing sensations, raindrop sensations (except it wasn't raining) and some numbness on waking in my arms, which was put down to ulnar compression but seemed to recover with the rest of me. Twitches too - eyes, face, calf muscles I...
  24. cristiana
    What a tragic story. I had a friend in hospital who couldn't get gluten-free food, we had to take it to her. I wonder how many people in nursing homes are also not receiving the right food, with no-one to speak up for them.
  25. cristiana
    My globulin levels were 41, albumin 44, total serum protein 85 before I was diagnosed. My consultant told me they see this from time to time in celiacs. The levels are now normal.
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