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cristiana

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Everything posted by cristiana

  1. cristiana
    Yes, I still do think it is early days. I am sorry but I can't post anymore just now as my husband needs to use this computer this evening. But I hope that others can help you - I'll try to post again tomorrow. For the time being, do read this - lots of helpful tips to make sure no gluten sneaks into your new diet.
  2. cristiana
    Hello Azazello Welcome to the forum. I haven't had the same joint issues that you describe, although I have had issues with other joints: my sacroiliac joints and ribs, and I'd say the pain got worse initially before it got better, like there was a sort of time lag after going gluten free. However, from memory, I think when my TTG test results...
  3. cristiana
    This is brilliant to read. @Dandk , what you say reminded me that around the time of my diagnosis I remember thinking my voice didn't sound quite right to me. I'd completely forgotten. Thinking back, around that time I started some pretty major B complex supplementation and that must have helped because it went away. I wish you continued improvement...
  4. cristiana
    @placey0918 That's really interesting. I'd love to have detailed tests for minerals and vitamins - unfortunately that sort of testing isn't routinely done here in the UK, not even under my private consultant which is a shame because I am sure many of my issues were to do with deficiencies. What you say about zinc is so interesting because I now...
  5. cristiana
    @I.M.Celiac Reading what you write, it reminds me I ought to be much more grateful for the care we receive through the NHS. Struggling to cope with the increasing health issues of a growing and an ageing population and chronic underfunding spanning decades, and we have had several NHS strikes recently, it is all too easy to focus on what it doesn't deliver...
  6. cristiana
    My nephew has type 1 diabetes and is tested for Coeliac routinely, I think every three years. I was surprised when I heard this was routine testing was required as like you I thought once tested negative, always negative, but seemingly not. Apparently up to 1 in 10 type 1 diabetics are coeliacs. https://www.diabetes.org.uk/guide-to-diabetes/enjoy...
  7. cristiana
    My consultant diagnosed someone in their 90s a few years ago!
  8. cristiana
    Very interesting. I noticed when in Italy a few years ago how much better the Italians were at stating a product was gluten free in a prominent place on the labelling than we were here. It made shopping so much easier. They did seem very coeliac aware. Is it true that all school children of six years old are screened for coeliac disease in Italy...
  9. cristiana
    The following blood tests (see list) are what are recommended in the UK, and should be available on the NHS after a coeliac diagnosis, but my experience was I was given these blood tests initially a bit more frequently (every six to nine months) following my diagnosis because I had anemia and odd liver function results at first. My consultant (I think...
  10. cristiana
    Yes, if anyone in the UK is reading this, if you are diagnosed with coeliac disease as a rule you will be entitled, under the NHS with the following: a dietician an annual review, including blood tests, with a gastroenterologist who checks you are coping with the diet OK and for any health complications DEXA bone scans, to check you are...
  11. cristiana
    Hi K Welcome to the forum, but I am so sorry you are going through this. It sounds a good thing you are going to have an endoscopy. However, a question: has your GP ordered any specific blood tests for Coeliac disease yet? If you have them, is there any chance you could share the results here with the lab ranges too, so we can take a...
  12. cristiana
    PS Do make sure you aren't over-supplementing as I have read this can also cause symptoms, apart from being dangerous in many cases. It is particularly important that you only supplement iron with doctor's supervision.
  13. cristiana
    Hi Chantal My neuropathy was predominantly tingling although I had some burning pain too at times. I've also had buzzing sensations, raindrop sensations (except it wasn't raining) and some numbness on waking in my arms, which was put down to ulnar compression but seemed to recover with the rest of me. Twitches too - eyes, face, calf muscles I...
  14. cristiana
    What a tragic story. I had a friend in hospital who couldn't get gluten-free food, we had to take it to her. I wonder how many people in nursing homes are also not receiving the right food, with no-one to speak up for them.
  15. cristiana
    My globulin levels were 41, albumin 44, total serum protein 85 before I was diagnosed. My consultant told me they see this from time to time in celiacs. The levels are now normal.
  16. cristiana
    @TanyaL1408 Just a thought - you may find some relief if you drink peppermint tea. If there is any trapped gas which is contributing to the pressure you are feeling in that area, this might help disperse it. I've had rib and back pain when I had to take iron supplements and this caused gas to build up - I felt like I wanted to burp, but couldn...
  17. cristiana
    Hi Tanya You could be me ... that sounds very familiar! It definitely wrapped round to my back. Pressure and burning too. From memory, when I had it at its worse was, oddly enough, not when I was undiagnosed but a few years in. Gluten was sneaking into my diet through an iron supplement, and I believe I was getting low levels of gluten from...
  18. cristiana
    Hi Tanya It is good you are being checked out for celiac disease. I have had a lot of pain under the lower left rib in the past. At times the burning was overwhelming. I posted a lot on this forum about this because it worried me so much. I had an u/s once and I was told where the burning was under my sternum, slightly to the left, was my...
  19. cristiana
    Worth the peace of mind to have that check, but chances are all will be well. Incidentally, I've had pain on and off since my first child was born 18 years ago so I definitely think it is a factor. Mine comes and goes - at time it is so bad I just have to rest, other times it's scarcely there at all. Do follow through with your doctor, but also...
  20. cristiana
    Oh no... when does that start? I can still see them online but perhaps all the supermarkets are selling their remaining stock?
  21. cristiana
    I'm totally with you - hard work indeed! If you can book an u/s before your appointment, I'd probably go down that route even if I had to pay for it privately just to eliminate that. However, one other thing I forgot to add - I suffer from a weird pain which one doctor has said is pudendal neuralgia (worth looking up) and another has said it is...
  22. cristiana
    Hi Aussienae I'm so glad I saw this as I'm not on the forum much at the moment due to work and family commitments. I am in a bit of a rush so forgive me for not reading all this post if I am repeating anything but when I had pain return I noticed that I was overdoing the dairy somewhat and cut back and that helped. Also worth checking if gluten is...
  23. cristiana
    I get bleeding gums but find interdens brushes help, plus Corsodyl spray. I was talking to my dentist about this the other day and he gave me another good tip - before brushing your teeth, run your toothbrush under hot running water. Apparently it helps soften the bristles, remove old toothpaste and food particles and should help. For sensitive...
  24. cristiana
    TBH, since my diagnosis I find my own symptoms come and go. I often google this forum for help, find an old thread that is really helpful, packed full of relevant advice to my current set of symptoms, and then find that no wonder it is so helpful, as I started the old thread in question! Just goes to show that gluten must also affect my memory! Do...
  25. cristiana
    One thing you might wish to do - sorry if this has been suggested already - is to keep a food diary of everything you are consuming, including drinks and medication, just to see if there is any pattern emerging. I note you are on SSRIs and I've had a quick google for you on NHS. I see that sometimes they can cause some of the symptoms you describe...
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