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cristiana

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Everything posted by cristiana

  1. cristiana
    Oh... and PS, when you were diagnosed, did they test your thyroid? Quite a few people on this forum have thyroid issues and this can sometimes make it more difficult to lose weight.
  2. cristiana
    Welcome Joanne Weight loss often precedes diagnosis for celiacs, particularly if they suffer (as I did) from bad diarrhea. Also, some find that when they adjust to a gluten free diet they don't know what is safe and unsafe and follow quite a restricted diet initially and that can lead to weight loss. Are you eating a lot of gluten-free substitutes...
  3. cristiana
    I couldn't agree more. I've just lost a dear friend in her 50s who was struck down with Covid in pre-vaccination times, and this led to long Covid, and ultimately all sorts of terrible complications as a result. I have a neighbour in his early 30s with scarred lungs who will never be the same because he got Covid at the same time. It was a terrible...
  4. cristiana
    I'm not sure. However, I do find any pain in the pelvic region quite hard to pinpoint. And since around the time of my diagnosis, I've had a lot. Too much dairy gives me a similar cramping feeling to period cramps. I also get a UTI every 9-12 months for some reason and seemingly randomly a type of pelvic nerve pain which has plagued me for years...
  5. cristiana
    I am in my fifties and had pain in my pelvic area in 2019. I wasn't sure if it was IBS or something gynae related. Interestingly when I mentioned this to my gastroenterologist he decided to do a colonoscopy, but first requested a couple of pelvic ultrasounds. He felt it was important to rule out gynaecological problems first. Is there any chance you...
  6. cristiana
    from Coeliac UK: "Coeliac disease is a lifelong autoimmune condition and the gluten free diet is the only treatment for it. If gluten is introduced back into the diet at a later date, the immune system will react and the gut lining will become damaged again. Once you develop coeliac disease, you must avoid gluten for the rest of your life." https...
  7. cristiana
    I have no idea. But returning to eating gluten for coeliacs can lead to serious health complications. I can understand it must be more tempting to take risks if one doesn't have any obvious side effects from eating gluten, but it could still be making one ill. I do sympathise though - cravings are awful. I even fancy eating a McDonald's or a...
  8. cristiana
    The last time I ate something loaded with gluten by mistake - a slice of cake - within two hours I had severe chills, was unable to stand, threw up two or three times (first time I'd been that sick since childhood), palpations, nearly blacked out, and then had days of gastritis like symptoms and a feeling of sea sickness. So I'm not tempted to cheat. I...
  9. cristiana
    That's interesting that you live in England because I do too, and none of my fellow coeliac friends that live in my area were ever told how high their tTg's were, beyond "over 100" at diagnosis. I would love to have known what mine were at diagnosis, I suspect they were stratospheric. Sorry, again, if I have missed this, were you given that figure...
  10. cristiana
    I wonder, have you had an endoscopy since you were diagnosed - sorry, I may have missed this in your posts?
  11. cristiana
    I think eating out is particularly high risk. I found a largely gluten free local cake shop which seemed to be doing absolutely everything right, with only a miniscule range that contained gluten, and an owner who actually has coeliac disease. Yet I went to one of their stalls at a local fair recently and they were mixing up the tongs when serving from...
  12. cristiana
    Hello Katkits60 Those sort of results are always discouraging, especially if you are trying to do everything right. My own story is similar. I my tTG was over100 back in 2013, had another test a couple of years later and was still in the 80s, and like you, despite being incredibly careful, it took ages to come down to normal levels, in fact, only...
  13. cristiana
    I wonder if, historically, as a child, your face was more protected from the sun than the rest of your body with sunscreen or a hat etc? For years I hardly ever went out without either tights, a long skirt, trousers, etc and to this day my legs just don't seem to react to the sun as quickly as my arms and face which have always regularly been exposed to...
  14. cristiana
    Is the paleness uniform, or are there patches of skin which are lighter than others?
  15. cristiana
    Hello DutchCeliac Welcome to the forum. I have not read anything similar on the forum before but I hope someone else might come forward and be able to help. Could you be suffering from anemia and your paleness be due, not to a lack of melanin, but to iron deficiency? Cristiana
  16. cristiana
    Hello Nisha and welcome to the forum. I wonder if you can tell us a bit more about the testing you have already had? Were there tests blood tests, an endoscopy, etc? Were you eating roughly two pieces of normal gluten containing bread or the equivalent up until the testing for about 6-8 weeks? If you can tell us a bit more this it would be helpful...
  17. cristiana
    This sounds similar to what I experience if the food contains a large amount of gluten. It almost feels like seasickness, which can last for days. The last time it happened I actually was sick, too, horrible, first time in decades. Whereas small trace amounts tend to give me a very sore stomach but I can still feel nauseous with that too.
  18. cristiana
    Hello Grace, and welcome to the forum. Firstly, I would say your tTG numbers look strongly indicative of coeliac disease. I do understand your not wanting to have an endoscopy. Whilst it is normally seen as the gold standard for diagnosis, in the UK over the various lockdowns I understand that the rules regarding an endoscopy were relaxed. ...
  19. cristiana
    Hi Jo Welcome! Do let us know, as Trent's said, if you are a coeliac and for how long you have been diagnosed - that would be helpful. But in reply to your question, this sounds like it might also be mucus. I've had it occasionally with bowel movements and as far as I can recall it was to do with having a stomach upset or a glutening...
  20. cristiana
    Hello Lottie Gluten could well be getting in. However, other causes of fatigue might be to do with thyroid issues, or even blood sugar issues, but I imagine your doctor will be ordering tests to cover these eventualities. I do hope you get some answers soon. Cristiana
  21. cristiana
    Hi Steve A very warm welcome to the forum. You and your Mum may well be onto something here. Anemia is very common in coeliac disease. You ask if anyone here has had similar symptoms: Well, I too had unexplained anemia. I felt extremely breathless walking up hills. I remember going on a walk one Easter and people nearly double my age...
  22. cristiana
    Hi GFF I've been there and totally commiserate. It took until a few months ago for my numbers to get to 9 (my lab's limit is 10). It was a slow and frustrating journey that lasted many years - you will see from my signature I went gluten free in 2013! Looking back, I think I can only put this down to perhaps accidental cross-contamination (I share...
  23. cristiana
    Thank you for sending those ranges. Re: blood tests, put simply, the doctors are looking at the antibodies that the body makes in response to eating gluten. Once numbers are above the upper normal ranges, doctors suspect coeliac disease. I hope this explanation helps, but there are people better placed to answer that on the forum who can chime in if...
  24. cristiana
    Hi Christy and welcome! Would you be able to forward the lab's "normal" ranges with the figures you've sent us. They should appear with the printout. Labs ranges vary enormously. Many thanks. Cristiana
  25. cristiana
    Hi Mandy Here in the UK it is recommended a person consumes about 2 pieces of gluten containing (wheat, barley, rye) toast a day for six weeks, or some others say two meals a day for six weeks should contain gluten as a key ingredient. If you haven't been consuming gluten and then had a one off trigger event which may be what you are referring to...
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