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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    I think I react quite strongly to magnesium supplements - although they always help with constipation (brilliant!) they make me thirsty and last time I took some the dehydration they caused set off some really irregular heartbeats. Ironically I took them to help improve my palpitations! 😄
  2. cristiana
    Continue to drink a lot of water if you take a magnesium supplement.
  3. cristiana
    That's really interesting, I didn't realise that about the 20 ppm. I wonder if that is the same in the UK? Anyway, I always have rated myself as an extra sensitive coeliac so perhaps that's why it does tend to affect me.
  4. cristiana
    I try to avoid that, I've occasionally eaten something by mistake though. It happened last week and I wondered why I felt so ill, and then saw the warning, which appeared much further down the packaging than the main ingredients list. What one has to watch out for in my country (the UK) is that food labelling that says "may contain" can be located in...
  5. cristiana
    If anyone in the UK is reading this and misses the Lindor milk chocolate truffles I've found a wonderful substitute which doesn't contain gluten from M&S which tastes, to my palate, anyway, exactly the same. https://www.ocado.com/products/m-s-swiss-milk-chocolate-truffles-512498011
  6. cristiana
    I hope the original poster will see this, it will be quite an encouragement to get some positive feedback.
  7. cristiana
    I have a very complicated time with oats. Before I was first diagnosed and went on a gluten-free diet, I ate them for England. Soon after diagnosis I reintroduced them (the pure variety) and it felt like the area just under my ribs, where the stomach is, was on fire, after a day or so after consuming them, so I stopped eating them. I tried to reintroduce...
  8. cristiana
    That sounds like a very good plan. Some celiacs seem to be much more sensitive to gluten exposure than others - I have celiac friends who eat out and never have any issues but I had so many bad experiences eating out that I tend to avoid it.
  9. cristiana
    Hello AKholmeyer Welcome to the forum. I am so sorry to hear that you are struggling like this, but every celiac's story is different. Some of us really bounce back soon after the adoption of a gluten free diet, for others there is gradual improvement, and others still would say they never really feel too brilliant, despite being really strict...
  10. cristiana
    Hello Wilson Whilst there are some other auto immune diseases that can skew numbers, and I am sorry as I don't have a list readily available here - I'm hoping someone else will chime in - in a celiac the most obvious culprit is gluten exposure. I sympathise as my TTG numbers have taken a long time to come down. They were over 100 in 2013 (not...
  11. cristiana
    Hi cricketboots I am so sorry to hear that you are struggling like this. It is not uncommon to feel this way, and interestingly, you will find that some coeliacs are affected by anxiety and depression prior to diagnosis. It is something that can also improve once you have mastered the diet - it certainly has in my own case. I'm based in the UK...
  12. cristiana
    Hi cricketboots Welcome to the forum! I'm usually a Mod on this forum but I'm not around much at the moment due to work deadlines. But I saw this post in my inbox and thought I must reply as I know how scary irregular heartbeats can be. How you are doing with the diet? Are you managing OK? There is a lot to learn in the first few months...
  13. cristiana
    Hello temp8665 From my own point of view, and bear in mind I am a celiac, excess stomach acid is something that I suffer from as a result of: a) gluten exposure; b) taking certain antibiotics or NSAID medication or c) eating too much rich food (I always suffer from this around the time of my birthday, because of all the cake I consume!) So could...
  14. cristiana
    Hello Estere and welcome to the forum! A couple of questions: how long have you been gluten free for? Secondly, what form does your dizziness take? Can you describe it? Is it a spinning sensation, or do you feel like you are walking on board a ship on rough seas? Or do you feel lightheaded? etc... I suffer from a sort of seasickness feeling...
  15. cristiana
    My apologies... I didn't read the last part of this sentence properly. I see your problem... not knowing how long the wait will be makes it a bit more difficult to know what to do. This is a problem that is besetting our healthcare system in the UK. Can you get sort of approximate idea of how long the wait times are from your doctor?
  16. cristiana
    Hi Armadillo and welcome to the forum! I'd agree with your doctor looking at those figures. It is usual for patients with suspected celiac disease to have a follow-up endoscopy to confirm the diagnosis. It is important to continue eating gluten before the endoscopy - as I understand it, that's about two slices of normal (gluten containing) bread...
  17. cristiana
    You are more than welcome Saba.
  18. cristiana
    Hello Bobby Nikki Welcome to the forum. Are you saying that your celiac numbers have come back borderline in a blood test? Is there any way you could post your results here? Cristiana
  19. cristiana
    Hi Saba I have to say I don't take them religiously - I forget sometimes, for long periods. But taking a daily quality multivitamin as a supplement was something a pharmacist and a nutritionist recommended for me as a coeliac - not huge doses of anything, we're talking a gluten free supplement containing no more than the daily recommended amounts....
  20. cristiana
    Hi Saba I'm so glad to read that you have experienced some improvement. Have you checked your vitamin supplements for gluten? A few years ago I experienced pain under my left rib and it turned out the liquid supplement I was taking did contain gluten. I have been diagnosed with coeliac disease since 2013 and I still take daily vitamin supplements...
  21. cristiana
    I live in the UK. When my friend and I first went to the doctors with our burning stomach pain (we attend the same GP surgery) we were given PPIs. It tends to be that in this country doctors try a PPI first and if that doesn't work they will conduct an endoscopy, testing for H pylori and ulcers etc. But they tend to give PPIs a few weeks to work first...
  22. cristiana
    Have you been tested for an H-pylori infection?
  23. cristiana
    Hi Lyn I don't think gastritis has ever been mentioned in my various endoscopies but that could be to do with timing - it's all a bit vague in my mind now but certainly by the time I had my second bout I waited around for a while for testing, so the worst of it was over. The point is you have been diagnosed with it and that's good in a way - you know...
  24. cristiana
  25. cristiana
    Hi Lyn Hang in there... it's very early days and you will still have a lot of inflammation which will cause these sort of symptoms. I was exactly where you are now when I was first diagnosed and I panicked and really thought I'd never get better. Unfortunately, this is definitely one of those instances where the word "patient" not only is a word...
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