Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cristiana

Moderators
 View Profile  See their activity

  • Posts

    1,887

  • Joined

  • Last visited

  • Days Won

    74

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    That's interesting that you live in England because I do too, and none of my fellow coeliac friends that live in my area were ever told how high their tTg's were, beyond "over 100" at diagnosis. I would love to have known what mine were at diagnosis, I suspect they were stratospheric. Sorry, again, if I have missed this, were you given that figure...
  2. cristiana
    I wonder, have you had an endoscopy since you were diagnosed - sorry, I may have missed this in your posts?
  3. cristiana
    I think eating out is particularly high risk. I found a largely gluten free local cake shop which seemed to be doing absolutely everything right, with only a miniscule range that contained gluten, and an owner who actually has coeliac disease. Yet I went to one of their stalls at a local fair recently and they were mixing up the tongs when serving from...
  4. cristiana
    Hello Katkits60 Those sort of results are always discouraging, especially if you are trying to do everything right. My own story is similar. I my tTG was over100 back in 2013, had another test a couple of years later and was still in the 80s, and like you, despite being incredibly careful, it took ages to come down to normal levels, in fact, only...
  5. cristiana
    I wonder if, historically, as a child, your face was more protected from the sun than the rest of your body with sunscreen or a hat etc? For years I hardly ever went out without either tights, a long skirt, trousers, etc and to this day my legs just don't seem to react to the sun as quickly as my arms and face which have always regularly been exposed to...
  6. cristiana
    Is the paleness uniform, or are there patches of skin which are lighter than others?
  7. cristiana
    Hello DutchCeliac Welcome to the forum. I have not read anything similar on the forum before but I hope someone else might come forward and be able to help. Could you be suffering from anemia and your paleness be due, not to a lack of melanin, but to iron deficiency? Cristiana
  8. cristiana
    Hello Nisha and welcome to the forum. I wonder if you can tell us a bit more about the testing you have already had? Were there tests blood tests, an endoscopy, etc? Were you eating roughly two pieces of normal gluten containing bread or the equivalent up until the testing for about 6-8 weeks? If you can tell us a bit more this it would be helpful...
  9. cristiana
    This sounds similar to what I experience if the food contains a large amount of gluten. It almost feels like seasickness, which can last for days. The last time it happened I actually was sick, too, horrible, first time in decades. Whereas small trace amounts tend to give me a very sore stomach but I can still feel nauseous with that too.
  10. cristiana
    Hello Grace, and welcome to the forum. Firstly, I would say your tTG numbers look strongly indicative of coeliac disease. I do understand your not wanting to have an endoscopy. Whilst it is normally seen as the gold standard for diagnosis, in the UK over the various lockdowns I understand that the rules regarding an endoscopy were relaxed. ...
  11. cristiana
    Hi Jo Welcome! Do let us know, as Trent's said, if you are a coeliac and for how long you have been diagnosed - that would be helpful. But in reply to your question, this sounds like it might also be mucus. I've had it occasionally with bowel movements and as far as I can recall it was to do with having a stomach upset or a glutening...
  12. cristiana
    Hello Lottie Gluten could well be getting in. However, other causes of fatigue might be to do with thyroid issues, or even blood sugar issues, but I imagine your doctor will be ordering tests to cover these eventualities. I do hope you get some answers soon. Cristiana
  13. cristiana
    Hi Steve A very warm welcome to the forum. You and your Mum may well be onto something here. Anemia is very common in coeliac disease. You ask if anyone here has had similar symptoms: Well, I too had unexplained anemia. I felt extremely breathless walking up hills. I remember going on a walk one Easter and people nearly double my age...
  14. cristiana
    Hi GFF I've been there and totally commiserate. It took until a few months ago for my numbers to get to 9 (my lab's limit is 10). It was a slow and frustrating journey that lasted many years - you will see from my signature I went gluten free in 2013! Looking back, I think I can only put this down to perhaps accidental cross-contamination (I share...
  15. cristiana
    Thank you for sending those ranges. Re: blood tests, put simply, the doctors are looking at the antibodies that the body makes in response to eating gluten. Once numbers are above the upper normal ranges, doctors suspect coeliac disease. I hope this explanation helps, but there are people better placed to answer that on the forum who can chime in if...
  16. cristiana
    Hi Christy and welcome! Would you be able to forward the lab's "normal" ranges with the figures you've sent us. They should appear with the printout. Labs ranges vary enormously. Many thanks. Cristiana
  17. cristiana
    Hi Mandy Here in the UK it is recommended a person consumes about 2 pieces of gluten containing (wheat, barley, rye) toast a day for six weeks, or some others say two meals a day for six weeks should contain gluten as a key ingredient. If you haven't been consuming gluten and then had a one off trigger event which may be what you are referring to...
  18. cristiana
    @Wheatwacked how much D do you take? I've been prescribed 800 iu D3 a day but I wonder if it might not be enough.
  19. cristiana
    "It also mentions that getting the live virus could also cause such issues as well, thus, getting the vaccine would still likely be the best bet for most people." I think what this says, Scott, is a very good point. A sibling and I developed both arrhythmia c. 10 days after our second jab. We didn't realise this coincidence until some months later...
  20. cristiana
    Hello Jereh and welcome to the forum A lot of people become gluten free without needing to be so. For them, gluten isn't harmful. But if you do have coeliac disease, Non-coeliac gluten sensitivity, or an actual allergy to it, gluten is harmful and needs to be cut out of the diet completely. I ate it for years without realising I had coeliac disease...
  21. cristiana
    Hello there Tyee Welcome to the forum. When I read this it reminded me of the letter I got from my consultant when I was awaiting my biopsy results. He wrote the endoscopy was normal. By that I think he meant he couldn't see any stomach ulcers, bleeding etc. The thing is, it isn't always possible to see coeliac villi damage with the naked eye...
  22. cristiana
    Congratulations on the referral, I think it will be well worth it. As you are going through the UK system, I'd read through Coeliac UK's recommendations that apply to your situation beforehand and take notes as these points might be helpful to discuss with a gastroenterologist. I understand it is possible to have anemia with Non-Coeliac Gluten Sensitivity...
  23. cristiana
    Hi Angela I've just checked what the recommended action is for someone in your position on the Coeliac UK website. Please do have a read and if you feel you have been eating enough gluten, and that isn't the problem, it suggests the next step you should take. I'm sorry as this isn't straight forward for you. Cristiana https://www.coeliac...
  24. cristiana
    I have an arachonoid cyst in my brain which a neurologist told me was "of no clinical importance". It is always noted on MRI scans as an incidental finding, and was found about nine years before my coeliac diagnosis when I started to get aura migraines. As far as I know it has never changed in size, I seem to recall my neurologist told me it would have...
  25. cristiana
    You are very welcome, Liam. Do keep in touch and let us know how you are progressing, and come back to us if you have any more questions. And I agree with you, I wasn't terribly convinced with the dyspepsia diagnosis either! I felt sure that my Doc was going to say that they'd found my stomach was red raw, but he never mentioned it. Possibly...
×
×
  • Create New...