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Feels like I can’t eat anything


SargeMaximus

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SargeMaximus Collaborator
53 minutes ago, Wheatwacked said:

Sorry about the delay on your posts. 

You might look at Dr Hyman's "Pegan Diet". It's a combo of Paleo and Vegan. He is head of the Cleveland Clinic Functional Medicine Department. A Celiac antibody screening might make sense if only to prove gluten is not an issue.

Me too, but I am 71, 6' 2". Maxed out at185 but that was all belly fat. I always felt 155 was my optimum. According to Dr Fuhrman when you are eating enough nutrition your body will gravitate to optimum. The problem with wheat is that the modern wheat, 80% of the market, that has replaced the wheat I grew up with, has added chromosomes to enhance unending growth, insect and disease resistance and fat storage.

"For a healthy adult, there’s no significant evidence that potassium from foods can cause hyperkalemia (16). For this reason, potassium from foods doesn’t have a tolerable upper intake level. This is the most a healthy adult can consume in a day without negative effects (6Trusted Source). Hyperkalemia generally affects people with poor kidney function or people who take medications that may affect kidney function."  https://www.healthline.com/nutrition/how-much-potassium-per-day#TOC_TITLE_HDR_8

Don't. You'll thank me later. 😀 Eat anything but.

 You could make a spreadsheet to track your intake. Here is an example of what I made for myself.  http://nutrientlog.doodlesnotes.net/. The National Nutrition Database is an excellant source of information. I used it real time to track my intakes. Increasing my iodine intake by eating Nori definitely helped my muscle tone.

First of all, don't assume I haven't tried Keto. I have. When I say I need carbs this is based on experience not assumption.

Second of all, go away until you can learn to reply without assuming you know everything about me. Because clearly you also don't know that I DO track all my food and calories meticulously.

Unbelievable. Where's the downvote button?


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Wheatwacked Veteran

I am sorry. I don't know what you know. I wrote what I thought would be helpful to you because it had been to me. No intent to insult you.

SargeMaximus Collaborator
19 hours ago, Wheatwacked said:

I am sorry. I don't know what you know. I wrote what I thought would be helpful to you because it had been to me. No intent to insult you.

Ok, fair enough. I’m gonna look into getting “Teff”. Seems like my best shot from what I’ve researched at this point

SargeMaximus Collaborator

Did more research on this issue this weekend. Seems all the wheat substitutes aren’t good either. Millet negatively affects the thyroid, Teff has way too much copper and other minerals in it to eat in any meaningful quantities, lentils have a ton of potassium, buckwheat has 78% of your daily value of magnesium per 100 grams but only 92 calories for the same serving. 
 

it seems hopeless. I don’t know how you guys do it

trents Grand Master

Sarge, you worry about many things. If you use several of those alternative grains in rotation I am reasonably certain you won't get an overload of any minerals. Don't make trouble where there is none.

cristiana Veteran

I'm a worrier, Sarge but I think trents is right though - try the rotation approach.   

SargeMaximus Collaborator
7 hours ago, trents said:

Sarge, you worry about many things. If you use several of those alternative grains in rotation I am reasonably certain you won't get an overload of any minerals. Don't make trouble where there is none.

What do you eat?


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knitty kitty Grand Master

@SargeMaximus,

I eat Autoimmune Protocol Diet, shown scientifically to help heal the gastrointestinal tract.

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

Because the AIP diet can be deficient in certain micronutrients (as any gluten free diet can be), I take B vitamins, other vitamins and minerals.

I take high dose Thiamine as Dr. Lonsdale recommends.

https://www.hormonesmatter.com/thiamine-deficiency-causes-problems/

More on Thiamine...

https://www.healthline.com/nutrition/thiamine-deficiency-symptoms#basics

One of the subtle early symptoms of Thiamine insufficiency is irritability.  I know when i was deficient in Thiamine, the smallest things would set me off.  Thiamine helps our brains function.  Our brains just thinking can use as much Thiamine as the muscles of a marathon runner.  

Eating a diet high in carbohydrates requires more Thiamine to process it into energy.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Hope this helps!

SargeMaximus Collaborator
16 minutes ago, knitty kitty said:

@SargeMaximus,

I eat Autoimmune Protocol Diet, shown scientifically to help heal the gastrointestinal tract.

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

Because the AIP diet can be deficient in certain micronutrients (as any gluten free diet can be), I take B vitamins, other vitamins and minerals.

I take high dose Thiamine as Dr. Lonsdale recommends.

https://www.hormonesmatter.com/thiamine-deficiency-causes-problems/

More on Thiamine...

https://www.healthline.com/nutrition/thiamine-deficiency-symptoms#basics

One of the subtle early symptoms of Thiamine insufficiency is irritability.  I know when i was deficient in Thiamine, the smallest things would set me off.  Thiamine helps our brains function.  Our brains just thinking can use as much Thiamine as the muscles of a marathon runner.  

Eating a diet high in carbohydrates requires more Thiamine to process it into energy.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Hope this helps!

Very helpful, thank you. I have been awfully irritated lately. I’ll look into this. Cheers

trents Grand Master
(edited)
1 hour ago, SargeMaximus said:

What do you eat?

For breakfast, I rotate between gluten-free oatmeal, buckwheat, and Might Tasty Hot Cereal (all of these are Bob's Red Mill products). I put a scoop of Bob's gluten-free flax seed meal in for fiber. I add to that a poached egg,  a strip of gluten-free turkey bacon (from Costco), V8 and a glass of either soy milk or skim milk (alternate mornings) with half a scoop of whey protein. I use erythritol as the sweetner. Cofee or tea. I have a sensitivity to eggs so I poach them. The steaming in the poaching process creates a hydrolysis effect that alters the protein.

For lunch, I usually eat a sandwich with gluten-free turkey or ham and a slice of American cheese and a piece of fresh fruit. I use Franz bakery's gluten-free sandwich bread.

The evening meal is a lot of different things with a meat (chicken, pork, beef or fish), a starch (rice, potato, or gluten-free chick pea noodles) and a fruit. My wife makes me gluten-free snacks such as brownies or cupcakes but I also snack on various things like pork rinds and potato chips. I'm not a big confection person but do eat deserts in moderation. I suffer from migraines so there are a number of things I try not to eat much of, particularly things high in tyramine such as pickled and aged things, peanuts and tree nuts. I also limit nightshades.

There are a lot of things that trigger migraines for me but I can eat many of them in smaller amounts and occasionally and I'm okay. It's the gut/brain axis thing at work.

I'm not a particularly sensitive celiac so I will allow myself to eat things sometimes that are not labeled gluten-free but could only contain trace amounts of gluten from handling and processing.

Edited by trents
SargeMaximus Collaborator
56 minutes ago, trents said:

For breakfast, I rotate between gluten-free oatmeal, buckwheat, and Might Tasty Hot Cereal (all of these are Bob's Red Mill products). I put a scoop of Bob's gluten-free flax seed meal in for fiber. I add to that a poached egg,  a strip of gluten-free turkey bacon (from Costco), V8 and a glass of either soy milk or skim milk (alternate mornings) with half a scoop of whey protein. I use erythritol as the sweetner. Cofee or tea. I have a sensitivity to eggs so I poach them. The steaming in the poaching process creates a hydrolysis effect that alters the protein.

For lunch, I usually eat a sandwich with gluten-free turkey or ham and a slice of American cheese and a piece of fresh fruit. I use Franz bakery's gluten-free sandwich bread.

The evening meal is a lot of different things with a meat (chicken, pork, beef or fish), a starch (rice, potato, or gluten-free chick pea noodles) and a fruit. My wife makes me gluten-free snacks such as brownies or cupcakes but I also snack on various things like pork rinds and potato chips. I'm not a big confection person but do eat deserts in moderation. I suffer from migraines so there are a number of things I try not to eat much of, particularly things high in tyramine such as pickled and aged things, peanuts and tree nuts. I also limit nightshades.

There are a lot of things that trigger migraines for me but I can eat many of them in smaller amounts and occasionally and I'm okay. It's the gut/brain axis thing at work.

I'm not a particularly sensitive celiac so I will allow myself to eat things sometimes that are not labeled gluten-free but could only contain trace amounts of gluten from handling and processing.

Fantastic I will try these. Thank you so much 🙏 

Oh and I don’t have a poacher for my eggs, is there another way to poach them? Thanks

trents Grand Master
SargeMaximus Collaborator
trents Grand Master

Poaching helps some people who have sensitivity to egg protein. No guarantees that it will work for you but it's worth a try. Please note that I am not saying this will enable you to eat all the eggs you want. It may help but you still might have to limit the quantity of eggs you would like to consume. This has been my experience. But eggs are such a powerful source of nutrition that I don't want to entirely eliminate them if I can help it. And as I mentioned earlier, my experience with many or most food sensitivities (excluding gluten and a few others) is that I can eat these things as long as I don't eat too much of them and/or too often. There is a threshold.

SargeMaximus Collaborator
26 minutes ago, trents said:

Poaching helps some people who have sensitivity to egg protein. No guarantees that it will work for you but it's worth a try. Please note that I am not saying this will enable you to eat all the eggs you want. It may help but you still might have to limit the quantity of eggs you would like to consume. This has been my experience. But eggs are such a powerful source of nutrition that I don't want to entirely eliminate them if I can help it. And as I mentioned earlier, my experience with many or most food sensitivities (excluding gluten and a few others) is that I can eat these things as long as I don't eat too much of them and/or too often. There is a threshold.

Yea I’m noticing that as well. For example, burgers (which have sugar in the mustard and ketchup, tomatoes in the ketchup, pickles, Soy lechtin in the Patties, processed cheese and white bread for the bun) affect me in a VERY positive way. Like, I feel invincible and get a lot of lasting energy for the whole day whenever I eat them.

 

meanwhile eating a so called healthy diet I feel like I’m dying and lethargic 

Grammy9 Rookie

Another reason for not being able to gain weight or keep your weight is high blood sugar. Often overlooked. People always associate diabetics with overweight. I am celiac. Diagnosed at 73 years young. I am not diabetic but many in my family are and they are all bean poles. Get checked. 

Wheatwacked Veteran
On 12/27/2022 at 11:16 AM, SargeMaximus said:

I don’t have a poacher for my eggs

Boil a pot of water a few inches deep with a teaspoon of vinegar (or not). Break the eggs one at a time into a large spoon and settle into the water. Scoop out when cooked and cool in a pot of ice water.

Wheatwacked Veteran
On 12/27/2022 at 1:03 AM, SargeMaximus said:

buckwheat has 78% of your daily value of magnesium per 100 grams but only 92 calories

I did not know that. I may try it.  I am often on the wrong side of that 50%. There is no upper limit on magnesium in food. It's the supplements that need to be watched. Notice the UL is less than the EAR for males over 30.  Here is a chart that may be helpful.  Happy Holidays.

Quote

 

NIH Magnesium Fact Sheet for Health Professionals   Magnesium is a cofactor in more than 300 enzyme systems that regulate diverse biochemical reactions in the body, including protein synthesis, muscle and nerve function

Estimated Average Requirement (EAR): Average daily level of intake estimated to meet the requirements of 50% of healthy individuals

...Dietary surveys of people in the United States consistently show that many people consume less than recommended amounts of magnesium....The chronic diarrhea and fat malabsorption resulting from Crohn’s disease, gluten-sensitive enteropathy (celiac disease), and regional enteritis can lead to magnesium depletion over time.

 

image.png.9ce99d2ff95eb64b33ce3ba229c6b897.pngVitaminRDA Upper

SargeMaximus Collaborator
18 minutes ago, Wheatwacked said:

I did not know that. I may try it.  I am often on the wrong side of that 50%. There is no upper limit on magnesium in food. It's the supplements that need to be watched. Notice the UL is less than the EAR for males over 30.  Here is a chart that may be helpful.  Happy Holidays.

image.png.9ce99d2ff95eb64b33ce3ba229c6b897.pngVitaminRDA Upper

Magnesium can definitely be overdosed if you’re not careful

trents Grand Master

Magnesium overdose is quite rare and is unlikely to happen in the absence of some underlying health issues: https://www.healthline.com/health/food-nutrition/magnesium-overdose-whats-the-likelihood#symptoms-of-overdose

Practically speaking, the only significant concern with magnesium overdose is the laxative effect. More than likely, that would tell you if you are overdosing and even then, you probably aren't harming yourself in other ways. Actually, magnesium deficiency is more likely when not supplementing than overdosing is from supplementing.

SargeMaximus Collaborator

Ok so I been trying buckwheat and sweet potatoes but I always get that pain in my right upper abdomen afterwards. I think it’s just too much fibre. Also, there’s barely any calories. I honestly don’t know how you guys do it

SargeMaximus Collaborator

Celiac.com sent me an email asking if my question has been answered. It hasn’t. So far I’ve tested most of the suggestions here and only discovered further complications. Buckwheat doesn’t appear to agree with me, potatoes cause constipation, I’m currently trying lentils and beans but there aren’t enough calories. According to my food app, 1 cup of lentils is only 230 calories! And I need to eat at least 3000 calories a day! That’s a lot of lentils w t f

knitty kitty Grand Master

@SargeMaximus,

Have you tried adding Thiamine (thiamine hydrochloride, benfotiamine, Allithiamine) to your diet? 

Constipation is an early symptom of Thiamine insufficiency.  

Thiamine is needed to turn carbohydrates into energy.  

The more carbohydrates you include in your diet, the more Thiamine is needed. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

"The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability and mood lability are common [4]. A sense of mental fuzziness and subtle decrements in memory are often reported, along with loss of appetite, sleep disturbances and/or gastrointestinal (GI) discomfort and dysmotility. Food intolerances and vomiting may develop as the deficiency progresses. Experimental [5] and case literature [6] suggest GI discomfort and dysmotility may be more prevalent early indications of TD than currently appreciated. A form of GI beriberi has been identified but is under-recognized [7]."

SargeMaximus Collaborator
1 hour ago, knitty kitty said:

@SargeMaximus,

Have you tried adding Thiamine (thiamine hydrochloride, benfotiamine, Allithiamine) to your diet? 

Constipation is an early symptom of Thiamine insufficiency.  

Thiamine is needed to turn carbohydrates into energy.  

The more carbohydrates you include in your diet, the more Thiamine is needed. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

"The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability and mood lability are common [4]. A sense of mental fuzziness and subtle decrements in memory are often reported, along with loss of appetite, sleep disturbances and/or gastrointestinal (GI) discomfort and dysmotility. Food intolerances and vomiting may develop as the deficiency progresses. Experimental [5] and case literature [6] suggest GI discomfort and dysmotility may be more prevalent early indications of TD than currently appreciated. A form of GI beriberi has been identified but is under-recognized [7]."

This sounds very much like me. I did a quick search on google and it says good sources of thiamin are Pork (which I eat in every meal Most days) and lentils (Which I just added to my diet).

Any other ways to get it? And why would I be defficient if I eat pork regulrly? Thanks

knitty kitty Grand Master
(edited)

@SargeMaximus,

Salting, smoking or curing can inactivate thiamine.  So if you're eating sausages, bacon and hams, you're not getting enough thiamine.  

Caffeine in soda pop, coffee and black tea will also inactivate thiamine.  

Sweet potatoes contain thiaminase, an enzyme that breaks thiamine down so it doesn't work. 

If you've got Small Intestinal Bacterial Overgrowth (SIBO), your gut bacteria can absorb it before you do.  

Certain medications can prevent thiamine from being absorbed.  Other medications block thiamine transporters that allow thiamine into the cells.  This causes a functional thiamine deficiency...you might have "normal" blood levels, but still have this functional deficiency because the thiamine is not able to get inside the cells.  

Thiamine Transporters turn off when there's not enough thiamine.  In order to turn the transporters back on, the system must be flooded with Thiamine so there's a gradient (moving from areas of high concentration to low concentration).  

High doses of thiamine are needed to flood the system, more than you can eat realistically.  

The World Health Organization states that a diagnosis of thiamine deficiency can be made if improvement is seen after a patient has been given 500 - 2000 mg thiamine hydrochloride for a week.  

I started with Thiamine Hydrochloride in 100 mg tablets for five bucks.  I took 300 mg every three hours, increasing to six times a day.  I took magnesium glycinate at night because magnesium is needed to work with thiamine.  

I had improvement as soon as I took my first dose.  It really made a dramatic difference.  I learned about the fat soluble forms, Allithiamine and Benfotiamine and Thiamax (which contains magnesium).  Benfotiamine has been scientifically shown to promote healing in the gastrointestinal tract.  Allithiamine and Thiamax help with brain function.  

     Thiamine is safe and nontoxic.  Any excess not absorbed is easily excreted in urine.  There's no upper limit because it is nontoxic.  

Thiamine with Vitamin C and hydrocortisone has been used to help people with Covid survive.

Hydrocortisone, Ascorbic Acid and Thiamine (HAT Therapy) for the Treatment of Sepsis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6265973/

I hope you will try it.  Such a cheap easily available test.  Give it a week.  

Edited by knitty kitty
Typo correction

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    • Stegosaurus
      I've been following a low carbohydrate Keto AutoImmune Protocol diet.  It's all I can handle.  I'm so excited to learn about thiamine from you.  The benfotiamine should arrive today.  I sure hope it's my missing piece!!!
    • knitty kitty
      I respectfully disagree, @Scott Adams.   Thiamine deficiency (and deficiencies in other B vitamins) can cause unintentional weight loss.  The body will use stored fat and muscle to provide energy in thiamine deficiency.  This results in muscle wasting, fat loss, fatigue, and difficulty putting on muscle mass.  Using stored fat and muscle for energy requires less thiamine than the amount of thiamine required to process carbohydrates.  Thiamine deficiency causes gastrointestinal Beriberi, a localized thiamine deficiency in the digestive tract, which results in dysbiosis, inflammation, and abdominal pain.  Carbohydrates can remain undigested in the intestinal system, which bacteria feed on, encouraging SIBO, and prompting dysbiosis, leaky gut, and inflammation.  Following a low carbohydrate Keto diet, like the AutoImmune Protocol diet, can help because it removes excess carbohydrates that the bacteria feed on.  SIBO can cause weight gain due to inflammational edema of the intestines (water retention in the tissues of the intestines), gas, and slowed transit times.  SIBO bacteria can absorb nutrients from your food before you can, resulting in additional deficiencies of other B vitamins and nutrients.   Thiamine deficiency is corrected with high dose Thiamine Hydrochloride, Benfotiamine and/or Thiamine TTFD (tetrahydrofurfuryl disulfide).  High dose thiamine in the form Benfotiamine has been shown to promote intestinal healing.  It improves "leaky gut".  High dose Benfotiamine will improve the gut microbiome in favor of beneficial bacteria.  Thiamine TTFD is beneficial for neurological issues.  Thiamine TTFD improves brain function and is beneficial for mental health issues such as depression and anxiety, and other neurological problems like Ataxia and Brain Fog.    Methylated (activated) B Complex vitamins help correct Thiamine deficiency because all eight B vitamins work together.  Vitamin C and the four fat soluble vitamins (A, D, E, and K) are needed as well.  Minerals like Magnesium, Calcium, Iron,  Potassium, and others may need to be supplemented as well.  Thiamine and Magnesium make life sustaining enzymes together.   Supplementing with high doses of Thiamine and other water soluble B vitamins will lower pain and inflammation, improve fatigue, improve muscle mass gain, as well as regulate the intestinal microbiome!  So, @Stegosaurus, you can get healthier while improving gut dysbiosis at the same time! References: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dietary Vitamin B1 Intake Influences Gut Microbial Community and the Consequent Production of Short-Chain Fatty Acids https://pmc.ncbi.nlm.nih.gov/articles/PMC9147846/
    • Aretaeus Cappadocia
      You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test won't tell you if he has celiac, it can only tell you whether or not he is susceptible to getting celiac.)
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    • Scott Adams
      That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable.
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